Literature DB >> 9127568

Patients' views on reference to clinical data.

N Hamajima1, K Tajima.   

Abstract

In order to survey patients' views on reference to clinical data for research purposes, an anonymous self-administered questionnaire was distributed to Aichi Cancer Center Hospital patients in 1995. All eligible first-visit outpatients (97 persons), randomly selected revisit outpatients (99 persons), and all eligible inpatients in a good condition at discharge except six cases (97 persons), responded to the questionnaire. Out of 293 patients (115 males, 174 females and 4 unspecified), 85.3% (standard error 2.1%) considered that hospitals should make active efforts to improve their health care and treatment skills. And 88.1% (standard error 1.9%) answered that reference to their own clinical data to improve health care and treatment skills was "preferable" or "don't mind".

Entities:  

Keywords:  Aichi Cancer Center Hospital; Biomedical and Behavioral Research; Empirical Approach

Mesh:

Year:  1997        PMID: 9127568     DOI: 10.2188/jea.7.17

Source DB:  PubMed          Journal:  J Epidemiol        ISSN: 0917-5040            Impact factor:   3.211


  4 in total

1.  Joint replacement recipients' views about health information privacy.

Authors:  Amanda L Terry; Bert M Chesworth; Robert B Bourne; Paul Stolee; Mark Speechley
Journal:  Health Expect       Date:  2013-10-01       Impact factor: 3.377

2.  Attitudes of the Japanese public and doctors towards use of archived information and samples without informed consent: preliminary findings based on focus group interviews.

Authors:  Atsushi Asai; Motoki Ohnishi; Etsuyo Nishigaki; Miho Sekimoto; Shunichi Fukuhara; Tsuguya Fukui
Journal:  BMC Med Ethics       Date:  2002-01-09       Impact factor: 2.652

3.  Patients' views on residual blood use for research purposes.

Authors:  N Hamajima; K Tajima; H Oya; T Kato; K Okuma; H Kaneda; S Moritaka; T Kato
Journal:  Jpn J Cancer Res       Date:  1998-03

4.  A systematic literature review of health consumer attitudes towards secondary use and sharing of health administrative and clinical trial data: a focus on privacy, trust, and transparency.

Authors:  Elizabeth Hutchings; Max Loomes; Phyllis Butow; Frances M Boyle
Journal:  Syst Rev       Date:  2020-10-09
  4 in total

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