Literature DB >> 9544351

The complexities embedded in family-centered care.

M C Lawlor1, C F Mattingly.   

Abstract

The recent movement toward family-centered care, which has been propelled by the implementation of the Education for All Handicapped Children Amendments of 1986, poses considerable challenges to professionals trained in client-centered models of service delivery. These challenges are compounded by the fact that our understanding of family-centered care lags considerably behind our attempts to implement responsive and efficacious services. When practitioners include family members more integrally as collaborators in pediatric treatment, their perceptions about families and the nature of the therapeutic experience is affected. In this article, we present a number of critical dilemmas that are based on data drawn from ethnographic research, descriptive studies, and training seminars we conducted with pediatric practitioners and parents of children with special health care needs. These dilemmas highlight the complexities involved in building effective partnerships among all the key players, the influence of multiple cultural worlds on everyday practices, and the need to provide supports to practitioners for the emotional and social dimensions of practice. Implications for practice and future research are presented.

Entities:  

Mesh:

Year:  1998        PMID: 9544351     DOI: 10.5014/ajot.52.4.259

Source DB:  PubMed          Journal:  Am J Occup Ther        ISSN: 0272-9490


  11 in total

1.  Bridging the divide between families and health professionals' perspectives on family-centred care.

Authors:  Gail L MacKean; Wilfreda E Thurston; Catherine M Scott
Journal:  Health Expect       Date:  2005-03       Impact factor: 3.377

2.  Learning from Stories: Narrative Interviewing in Cross-cultural Research.

Authors:  Cheryl Mattingly; Mary Lawlor
Journal:  Scand J Occup Ther       Date:  2000-01       Impact factor: 2.611

3.  Focus on function: a cluster, randomized controlled trial comparing child- versus context-focused intervention for young children with cerebral palsy.

Authors:  Mary C Law; Johanna Darrah; Nancy Pollock; Brenda Wilson; Dianne J Russell; Stephen D Walter; Peter Rosenbaum; Barb Galuppi
Journal:  Dev Med Child Neurol       Date:  2011-05-13       Impact factor: 5.449

4.  Design and Preliminary Testing of the Caregiver-Centered Communication Questionnaire (CCCQ).

Authors:  George Demiris; Freda DeKeyser Ganz; Claire J Han; Kenneth Pike; Debra Parker Oliver; Karla Washington
Journal:  J Palliat Care       Date:  2019-11-07       Impact factor: 2.250

Review 5.  Beyond V40.31: Narrative Phenomenology of Wandering in Autism and Dementia.

Authors:  Olga Solomon; Mary C Lawlor
Journal:  Cult Med Psychiatry       Date:  2018-06

6.  Reading Minds and Telling Tales in a Cultural Borderland.

Authors:  Cheryl Mattingly
Journal:  Ethos       Date:  2008-03-01

7.  "Maybe They Don't Even Know That I Exist": Challenges Faced by Family Members and Friends of Patients with Advanced Kidney Disease.

Authors:  Ann M O'Hare; Jackie Szarka; Lynne V McFarland; Elizabeth K Vig; Rebecca L Sudore; Susan Crowley; Lynn F Reinke; Ranak Trivedi; Janelle S Taylor
Journal:  Clin J Am Soc Nephrol       Date:  2017-03-29       Impact factor: 8.237

8.  "And I look down and he is gone": narrating autism, elopement and wandering in Los Angeles.

Authors:  Olga Solomon; Mary C Lawlor
Journal:  Soc Sci Med       Date:  2013-07-05       Impact factor: 4.634

9.  Improving client-centered brain injury rehabilitation through research-based theater.

Authors:  Pia C Kontos; Karen-Lee Miller; Julie E Gilbert; Gail J Mitchell; Angela Colantonio; Michelle L Keightley; Cheryl Cott
Journal:  Qual Health Res       Date:  2012-08-30

Review 10.  Parental engagement in early intervention for infants with cerebral palsy-A realist synthesis.

Authors:  Phillip Antony Harniess; Deanna Gibbs; Jeff Bezemer; Anna Purna Basu
Journal:  Child Care Health Dev       Date:  2021-11-01       Impact factor: 2.943

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