Literature DB >> 23890970

"And I look down and he is gone": narrating autism, elopement and wandering in Los Angeles.

Olga Solomon1, Mary C Lawlor.   

Abstract

'Wandering' and 'elopement' have been identified as common in autism, affecting half of all diagnosed children ages four to ten, yet families rarely receive advice from practitioners even after the fact. Family perspectives have been missing from the literature as well as from public health and policy debates on how and when to respond to this problem. The problem of 'wandering' and 'elopement' reveals a complex intersection of larger issues encountered by families of children with autism. To consider these issues, this article examines 'wandering' and 'elopement' from the perspectives of African American mothers of children with autism, an underrepresented group in autism research. We consider how the mothers experience these behaviors and the response to these behaviors by professionals, such as service coordinators and law enforcement personnel working within various jurisdictions that become involved with the problem. We analyze the mothers' narratives about 'wandering' and 'elopement' drawn from ethnographic interviews that were collected between October 1, 2009 and August 31, 2012. These interviews were part of a larger project on disparities in autism diagnosis and services that followed a cohort of 25 four to ten-year old children. Drawing on narrative, phenomenological and interpretive traditions, we trace the mothers' developing understandings of 'wandering' and 'elopement' over time, and show how these understandings become elaborated and transformed. This article provides a nuanced, moment-to-moment and longitudinal picture of the mothers' experiences of 'wandering' and 'elopement' that enriches the cross-sectional view of large-scale surveys about the problem and contributes unique insights at the family and community levels. Implications for professional awareness, clinical practice and service provision are also suggested.
Copyright © 2013 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  African American; Autism; Elopement; Family perspectives; Mothers; Narrative; USA; Wandering

Mesh:

Year:  2013        PMID: 23890970      PMCID: PMC3788703          DOI: 10.1016/j.socscimed.2013.06.034

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  22 in total

1.  Negotiating the contested terrain of narrative methods in illness contexts.

Authors:  Carol Thomas
Journal:  Sociol Health Illn       Date:  2010-05

2.  I/We narratives among African American families raising children with special needs.

Authors:  Lanita Jacobs; Mary Lawlor; Cheryl Mattingly
Journal:  Cult Med Psychiatry       Date:  2011-03

3.  Disparities in diagnoses received prior to a diagnosis of autism spectrum disorder.

Authors:  David S Mandell; Richard F Ittenbach; Susan E Levy; Jennifer A Pinto-Martin
Journal:  J Autism Dev Disord       Date:  2006-12-08

4.  Family-centered care. Decreasing health disparities.

Authors:  Bonnie Gance-Cleveland
Journal:  J Spec Pediatr Nurs       Date:  2006-01       Impact factor: 1.260

5.  Learning from Stories: Narrative Interviewing in Cross-cultural Research.

Authors:  Cheryl Mattingly; Mary Lawlor
Journal:  Scand J Occup Ther       Date:  2000-01       Impact factor: 2.611

6.  Access to care for autism-related services.

Authors:  Kathleen C Thomas; Alan R Ellis; Carolyn McLaurin; Julie Daniels; Joseph P Morrissey
Journal:  J Autism Dev Disord       Date:  2007-03-19

7.  The complexities embedded in family-centered care.

Authors:  M C Lawlor; C F Mattingly
Journal:  Am J Occup Ther       Date:  1998-04

8.  Disparities in diagnosis and access to health services for children with autism: data from the National Survey of Children's Health.

Authors:  Gregory S Liptak; Lauren B Benzoni; Daniel W Mruzek; Karen W Nolan; Melissa A Thingvoll; Christine M Wade; G Edgar Fryer
Journal:  J Dev Behav Pediatr       Date:  2008-06       Impact factor: 2.225

9.  A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005-2006.

Authors:  Michael D Kogan; Bonnie B Strickland; Stephen J Blumberg; Gopal K Singh; James M Perrin; Peter C van Dyck
Journal:  Pediatrics       Date:  2008-12       Impact factor: 7.124

Review 10.  Developmental regression in autism spectrum disorders.

Authors:  Sally J Rogers
Journal:  Ment Retard Dev Disabil Res Rev       Date:  2004
View more
  13 in total

1.  The social life of health records: understanding families' experiences of autism.

Authors:  Amber M Angell; Olga Solomon
Journal:  Soc Sci Med       Date:  2014-07-08       Impact factor: 4.634

2.  Listening to Bedouin Mothers of Children with Autism.

Authors:  Iris Manor-Binyamini; Avihu Shoshana
Journal:  Cult Med Psychiatry       Date:  2018-06

3.  How Families Make Sense of Their Child's Behaviour When on an Autism Assessment and Diagnosis Waiting List.

Authors:  Katie Denman; Cordet Smart; Rudi Dallos; Paula Levett
Journal:  J Autism Dev Disord       Date:  2016-11

4.  ‘What Brings Him Here Today?’: Medical Problem Presentation Involving Children with Autism Spectrum Disorders and Typically Developing Children.

Authors:  Olga Solomon; John Heritage; Larry Yin; Douglas W Maynard; Margaret L Bauman
Journal:  J Autism Dev Disord       Date:  2016-02

Review 5.  Beyond V40.31: Narrative Phenomenology of Wandering in Autism and Dementia.

Authors:  Olga Solomon; Mary C Lawlor
Journal:  Cult Med Psychiatry       Date:  2018-06

6.  "But-He'll Fall!": Children with Autism, Interspecies Intersubjectivity, and the Problem of 'Being Social'.

Authors:  Olga Solomon
Journal:  Cult Med Psychiatry       Date:  2015-06

7.  Reported Wandering Behavior among Children with Autism Spectrum Disorder and/or Intellectual Disability.

Authors:  Catherine E Rice; Benjamin Zablotsky; Rosa M Avila; Lisa J Colpe; Laura A Schieve; Beverly Pringle; Stephen J Blumberg
Journal:  J Pediatr       Date:  2016-05-02       Impact factor: 4.406

8.  African American families on autism diagnosis and treatment: the influence of culture.

Authors:  Karen Burkett; Edith Morris; Patricia Manning-Courtney; Jean Anthony; Donna Shambley-Ebron
Journal:  J Autism Dev Disord       Date:  2015-10

9.  "You Can Turn off the Light If You'd Like": Pediatric Health Care Visits for Children with Autism Spectrum Disorder as an Interactional Achievement.

Authors:  Olga Solomon; Amber M Angell; Larry Yin; Mary C Lawlor
Journal:  Med Anthropol Q       Date:  2015-10-21

10.  Understanding parents' concerns about their children with autism taking public school transportation in Los Angeles County.

Authors:  Amber M Angell; Olga Solomon
Journal:  Autism       Date:  2017-02-01
View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.