Literature DB >> 25493463

Factors affecting parent-child relationships one year after positive newborn screening for cystic fibrosis or congenital hypothyroidism.

Audrey Tluczek1, Roseanne Clark, Anne Chevalier McKechnie, Roger L Brown.   

Abstract

OBJECTIVE: Examine factors that mediate parent-infant relationships 12 months after positive newborn screening (NBS).
METHODS: We examined effects of infant diagnosis, parents' perceptions of child vulnerability and child attachment, parental depression and anxiety on parent-infant feeding interactions for 131 mothers and 118 fathers of 131 infants whose NBS and diagnostics confirmed cystic fibrosis (CF, n = 23), congenital hypothyroidism (CH, n = 35), CF carrier status (CF-C, n = 38), or healthy normal NBS (H, n = 35).
RESULTS: Separate composite indicator structural equation models for mothers and fathers showed that neonatal diagnosis was not associated with increased anxiety or depression. In comparison with the healthy group, CF group parents reported higher perceptions of child vulnerability (p < .001, p = .002), and CF-C group fathers viewed their children as more attached (p = .021). High maternal perception of child vulnerability was associated with low perceptions of child attachment (p = .001), which was associated with task-oriented feeding behavior (p = .016, p = .029). Parental task-oriented feeding behavior was associated with less positive (p < .001, p < .001) and more negative interactions (p < .001, p = .001) with their infants. High paternal perception of child vulnerability was associated with negative parent interactions (p < .001). High parental affective involvement and verbalization was associated with high infant affective expressiveness, communicative skills, and social responsiveness (mothers' p < .001, fathers' p < .001). High parental negative effect and/or inconsistent and intrusive behavior were associated with infant dysregulation and irritability (mothers, p < .001, fathers, p < .001).
CONCLUSION: The severity of conditions identified through NBS can affect parents' perceptions of their child's vulnerability and attachment. Infant feeding problems in the context of chronic health conditions, like CF, could represent signs of more deeply rooted concerns regarding the parent-child relationship that merit additional clinical evaluation.

Entities:  

Mesh:

Year:  2015        PMID: 25493463      PMCID: PMC4276429          DOI: 10.1097/DBP.0000000000000112

Source DB:  PubMed          Journal:  J Dev Behav Pediatr        ISSN: 0196-206X            Impact factor:   2.225


  35 in total

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5.  The natural history and predictors of persistent problem behaviours in cystic fibrosis: a multicentre, prospective study.

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6.  Psychosocial consequences of false-positive newborn screens for cystic fibrosis.

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7.  The child vulnerability scale: an instrument to measure parental perceptions of child vulnerability.

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Journal:  J Pediatr Psychol       Date:  1996-02

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2.  Healthcare professionals' and parents' experiences of the confirmatory testing period: a qualitative study of the UK expanded newborn screening pilot.

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6.  International Approaches to Management of CFTR-Related Metabolic Syndrome/Cystic Fibrosis Screen Positive, Inconclusive Diagnosis.

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7.  Co-designing Improved Communication of Newborn Bloodspot Screening Results to Parents: Mixed Methods Study.

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8.  Rethinking Strategies for Positive Newborn Screening Result (NBS+) Delivery (ReSPoND): a process evaluation of co-designing interventions to minimise impact on parental emotional well-being and stress.

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9.  Qualitative exploration of health professionals' experiences of communicating positive newborn bloodspot screening results for nine conditions in England.

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Journal:  BMJ Open       Date:  2020-10-01       Impact factor: 2.692

10.  Delivering Positive Newborn Screening Results: Cost Analysis of Existing Practice versus Innovative, Co-Designed Strategies from the ReSPoND Study.

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Journal:  Int J Neonatal Screen       Date:  2022-03-14
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