| Literature DB >> 36180896 |
David P Kennedy1, Elizabeth J D'Amico2, Ryan A Brown2, Alina I Palimaru2, Daniel L Dickerson3, Carrie L Johnson4, Anthony Lopez4.
Abstract
BACKGROUND: Coupling social network visualizations with Motivational Interviewing in substance use interventions has been shown to be acceptable and feasible in several pilot tests, and has been associated with changes in participants' substance use and social networks. The objective of this study was to assess acceptability and feasibility of an adaptation of this behavior change approach into a culturally centered behavior change intervention for American Indian/Alaska Native (AI/AN) emerging adults living in urban areas. AI/AN populations experience high rates of health disparities and substance use. Although 70% of AI/AN people live outside of tribal lands, there are few culturally tailored health interventions for these AI/AN populations. Social networks can both increase and discourage substance use. Leveraging healthy social networks and increasing protective factors among urban AI/AN emerging adults may help increase resilience.Entities:
Keywords: Alcohol and other drug use; EgoWeb 2.0; Emerging Adults; Motivational Interviewing; Native Americans; Personal network visualizations; Qualitative; Social networks; Substance use
Mesh:
Year: 2022 PMID: 36180896 PMCID: PMC9523629 DOI: 10.1186/s13722-022-00334-1
Source DB: PubMed Journal: Addict Sci Clin Pract ISSN: 1940-0632
Fig. 1Hypothetical network visualizations provided to focus group participants. Network visualizations were generated with hypothetical data entered into EgoWeb 2.0. Example network members are represented by circles (nodes), labeled with example names, and lines between nodes represent members who interacted with each other in the past two weeks. Placement of nodes in two dimensions for each graph was generated using the “Fruchterman-Reingold” layout algorithm in the R package “igraph”. The “Your Network” graph on the left shows the names of people the participant reported interacting with in the past two weeks and highlights the centrality of nodes by calibrating node size and color with number of connections for a particular node (degree centrality), and line thickness with the participant’s rating of how frequently the two nodes interacted. The middle graph labeled “Substance use” shows larger red nodes for people who the respondent rates as likely to use AOD in the next two weeks and smaller blue nodes for those who are unlikely. The right-hand graph labeled “Traditional Practice Support” shows larger green nodes for people who engage in traditional practices, and smaller blue nodes for people who do not
Focus group characteristics
| Focus group demographics (N = 91) | |||
|---|---|---|---|
| Young adults | Parents | Providers | |
| Age range (mean) | 18–25 (21.5) | 27–78 (46.5) | 23–72 (48.9) |
| Sex N (%) | |||
| Male | 10 (31%) | 4 (16%) | 7 (21%) |
| Female | 22 (69%) | 21 (84%) | 26 (79%) |
| Race N (%) | |||
| American Indian/Alaska Nativea | 22 (69%) | 19 (76%) | 19 (58%) |
| Mixed heritage (AI/AN plus other) | 10 (31%) | 4 (16%) | 6 (18%) |
| Other (White, Hispanic, Black) | 0 (0%) | 2 (8%) | 7 (21%) |
aTribal affiliations are not specified to protect tribal confidentiality [68]
Themes and illustrative quotes for focus group discussions
| Theme | Type of participant and participant quotes |
|---|---|
| Feasibility | • [Emerging Adult:] “I feel like it’s a pretty easy system to understand, especially when it’s laid out side-by-side…I feel like it’s like really clear…And a good way of kind of thinking through those things” • [Parent:] “Yeah, I like it. I like it how they just give you the basics, the questions. They're answering our basic questions and then the program…separates their social network for them. And then it’s easy to follow” • [Emerging Adult:] “I feel like it’s still a little confusing, just a tad bit” |
| Acceptability | (Discussions of similar community led social network mapping exercises) •[Provider:] “We did an activity like this with some transitional-age (youth). And what we did was…talking circles…to really kind of identify their social network” • [Provider:] “Each person got a big poster paper…And what we were trying to do really was create a support system for who was there. So, our goal is…to understand we were there in a good way and trying to create positive connections” • [Emerging Adult:] “If it was a strong connection, there was like a solid line. And then if there was like, I know them, they're there all the time, but I don't really talk to them, it was like a dotted line and stuff like that…they each did their own. And then they discussed it at the end” |
| Relevance | (Discussion of interest in seeing network diagrams) • [Emerging Adult:] “I would be curious to see how many people…use [substances] in my circle” • [Emerging Adult:] “(It) would kind of make them think of…their life choices” (Discussion of relevance of the example network diagram) • [Emerging Adult] “Yeah, big time. I think especially having them right next to each other. It makes me think about, especially …with the whole “likely to use”, her being the center of it all, but then also engaging in traditional practices, just wanting to figure out more about her and why that is and how that works….I think it makes me want to know more about these people and their relationships and how those two things do interact with each other, because it’s interesting that you can go one of two ways almost in both of those, that there’s all these different splits that you can take and how knowing other people would affect that” • [Emerging Adult:] “I’m actually going to say this is actually pretty true for me, which is creepy. Because I have no network, basically…I really don’t like to interact with people…I stay sober…And I’m super into traditional practices and ceremonial ways and stuff” • [Emerging Adult:] “Well, I feel like I’m a “Karen” because I go out a lot. And I have like my group of friends that I go to music festivals with or raves • [Emerging Adult:] “Is it talking about in our substance use…the people that we’re likely to communicate with mostly likely are going to be using…on a regular basis? Because that’s totally true…I don’t really associate with anybody that’s sober…when I’m high, I really don’t. I mean, I don’t want to be around people who are sober. So, that kind of makes sense” • [Provider:] “So like for me, the center one with the big red circles, I kind of see that as like the home environment and the community. So, let’s just say you take one of those people out of that environment, right. They go to get help, substance abuse help. And the thing is that nothing is really changing there in the community in the home. And you got somebody over here getting well or you know trying to make changes. And for a young adult, most of them that I come across are not self-sufficient. So, they go back to the same place. And so you have a continuous cycle that’s happening" |
| Usefulness | (Q: Would the diagrams help participants think about their choices?) • [Parent:] “It’ll make them think…maybe Suzy and Johnny aren’t the best people to be with” • [Emerging Adult:] “(Yes) if it was drawn out for each individual person and they were serious about considering becoming sober or improving their life in any way, shape, or form…Like these are like the people around me (that) it’s really not in my best interest to be hanging around” • [Emerging Adult:] “The social networks was a really good idea, and the diagrams…helped visualize how your social network affects you. But I also think maybe we could talk about…parental figures or older cousins that you might see or other family members…someone who may be an alcoholic or someone else who may have a drug addiction. ‘Cause it’s not just like your peers, your friends that you’re hanging out with, it’s also like your family figures that are important in your life” • [Provider:] “Maybe I need to work on this relationship with this person because this person isn’t doing it…maybe I need to focus in on that and maybe connect with that person a little bit more • [Parent] “If the child…put down the people that are in their lives…then they could start highlighting, if they had a problem, who could they go to?” • [Provider:] “I just want to reiterate that seeing it on paper is actually a good idea… because for somebody like me, you know, I’m just trying to think, okay, who’s using, who’s not and trying to think of the whole network. Well, if you put it on paper you can see, okay, well, this is my network and for like guys in general, they're very visual” • [Parent:] “I think this would really help with young adults just because sometimes they're displaced out of their homes or they're growing into adults. And they're leaving their homes and their social networks are changing… you'll show them how they're moving and how they can in the future move” • [Provider:] “One of the conversations we had about staying clean is that more than likely you’ll lose a lot of those friends as you move forward in your sobriety. So, this really is a good way to put into perspective because it’s a visual” • [Parent:] “They could start eliminating and choosing a different, alternate, like getting a different result, if you're eliminating these negative people, your result's going to be a better chance that you're going to not repeat the same mistakes over” • [Provider:] “It could say what are some friends and relatives I shouldn’t be around and then do you have a choice not to be around them. I mean, if your mother is the one that’s using substances, you don’t really have a choice. And so, determine, like, where are my strengths, where do I have choice? Where can I exercise choice? You know, so they can get used to that habit. I have a choice to select people sometimes, sometimes I don’t” • [Provider:] “I like it because I don’t think we teach our youth refusal skills enough or critical thinking skills enough… because we’re so community-minded, Native people, sometimes we don’t rate our relatives or rate our friends and in this world we do need to say, “Hey, we love Uncle So-and-So, but we don’t go hang out at their house because they always have alcohol.” And to get our youth to start thinking that way…our traditional values are that we love everybody, and we value everybody, and we lift everybody up, but there are some people you don’t want to hang out with if you’re a young person and they’re going to be exposing you to alcohol or other unhealthy behaviors. So, I’d like it because it sort of gets into refusal skills and critical thinking skills” (Discussion of using diagrams to track changes over time) • [Parent:] “It changes over time like a progress chart…It can be good because it can show…how you've shifted and who you interact with” • [Provider:] “It would be cool for them to see how it changes, because they'll be able to look at it over time and that can be really powerful…They'll see, oh look, I made these changes in my network and because of that, I'm not using as much” |
| Challenges | • [Provider:] “How do we do that in a way where it’s like that diagram isn’t going to immediately shut people down…I was looking at that and I’m like, who’s actually not using substances? And a lot of my dots would be red, you know what I mean? So, I’m like thinking to myself, as a young person, I would feel like, dang, I don’t even have anybody in my network—I would isolate myself from my whole family if I was to…try to transition” • [Provider:] “So when you say, ‘Hey, bring your healthy network… ‘Well, yeah, I don’t have anyone, so I'm just not going to come at all.’…Because obviously if they’re at-risk and within this group, they’re not going to have those healthy connections” • [Emerging Adult:] “I think I've witnessed… some people…stick with that group because that's like their only friends…try to avoid those people, but it can be difficult” • [Emerging Adult:] “I think a barrier, too…There’s elders that are also in their addiction…So, it’s hard to have both…others within the family could make you feel like that there’s almost like a betrayal. Now, you’re leaving us. You’re better than us” |
Fig. 2Network visualizations of 3 pilot workshop participants and text comments entered by participants into EgoWeb 2.0. Network visualizations were generated from pilot participant network data using the same layout, node size, node color visualization processing steps as Fig. 1. Participants viewed these visualizations directly in EgoWeb 2.0 after entering responses to questions about their networks. Node labels displayed in the EgoWeb 2.0 diagrams viewed by the pilot test visualizations have been removed. Text associated with each visualization is a verbatim response entered into a text box by each participant when viewing the diagram. Participants were prompted to enter text with the following text: (Your Network) “Take a look at the picture and think about what makes sense to you about the picture. Also, what is something you did not realize about your social network before looking at the picture?”; (Substance Use) “What do you notice about your picture?”; (Traditional Practice Support): “What do you think about how these different types of people are connected with each other?”
Description of themes identified in the comments entered by pilot test participants when viewing their personal network visualizations
| Theme | Description | Example quotes |
|---|---|---|
(8/12) | This theme includes comments about the participant gaining a new understanding of how network members were connected to each other after viewing their graphs. Comments described insights related to (1) interconnections among network members, (2) insights related to what they noticed about AOD use among members of their network, and (3) insights related to engagement in traditional cultural practices | •“Something I did not realize was how some members of my social network hardly know others or do not really know each other that well. Or how close some are compared to others, now that I see it laid out in front of me now.” •“What I didn’t realize is how connected everyone is even though they don’t connect all the time. It makes me realize how I might have two lives or separate the people who are in my life.” •“They are all connected. I did not realize we're all interconnected” •“I notice that the people that are closest to me are the ones who use drugs.” •“I think it is interesting to know who does not share or shares my same cultural traditions.” |
(4/12) | The theme represents a pattern of responses from participants about how the visualizations made sense to them because the visual features were consistent with what they already thought about their network | •“It makes sense that majority of the individuals have connections in some way since I communicate with some individuals which can lead to them sharing with the others and then the others reconnecting with me.” •“It makes sense, my friends are friends with each other. Other friends don't talk at all with each other.” |
Network concepts: network structure (9/12) | The theme includes a pattern of descriptions of networks that were consistent with concepts used in social network analysis to characterize interconnections among network members | •“Lots of people I know, know others” (density) •“They are all connected” (density) •“That was the only reason most of these people had come in contact with another, because of me. Other than that, the people listed that are related had their own contact and connections.” (centrality) •“My main circle knows the majority of people in my life rather than my people I occasionally talk to” (centrality) •“Those who I think may use them had a lot more connections to everyone else compared to those who I do not think would use.” (subgroups) •“I think that my family is isolated from other Native Americans, which make it hard to frequently engage in traditional activities consistently.” (components) •“The AI/AN people I know are self-contained from the rest of my network.” (components) •“It makes me realize how I might have two lives or separate the people who are in my life.” (bridging) |
Network concepts: network composition (10/12) | The theme includes a pattern of descriptions of networks that were consistent with concepts used in social network analysis to characterize the types of members of a network. Comments in this theme included mentions of the quantity of people who used or did not use AOD in the network. Also included were respondent comments about high or low proportion of network members who engaged in traditional practices or shared a cultural identity with the participant | •“I notice that the majority of my picture would be likely to use drugs and alcohol” •“I notice that I have more members of my social network that I do not think will use drugs or alcohol than I do for who I think may use them.” •“I've noticed how some could feel obligated to, considering how many “likely to’s” are in the direct circle.” •“I think it’s interesting that each one participates in traditional events in different ways” •“I notice most of the people I know do not identify as American Indian or Alaskan Native.” •“The people that are the red big circles are the same ones I'm in constant contact with that would make sense of being able to have an influence or impression on me.” |
Network concepts: characteristics of relationships (6/12) | This theme included comments about the quality of relationships participants had with network members and/or network members had with each other. Although not explicitly visualized, respondents identified patterns of relationship characteristics in the diagrams and noted the factors that tied certain individuals together more strongly than others. Relationship characteristics noted included frequency and recency of contact as well as feelings of closeness | •“The bigger red dots are the people I am in constant contact with.” •“There are some friends of mine that haven’t talked with one another in some time.” •“I feel like I have a stronger bond and understanding with my family that holds traditional values.” •“I notice that most of the individuals likely to use are young adults.” •“The blue circles are my older family members…that do not drink or party they are all over 35 + and are very involved in ceremony ways.” •“The others…are Indigenous young people under 25 who are all involved in cultural activities, but I think struggle with sobriety, depression, trauma etc.” •“Likely to encourage each other.” |
Themes and illustrative quotes from pilot workshop discussions
| Theme | Participant quotes |
|---|---|
| Feasibility | (Discussions of comfort with group discussions of social network graphs) •“Yeah, I was comfortable with sharing in that way.” •“We were just able to talk about it without having to say names, so I thought it was really good.” •“I like the level of anonymity that there was where the people leading the discussion were just kind of like, ‘Oh, who is assigned to which variable? Which groups are assigned to it?’ No names asked. The anonymity is still there, so I liked that. And there weren’t really any assumptions made by the people leading the discussion as far as I could tell.” •“The Native community is small. But…I’m actually surprised I don’t know anyone in here personally or see them around at events. So I think maybe possibly that’s why the conversation was a lot smoother.” |
| Acceptability | •“I personally liked it because we are who we surround ourselves with.” •“We know who we talk to but to actually see it that way was really cool.” •“Super interesting, new perspective of our social networks.” •“Well, it’s kind of a fun thing, ‘cause we don’t normally think about it, so it’s kind of fun, I think, to look at and see, ‘Oh, this is who I’m hanging out with and this is how they all go together.’” •“I was actually pretty surprised, because it got the exact people who actually use drugs, and I know they do…It was very accurate.” •“I kind of always knew but…it was never really in front of me, where it's like a proven fact…more clarity is what I gained from the map, which is really crazy because I never thought that it would be right in front of me, like physically… It’s not just in my head” •“Just lightbulb in my head, just filling out the survey… seeing wow, I do know people that harbor that duality of being in the traditional spiritual practices and being a user at the same time. And it's just that pull is constant, as well.” • “I think it was good, but there were some variables that I think were brought to light afterwards, after creating the social network…there’s a difference between people who moderately use substances and those who struggle with them…if the evaluation is simply amended to assign somebody either to moderate use or…problematic use or heavy use… that definitely would have helped me conceptualize and visualize how moderate and heavy substance use connects together.” |
| New and important insights | •“What I noticed with mine was that a lot of the people that I know only know each other or are connected because of me.” •“I noticed that everybody knew each other like through me or through…activities that we do, like pow-wows or ceremonies and stuff…except for two that were not Native. They didn’t connect with anybody. Everyone else was connected.” •“I noticed that I don't have…many friends that are outside of…ceremony or powwows…I was like, oh, dang, I need more friends of…different ethnicities.” •“I think mine was interesting to see because everybody in my network kind of had an interaction. And I think that's maybe just because of me being able to talk to them, having them talk to me and—kind of like a telephone effect. So that was interesting to see everybody was connected in some way…I didn’t really see—with the example that you showed, I didn’t really see any separate outside. So yeah, that was interesting.” •“A lot of people I know connect through sports or tradition, ‘cause that’s how it had been, well, for the past four years. That’s how I’ve been breaking up my, I guess you could say my friend group, ‘cause there’s sports, tradition, and school. So there’s a point where the substance abuse stops once you start getting into the traditional mix and then also where it begins and it's very…complex” •“Something that was pretty good is that…there was way less people likely to use and abuse drugs than people who are sober. I only had a few people in my network who were kind of in that area.” •“I liked it, because we could see different patterns and trends in our social networks and talk about them” •“I think the diagrams…and then while they were talking about it while it was right in front of us were the most helpful for me” •“I wouldn’t say I learned much new from it. I kind of already understood who used or didn’t use certain substances. But it was definitely grounds or a foundation for further discussion. Having it there was a very necessary tool to talking about what we did then. I would say it was pretty basic stuff when it was laid out before me. It was a nice visualization, but it was mostly tools for discussion thereafter. So I liked that.” (Discussing diagrams visualizing traditional practices and AOD use) •“It kind of like assumes that people that do traditional things don’t ever struggle or slip up with their sobriety.” •“Some people in my network…they participate in traditional practices in their culture, but they also have a habit of partying and being on the scene…So that was a huge eye-opener for me.” |