Literature DB >> 8042667

Informed consent and Huntington disease: a model for communication.

N F Sharpe.   

Abstract

American and Canadian professional accreditation standards for medical genetics, and genetic counseling require certain abilities with regard to "communication." What remains unclear is how such standards are to be interpreted in terms of appropriate clinical protocols, objectives, and values. These issues have significant medical and legal implications, particularly with regard to medical malpractice. From the perspective of genetic testing for Huntington disease, this paper identifies those clinical objectives and practices which may be described as constituting the appropriate standard of care for "communication," and informed consent.

Entities:  

Keywords:  Genetics and Reproduction; Professional Patient Relationship

Mesh:

Year:  1994        PMID: 8042667     DOI: 10.1002/ajmg.1320500306

Source DB:  PubMed          Journal:  Am J Med Genet        ISSN: 0148-7299


  6 in total

1.  The duty to recontact: benefit and harm.

Authors:  N F Sharpe
Journal:  Am J Hum Genet       Date:  1999-10       Impact factor: 11.025

Review 2.  Genetic counseling for psychiatric disorders.

Authors:  D W Tsuang; S V Faraone; M T Tsuang
Journal:  Curr Psychiatry Rep       Date:  2001-04       Impact factor: 5.285

3.  Psychological Model for Presymptomatic Test Interviews: Lessons Learned from Huntington Disease.

Authors:  J Soldan; E Street; J Gray; J Binedell; P S Harper
Journal:  J Genet Couns       Date:  2000-02       Impact factor: 2.537

4.  Nonparticipation in Huntington's Disease Predictive Testing: Reasons for Caution in Interpreting Findings.

Authors:  J Binedell; J R Soldan
Journal:  J Genet Couns       Date:  1997-12       Impact factor: 2.537

Review 5.  Huntington's disease predictive testing: the case for an assessment approach to requests from adolescents.

Authors:  J Binedell; J R Soldan; J Scourfield; P S Harper
Journal:  J Med Genet       Date:  1996-11       Impact factor: 6.318

6.  A sociobehavioural perspective on genetic testing and counselling for heritable breast, ovarian and colon cancer.

Authors:  K G Macdonald; B Doan; M Kelner; K M Taylor
Journal:  CMAJ       Date:  1996-02-15       Impact factor: 8.262

  6 in total

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