Literature DB >> 8658230

Healing fictions': stories of choosing in the aftermath of the detection of fetal anomalies.

M Sandelowski1, L C Jones.   

Abstract

Between the cultural story of prenatal diagnosis emphasizing the expansion of choice and the countercultural story emphasizing the lack of choice are the individual stories of choosing told by expectant and new parents after learning of the existence of a fetal impairment. The results of a qualitative, descriptive study involving 40 interviews with 15 women and 12 of their partners suggest that they had often 'backed into', as opposed to having actively chosen or refused, prenatal testing. After learning of their babies' impairments, they constructed subtly different accounts of pregnancies continued or terminated that located the moral agency for effecting these pregnancy outcomes either in themselves or elsewhere. These emplotments of choice can be summarized as nature's choice, disowned choice, choice lost, close choice and choice found. The findings raise questions concerning which of these or other constructions of choice in the aftermath of positive fetal diagnosis are the most effective in promoting psychological recovery and optimum parent-infant interactions.

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Year:  1996        PMID: 8658230     DOI: 10.1016/0277-9536(95)00102-6

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  15 in total

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2.  Nuance, complexity, and context: qualitative methods in genetic counseling research.

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Journal:  J Genet Couns       Date:  1997-03       Impact factor: 2.537

3.  Exploring adoption with clients: the need for adoption education within the genetic counseling profession.

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Review 4.  The parents' journey: continuing a pregnancy after a diagnosis of Patau's syndrome.

Authors:  Louise Locock; Jane Crawford; Jon Crawford
Journal:  BMJ       Date:  2005-11-19

5.  Experiences of prenatal diagnosis of spina bifida or hydrocephalus in parents who decide to continue with their pregnancy.

Authors:  Julie Chaplin; Robert Schweitzer; Shelley Perkoulidis
Journal:  J Genet Couns       Date:  2005-04       Impact factor: 2.537

Review 6.  A literature update on maternal-fetal attachment.

Authors:  Jeanne L Alhusen
Journal:  J Obstet Gynecol Neonatal Nurs       Date:  2008 May-Jun

7.  Evaluating a novel intervention to reduce trauma symptoms and sexual risk taking: qualitative exit interviews with sexual minority men with childhood sexual abuse.

Authors:  S Wade Taylor; Brett M Goshe; Samantha M Marquez; Steven A Safren; Conall O'Cleirigh
Journal:  Psychol Health Med       Date:  2017-07-12       Impact factor: 2.423

8.  Embodied Knowledge and Making Sense of Prenatal Diagnosis.

Authors:  A Lippman
Journal:  J Genet Couns       Date:  1999-10       Impact factor: 2.537

9.  The World War II plutonium experiments: contested stories and their lessons for medical research and informed consent.

Authors:  S R Kaufman
Journal:  Cult Med Psychiatry       Date:  1997-06

10.  Acknowledged Dependence and the Virtues of Perinatal Hospice.

Authors:  Aaron D Cobb
Journal:  J Med Philos       Date:  2015-12-08
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