Literature DB >> 36264860

Stakeholder engagement in a hypertension and diabetes prevention research program: Description and lessons learned.

Archana Shrestha1,2,3, Dipesh Tamrakar1, Bhawana Shrestha1, Biraj Man Karmacharya1, Abha Shrestha1, Prajjwal Pyakurel4, Donna Spiegelman2,5.   

Abstract

BACKGROUND: Stakeholder engagement is important from the management point of view to capture knowledge, increase ownership, reduce conflict, encourage partnership, as well as to develop an ethical perspective that facilitates inclusive decision making and promotes equity. However, there is dearth of literature in the process of stakeholder engagement. The purpose of this paper is to describe the process of increasing stakeholder engagement and highlight the lessons learnt on stakeholder engagement while designing, implementing, and monitoring a study on diabetes and hypertension prevention in workplace settings in Nepal.
METHODOLOGY: We identified the stakeholders based on the 7P framework: Patients and public (clients), providers, payers, policy makers, product makers, principal investigators, and purchasers. The identified stakeholders were engaged in prioritization of the research questions, planning data collection, designing, implementing, and monitoring the intervention. Stakeholders were engaged through focus group discussions, in-depth interviews, participatory workshops, individual consultation, information sessions and representation in study team and implementation committees.
RESULTS: The views of the stakeholders were synthesized in each step of the research process, from designing to interpreting the results. Stakeholder engagement helped to shape the methods and plan, and process for participant's recruitment and data collection. In addition, it enhanced adherence to intervention, mutual learning, and smooth intervention adoption. The major challenges were the time-consuming nature of the process, language barriers, and the differences in health and food beliefs between researchers and stakeholders.
CONCLUSION: It was possible to engage and benefit from stakeholder's engagement on the design, implementation and monitoring of a workplace-based hypertension and diabetes management research program in Nepal.

Entities:  

Mesh:

Year:  2022        PMID: 36264860      PMCID: PMC9584412          DOI: 10.1371/journal.pone.0276478

Source DB:  PubMed          Journal:  PLoS One        ISSN: 1932-6203            Impact factor:   3.752


  19 in total

1.  A new taxonomy for stakeholder engagement in patient-centered outcomes research.

Authors:  Thomas W Concannon; Paul Meissner; Jo Anne Grunbaum; Newell McElwee; Jeanne-Marie Guise; John Santa; Patrick H Conway; Denise Daudelin; Elaine H Morrato; Laurel K Leslie
Journal:  J Gen Intern Med       Date:  2012-04-13       Impact factor: 5.128

2.  Practice-based research is community engagement.

Authors:  John M Westfall; Lyle J Fagnan; Margaret Handley; Jon Salsberg; Paul McGinnis; Linda K Zittleman; Ann C Macaulay
Journal:  J Am Board Fam Med       Date:  2009 Jul-Aug       Impact factor: 2.657

Review 3.  Mapping the impact of patient and public involvement on health and social care research: a systematic review.

Authors:  Jo Brett; Sophie Staniszewska; Carole Mockford; Sandra Herron-Marx; John Hughes; Colin Tysall; Rashida Suleman
Journal:  Health Expect       Date:  2012-07-19       Impact factor: 3.377

Review 4.  A systematic review of approaches for engaging patients for research on rare diseases.

Authors:  Laura P Forsythe; Victoria Szydlowski; Mohammad Hassan Murad; Stanley Ip; Zhen Wang; Tarig A Elraiyah; Rachael Fleurence; David H Hickam
Journal:  J Gen Intern Med       Date:  2014-08       Impact factor: 5.128

Review 5.  Public involvement at the design stage of primary health research: a narrative review of case examples.

Authors:  Jonathan Boote; Wendy Baird; Claire Beecroft
Journal:  Health Policy       Date:  2009-12-05       Impact factor: 2.980

Review 6.  A systematic review of stakeholder engagement in comparative effectiveness and patient-centered outcomes research.

Authors:  Thomas W Concannon; Melissa Fuster; Tully Saunders; Kamal Patel; John B Wong; Laurel K Leslie; Joseph Lau
Journal:  J Gen Intern Med       Date:  2014-06-04       Impact factor: 5.128

7.  Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute.

Authors:  Lori Frank; Laura Forsythe; Lauren Ellis; Suzanne Schrandt; Sue Sheridan; Jason Gerson; Kristen Konopka; Sarah Daugherty
Journal:  Qual Life Res       Date:  2015-01-06       Impact factor: 4.147

8.  Nepal Pioneer Worksite Intervention Study to lower cardio-metabolic risk factors: design and protocol.

Authors:  Archana Shrestha; Dipesh Tamrakar; Biraj Man Karmacharya; Abha Shrestha; Rajeev Shrestha; Rajendra Dev Bhatta; Prajjwal Pyakurel; Polyna Khudyakov; Vasanti Malik; Josiemer Mattei; Donna Spiegelman
Journal:  BMC Cardiovasc Disord       Date:  2019-02-28       Impact factor: 2.298

9.  Drivers of healthy eating in a workplace in Nepal: a qualitative study.

Authors:  Dipesh Tamrakar; Archana Shrestha; Anjana Rai; Biraj Man Karmacharya; Vasanti Malik; Josiemer Mattei; Donna Spiegelman
Journal:  BMJ Open       Date:  2020-02-25       Impact factor: 2.692

10.  Which health research gets used and why? An empirical analysis of 30 cases.

Authors:  Maarten Olivier Kok; John Owusu Gyapong; Ivan Wolffers; David Ofori-Adjei; Joost Ruitenberg
Journal:  Health Res Policy Syst       Date:  2016-05-17
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