Literature DB >> 8457793

Managing life with a chronic condition: the story of normalization.

C A Robinson.   

Abstract

One way that families and individuals manage living with a chronic condition is to construct and live a story of "life as normal." The conceptualization of this process is based on constant comparative analysis of accounts of individuals and family members who are managing chronic conditions. The process begins with construction of the story of life as normal and continues as the story is lived over time. As the story is enacted, persons reauthor their lives. Thus the reciprocal nature of the process becomes evident. Specifically, how individuals and families construct and enact the story is discussed along with the role of health care professionals in the process and associated costs and benefits.

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Year:  1993        PMID: 8457793     DOI: 10.1177/104973239300300102

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  13 in total

1.  Couples' coping in prodromal Huntington disease: a mixed methods study.

Authors:  Nancy R Downing; Janet K Williams; Anne L Leserman; Jane S Paulsen
Journal:  J Genet Couns       Date:  2012-01-26       Impact factor: 2.537

2.  Normalization as a Strategy for Maintaining Quality of Life While Coping with Infertility in a Pronatalist Culture.

Authors:  Yael Benyamini; Miri Gozlan; Ariel Weissman
Journal:  Int J Behav Med       Date:  2017-12

3.  The eating experience in long-term survivors of head and neck cancer: a mixed-methods study.

Authors:  Heidi Ganzer; Pamela Rothpletz-Puglia; Laura Byham-Gray; Barbara A Murphy; Riva Touger-Decker
Journal:  Support Care Cancer       Date:  2015-04-08       Impact factor: 3.603

Review 4.  The epidemiology and experience of atopic eczema during childhood: a discussion paper on the implications of current knowledge for health care, public health policy and research.

Authors:  M Fennessy; S Coupland; J Popay; K Naysmith
Journal:  J Epidemiol Community Health       Date:  2000-08       Impact factor: 3.710

5.  Patterns of family management of childhood chronic conditions and their relationship to child and family functioning.

Authors:  Kathleen A Knafl; Janet A Deatrick; George J Knafl; Agatha M Gallo; Margaret Grey; Jane Dixon
Journal:  J Pediatr Nurs       Date:  2013-04-19       Impact factor: 2.145

6.  Parental perceptions of the outcome and meaning of normalization.

Authors:  Kathleen A Knafl; Blair G Darney; Agatha M Gallo; Denise B Angst
Journal:  Res Nurs Health       Date:  2010-04       Impact factor: 2.228

7.  Living with severe physical impairment, Duchenne's muscular dystrophy and home mechanical ventilation.

Authors:  Pia S Dreyer; Birgit F Steffensen; Birthe D Pedersen
Journal:  Int J Qual Stud Health Well-being       Date:  2010-08-02

8.  Trust, Health Care Relationships, and Chronic Illness: A Theoretical Coalescence.

Authors:  Carole A Robinson
Journal:  Glob Qual Nurs Res       Date:  2016-08-12

9.  Self-rated health and reasons for non-vaccination against seasonal influenza in Canadian adults with asthma.

Authors:  Jennifer L Guthrie; David Fisman; Jennifer L Gardy
Journal:  PLoS One       Date:  2017-02-16       Impact factor: 3.240

10.  3MD for Chronic Conditions, a Model for Motivational mHealth Design: Embedded Case Study.

Authors:  Guido Giunti
Journal:  JMIR Serious Games       Date:  2018-08-24       Impact factor: 4.143

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