Literature DB >> 7529102

Ethical issues in palliative care research.

L de Raeve1.   

Abstract

Much has been written about the ethics of experimental research upon human subjects, particularly where such subjects can be said to be in a vulnerable position in relation to the researcher. This paper attempts to address such questions with reference to people who are dying. A case is made to defend the view that no research is morally justifiable with this client group. Less extreme views are also explored. One justification for such research activity comes from a rights-based perspective and another from the weighing of benefits and harms. In the process of exploring these issues, the author attempts to demonstrate that no research methodology can be said to be benign.

Entities:  

Keywords:  Biomedical and Behavioral Research; Death and Euthanasia

Mesh:

Year:  1994        PMID: 7529102     DOI: 10.1177/026921639400800405

Source DB:  PubMed          Journal:  Palliat Med        ISSN: 0269-2163            Impact factor:   4.762


  16 in total

1.  Palliative care research: trading ethics for an evidence base.

Authors:  A M Jubb
Journal:  J Med Ethics       Date:  2002-12       Impact factor: 2.903

Review 2.  Ethical challenges and solutions regarding delirium studies in palliative care.

Authors:  Lisa Sweet; Dimitrios Adamis; David J Meagher; Daniel Davis; David C Currow; Shirley H Bush; Christopher Barnes; Michael Hartwick; Meera Agar; Jessica Simon; William Breitbart; Neil MacDonald; Peter G Lawlor
Journal:  J Pain Symptom Manage       Date:  2013-12-31       Impact factor: 3.612

3.  Community-based participatory research: understanding a promising approach to addressing knowledge gaps in palliative care.

Authors:  Catherine Riffin; Cara Kenien; Angela Ghesquiere; Ashley Dorime; Carolina Villanueva; Daniel Gardner; Jean Callahan; Elizabeth Capezuti; M Carrington Reid
Journal:  Ann Palliat Med       Date:  2016-07

4.  Suffering and dying in cancer patients. Research frontiers in controlling confusion, cachexia, and dyspnea.

Authors:  N MacDonald
Journal:  West J Med       Date:  1995-09

5.  It doesn't cost anything just to ask, does it? The ethics of questionnaire-based research.

Authors:  M Evans; M Robling; F Maggs Rapport; H Houston; P Kinnersley; C Wilkinson
Journal:  J Med Ethics       Date:  2002-02       Impact factor: 2.903

Review 6.  What do palliative care patients and their relatives think about research in palliative care?-a systematic review.

Authors:  Clare White; Janet Hardy
Journal:  Support Care Cancer       Date:  2009-08-25       Impact factor: 3.603

7.  A survey of the views of palliative care healthcare professionals towards referring cancer patients to participate in randomized controlled trials in palliative care.

Authors:  Clare White; Kristen Gilshenan; Janet Hardy
Journal:  Support Care Cancer       Date:  2008-05-01       Impact factor: 3.603

8.  Ethical conduct of palliative care research: enhancing communication between investigators and institutional review boards.

Authors:  Amy P Abernethy; Warren H Capell; Noreen M Aziz; Christine Ritchie; Maryjo Prince-Paul; Rachael E Bennett; Jean S Kutner
Journal:  J Pain Symptom Manage       Date:  2014-05-28       Impact factor: 3.612

9.  Hospice: rehabilitation in reverse.

Authors:  Senthilkumar Jeyaraman; Ganesan Kathiresan; Kavitha Gopalsamy
Journal:  Indian J Palliat Care       Date:  2010-09

10.  Is the qualitative research interview an acceptable medium for research with palliative care patients and carers?

Authors:  Marjolein Gysels; Cathy Shipman; Irene J Higginson
Journal:  BMC Med Ethics       Date:  2008-04-24       Impact factor: 2.652

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