Literature DB >> 27481321

Community-based participatory research: understanding a promising approach to addressing knowledge gaps in palliative care.

Catherine Riffin1, Cara Kenien2, Angela Ghesquiere3, Ashley Dorime4, Carolina Villanueva5, Daniel Gardner3, Jean Callahan6, Elizabeth Capezuti7, M Carrington Reid2.   

Abstract

Concern over the need for effective and accessible healthcare for individuals with advanced chronic illness has drawn attention to the significant gaps in our knowledge of palliative medicine. To advance our understanding of this field, community-based participatory research (CBPR) is proposed as a tool for future research initiatives. This paper offers a rationale for how CBPR may be employed to address specific gaps in palliative care research. Several examples where this approach has been used previously are described, and potential obstacles to implementing this research method are delineated. Despite challenges to incorporating CBPR to palliative care research, this approach holds substantial potential to advance our current understanding of the field and promote sensitivity for future programs, practices and policies.

Entities:  

Keywords:  Community-based participatory research (CBPR); palliative care

Mesh:

Year:  2016        PMID: 27481321      PMCID: PMC5470584          DOI: 10.21037/apm.2016.05.03

Source DB:  PubMed          Journal:  Ann Palliat Med        ISSN: 2224-5820


  27 in total

Review 1.  Palliative Care: the World Health Organization's global perspective.

Authors:  Cecilia Sepúlveda; Amanda Marlin; Tokuo Yoshida; Andreas Ullrich
Journal:  J Pain Symptom Manage       Date:  2002-08       Impact factor: 3.612

Review 2.  Review of community-based research: assessing partnership approaches to improve public health.

Authors:  B A Israel; A J Schulz; E A Parker; A B Becker
Journal:  Annu Rev Public Health       Date:  1998       Impact factor: 21.981

3.  Seeking new methodology for palliative care research: challenging assumptions about studying people who are approaching the end of life.

Authors:  Jane B Hopkinson; David N M Wright; Jessica L Corner
Journal:  Palliat Med       Date:  2005-10       Impact factor: 4.762

4.  Engaging Latina cancer survivors, their caregivers, and community partners in a randomized controlled trial: Nueva Vida intervention.

Authors:  Christina L Rush; Margaret Darling; Maria Gloria Elliott; Ivis Febus-Sampayo; Charlene Kuo; Juliana Muñoz; Ysabel Duron; Migdalia Torres; Claudia Campos Galván; Florencia Gonzalez; Larisa Caicedo; Anna Nápoles; Roxanne E Jensen; Emily Anderson; Kristi D Graves
Journal:  Qual Life Res       Date:  2014-11-08       Impact factor: 4.147

Review 5.  Does palliative care improve outcomes for patients with incurable illness? A review of the evidence.

Authors:  Areej El-Jawahri; Joseph A Greer; Jennifer S Temel
Journal:  J Support Oncol       Date:  2011 May-Jun

6.  Applying community-based participatory research principles and approaches in clinical trials: forging a new model for cancer clinical research.

Authors:  Sarena D Seifer; Margo Michaels; Stacy Collins
Journal:  Prog Community Health Partnersh       Date:  2010

Review 7.  Dignity conserving care at end-of-life: a narrative review.

Authors:  Ulrika Östlund; Hilary Brown; Bridget Johnston
Journal:  Eur J Oncol Nurs       Date:  2011-09-13       Impact factor: 2.398

8.  Delivering palliative care to patients and caregivers in inner-city communities: challenges and opportunities.

Authors:  Karen Kayser; Rosanna F DeMarco; Charu Stokes; Susan DeSanto-Madeya; Philip C Higgins
Journal:  Palliat Support Care       Date:  2013-10-24

9.  Circles of care: development and initial evaluation of a peer support model for African Americans with advanced cancer.

Authors:  Laura C Hanson; Tonya D Armstrong; Melissa A Green; Michelle Hayes; Stacie Peacock; Sharon Elliot-Bynum; Moses V Goldmon; Giselle Corbie-Smith; Jo Anne Earp
Journal:  Health Educ Behav       Date:  2012-10-16

10.  Engaging service users in the development of stroke services: an action research study.

Authors:  Stephanie P Jones; Malcolm F Auton; Christopher R Burton; Caroline L Watkins
Journal:  J Clin Nurs       Date:  2008-05       Impact factor: 3.036

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  8 in total

Review 1.  Forging a New Frontier: Providing Palliative Care to People With Cancer in Rural and Remote Areas.

Authors:  Marie Bakitas; Kristen Allen Watts; Emily Malone; J Nicholas Dionne-Odom; Susan McCammon; Richard Taylor; Rodney Tucker; Ronit Elk
Journal:  J Clin Oncol       Date:  2020-02-05       Impact factor: 44.544

2.  Development of a Community-Based Palliative Care Screening Tool for Underserved Older Adults With Chronic Illnesses.

Authors:  Angela Ghesquiere; Daniel S Gardner; Caitlin McAfee; Cara Kenien; Elizabeth Capezuti; Elissa Kozlov; Jo Anne Sirey; M Carrington Reid
Journal:  Am J Hosp Palliat Care       Date:  2018-01-03       Impact factor: 2.500

3.  Taking patient involvement seriously: a critical ethical analysis of participatory approaches in data-intensive medical research.

Authors:  Katharina Beier; Mark Schweda; Silke Schicktanz
Journal:  BMC Med Inform Decis Mak       Date:  2019-04-25       Impact factor: 2.796

Review 4.  Patient and carer involvement in palliative care research: An integrative qualitative evidence synthesis review.

Authors:  Eleni Chambers; Clare Gardiner; Jill Thompson; Jane Seymour
Journal:  Palliat Med       Date:  2019-06-28       Impact factor: 4.762

5.  Developing and Testing the Feasibility of a Culturally Based Tele-Palliative Care Consult Based on the Cultural Values and Preferences of Southern, Rural African American and White Community Members: A Program by and for the Community.

Authors:  Ronit Elk; Linda Emanuel; Joshua Hauser; Marie Bakitas; Sue Levkoff
Journal:  Health Equity       Date:  2020-03-26

6.  Compassionate community structure and function: a standardised micro-model for end-of-life doulas and community members supporting those who wish to die at home.

Authors:  Annetta Mallon
Journal:  Palliat Care Soc Pract       Date:  2021-10-22

Review 7.  Preserving independence among under-resourced older adults in the Southeastern United States: existing barriers and potential strategies for research.

Authors:  Ene M Enogela; Taylor Buchanan; Christy S Carter; Ronit Elk; Shena B Gazaway; Burel R Goodin; Elizabeth A Jackson; Raymond Jones; Richard E Kennedy; Emma Perez-Costas; Lisa Zubkoff; Emily L Zumbro; Alayne D Markland; Thomas W Buford
Journal:  Int J Equity Health       Date:  2022-08-27

8.  Community Education for a Dignified Last Phase of Life for Migrants: A Community Engagement, Mixed Methods Study among Moroccan, Surinamese and Turkish Migrants.

Authors:  Xanthe de Voogd; Dick L Willems; Bregje Onwuteaka-Philipsen; Marieke Torensma; Jeanine L Suurmond
Journal:  Int J Environ Res Public Health       Date:  2020-10-24       Impact factor: 3.390

  8 in total

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