Literature DB >> 10757645

Predictive testing for hereditary breast and ovarian cancer: a psychological framework for pre-test counselling.

M Decruyenaere1, G Evers-Kiebooms, L Denayer, M Welkenhuysen, E Claes, E Legius, K Demyttenaere.   

Abstract

Since the identification of two breast-ovarian cancer susceptibility genes (BRCA1/2), predictive testing for hereditary breast/ovarian cancer (HBOC) has been available. Given the complexity and uncertainties of HBOC and the potential impact of predictive testing on psychological well-being, we offer the test applicants a combination of information-oriented and psychological counselling. In this paper, we describe the multidisciplinary approach for predictive testing for HBOC as a clinical service in Leuven, hereby focusing on psychological and decision counselling practice. Attention is paid to the theoretical framework used for pre-test psychological counselling in Leuven. We discuss three important interacting dimensions of psychological counselling: individual emotional support, decision counselling and support of the family communication process. Decision counselling consists of an evaluation of the cognitive and the emotional processing of the information given and strategies and resources for coping. This serves as a starting point to facilitate free informed decision making. Scenario development is used as a decision aid.

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Year:  2000        PMID: 10757645     DOI: 10.1038/sj.ejhg.5200438

Source DB:  PubMed          Journal:  Eur J Hum Genet        ISSN: 1018-4813            Impact factor:   4.246


  3 in total

1.  Willingness to participate in genomics research and desire for personal results among underrepresented minority patients: a structured interview study.

Authors:  Saskia C Sanderson; Michael A Diefenbach; Randi Zinberg; Carol R Horowitz; Margaret Smirnoff; Micol Zweig; Samantha Streicher; Ethylin Wang Jabs; Lynne D Richardson
Journal:  J Community Genet       Date:  2013-06-22

2.  Predictive genetic testing for hereditary breast and ovarian cancer: psychological distress and illness representations 1 year following disclosure.

Authors:  E Claes; G Evers-Kiebooms; L Denayer; M Decruyenaere; A Boogaerts; K Philippe; E Legius
Journal:  J Genet Couns       Date:  2005-10       Impact factor: 2.537

3.  Health-related quality of life in hereditary transthyretin amyloidosis polyneuropathy: a prospective, observational study.

Authors:  Mónica Inês; Teresa Coelho; Isabel Conceição; Lara Ferreira; Mamede de Carvalho; João Costa
Journal:  Orphanet J Rare Dis       Date:  2020-03-06       Impact factor: 4.123

  3 in total

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