Literature DB >> 10635495

Withholding/withdrawing treatment from neonates: legislation and official guidelines across Europe.

H E McHaffie1, M Cuttini, G Brölz-Voit, L Randag, R Mousty, A M Duguet, B Wennergren, P Benciolini.   

Abstract

Representatives from eight European countries compared the legal, ethical and professional settings within which decision making for neonates takes place. When it comes to limiting treatment there is general agreement across all countries that overly aggressive treatment is to be discouraged. Nevertheless, strong emphasis has been placed on the need for compassionate care even where cure is not possible. Where a child will die irrespective of medical intervention, there is widespread acceptance of the practice of limiting aggressive treatment or alleviating suffering even if death may be hastened as a result. Where the infant could be saved but the future outlook is bleak there is more debate, but only two countries have tested the courts with such cases. When it comes to the active intentional ending of life, the legal position is standard across Europe; it is prohibited. However, recognising those intractable situations where death may be lingering and unpleasant, Dutch paediatricians have reported that they do sometimes assist babies to die with parental consent. Two cases have been tried through the courts and recent official recommendations have set out standards by which such actions may be assessed.

Entities:  

Keywords:  Death and Euthanasia; European Concerted Action Project (EURONIC); Legal Approach

Mesh:

Year:  1999        PMID: 10635495      PMCID: PMC479290          DOI: 10.1136/jme.25.6.440

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  13 in total

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Journal:  N Engl J Med       Date:  1992-06-04       Impact factor: 91.245

2.  Assisted suicide: can we learn from Germany?

Authors:  M P Battin
Journal:  Hastings Cent Rep       Date:  1992 Mar-Apr       Impact factor: 2.683

3.  Euthanasia in The Netherlands.

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Journal:  Hastings Cent Rep       Date:  1992 Mar-Apr       Impact factor: 2.683

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Journal:  J Pediatr       Date:  1996-11       Impact factor: 4.406

5.  [Ethical decisions making in neonatal intensive care. Survey among nursing staff in 2 French centers].

Authors:  M Garel; S Gosme-Séguret; M Kaminski; M Cuttini
Journal:  Arch Pediatr       Date:  1997-07       Impact factor: 1.180

6.  Medical end-of-life decisions made for neonates and infants in the Netherlands.

Authors:  A van der Heide; P J van der Maas; G van der Wal; C L de Graaff; J G Kester; L A Kollée; R de Leeuw; R A Holl
Journal:  Lancet       Date:  1997-07-26       Impact factor: 79.321

7.  The role of parents in end-of-life decisions in neonatology: physicians' views and practices.

Authors:  A van der Heide; P J van der Maas; G van der Wal; L A Kollée; R de Leeuw; R A Holl
Journal:  Pediatrics       Date:  1998-03       Impact factor: 7.124

8.  Prolonging life and allowing death: infants.

Authors:  A G Campbell; H E McHaffie
Journal:  J Med Ethics       Date:  1995-12       Impact factor: 2.903

9.  Euthanasia, withholding life-prolonging treatment, and moral differences between killing and letting die.

Authors:  R Gillon
Journal:  J Med Ethics       Date:  1988-09       Impact factor: 2.903

10.  Pediatric euthanasia.

Authors:  J P Orlowski; M L Smith; J Van Zwienen
Journal:  Am J Dis Child       Date:  1992-12
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  14 in total

Review 1.  Overview of European legislation on informed consent for neonatal research.

Authors:  P Dalla-Vorgia; S Mason; C Megone; P Allmark; D Bratlid; A B Gill; P Morrogh; A Plomer; S Reiter-Theil
Journal:  Arch Dis Child Fetal Neonatal Ed       Date:  2001-01       Impact factor: 5.747

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Authors:  R Gillon
Journal:  J Med Ethics       Date:  1999-12       Impact factor: 2.903

3.  Deciding for imperilled newborns: medical authority or parental autonomy?

Authors:  H E McHaffie; I A Laing; M Parker; J McMillan
Journal:  J Med Ethics       Date:  2001-04       Impact factor: 2.903

4.  Ethically complex decisions in the neonatal intensive care unit: impact of the new French legislation on attitudes and practices of physicians and nurses.

Authors:  Micheline Garel; Laurence Caeymaex; François Goffinet; Marina Cuttini; Monique Kaminski
Journal:  J Med Ethics       Date:  2011-01-07       Impact factor: 2.903

5.  Decision making concerning life-sustaining treatment in paediatric nephrology: professionals' experiences and values.

Authors:  Isabelle Fauriel; Grégoire Moutel; Nathalie Duchange; Luc Montuclard; Marie-Laure Moutard; Pierre Cochat; Christian Hervé
Journal:  Nephrol Dial Transplant       Date:  2005-10-04       Impact factor: 5.992

6.  Futility: revisiting a concept of shared moral judgment.

Authors:  David A Fleming
Journal:  HEC Forum       Date:  2005-12

7.  Decisional challenges for children requiring assisted ventilation at home.

Authors:  Kathleen Cranley Glass; Franco A Carnevale
Journal:  HEC Forum       Date:  2006-09

8.  Neonatal euthanasia: moral considerations and criminal liability.

Authors:  M Sklansky
Journal:  J Med Ethics       Date:  2001-02       Impact factor: 2.903

9.  The acceptability among lay persons and health professionals of actively ending the lives of damaged newborns.

Authors:  Nathalie Teisseyre; Charles Vanraet; Paul C Sorum; Etienne Mullet
Journal:  Monash Bioeth Rev       Date:  2010-09

10.  Relationship of neonatologists' end-of-life decisions to their personal fear of death.

Authors:  Peter Barr
Journal:  Arch Dis Child Fetal Neonatal Ed       Date:  2007-02-06       Impact factor: 5.747

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