Mary Pat Sullivan1, Veronika Williams1, Adetola Grillo1, Roberta McKee-Jackson2, Paul M Camic2, Gill Windle3, Joshua Stott4, Emily Brotherhood2, Sebastian J Crutch2. 1. Faculty of Education and Professional Studies, 6057Nipissing University, North Bay, ON, Canada. 2. UCL Institute of Neurology, Dementia Research Centre, 58673University College London, London, UK. 3. Ageing and Dementia @ Bangor, Dementia Services Development Centre (DSDC), School of Health Sciences, 1506Bangor University, Bangor, UK. 4. Department of Clinical, Educational and Health Psychology, 58673University College London, London, UK.
Abstract
OBJECTIVES: The aim of this integrative review was to identify and synthesize the literature on peer support interventions for people living with or caring for someone with a rare or young onset dementia. DESIGN: A literature search of articles was performed using the Nipissing University Primo search system, a central index that enables simultaneous searches across databases which included MEDLINE (PubMed), Web of Science, PsycINFO, CINAHL, Sociological Abstracts, Cochrane Library. RESULTS: The eleven papers that met the inclusion criteria spanned eighteen years and from five countries. Studies reported on peer support programs that were either hospital-based (n = 6) or community-based (n = 4), and were predominantly led by disciplines in the health sciences. Only one study did not involve delivering services. There was a range of methodological quality within the studies included in the review. Further analysis and synthesis led to the identification of three overarching peer support themes. These included: (1) peers as necessarily part of social support interventions; (2) a theoretical portmanteau; and (3) dementia spaces and relationality. CONCLUSION: Consistent with a much larger body of work examining peer involvement in social interventions, this review reinforced the valuable contribution of peers. A full understanding of the mechanisms of change was not achieved. Notwithstanding, the issue of studies neglecting to sufficiently conceptualize and describe interventions is an important one - drawing attention to the need to continue to explore varied delivery, including co-produced models, and more effective evaluation strategies to inform the dementia care sector.
OBJECTIVES: The aim of this integrative review was to identify and synthesize the literature on peer support interventions for people living with or caring for someone with a rare or young onset dementia. DESIGN: A literature search of articles was performed using the Nipissing University Primo search system, a central index that enables simultaneous searches across databases which included MEDLINE (PubMed), Web of Science, PsycINFO, CINAHL, Sociological Abstracts, Cochrane Library. RESULTS: The eleven papers that met the inclusion criteria spanned eighteen years and from five countries. Studies reported on peer support programs that were either hospital-based (n = 6) or community-based (n = 4), and were predominantly led by disciplines in the health sciences. Only one study did not involve delivering services. There was a range of methodological quality within the studies included in the review. Further analysis and synthesis led to the identification of three overarching peer support themes. These included: (1) peers as necessarily part of social support interventions; (2) a theoretical portmanteau; and (3) dementia spaces and relationality. CONCLUSION: Consistent with a much larger body of work examining peer involvement in social interventions, this review reinforced the valuable contribution of peers. A full understanding of the mechanisms of change was not achieved. Notwithstanding, the issue of studies neglecting to sufficiently conceptualize and describe interventions is an important one - drawing attention to the need to continue to explore varied delivery, including co-produced models, and more effective evaluation strategies to inform the dementia care sector.
Authors: Minna Maria Pöysti; Marja-Liisa Laakkonen; Timo Strandberg; Niina Savikko; Reijo Sakari Tilvis; Ulla Eloniemi-Sulkava; Kaisu Hannele Pitkälä Journal: Int J Alzheimers Dis Date: 2012-09-30
Authors: Andrea M Mayrhofer; Elspeth Mathie; Jane McKeown; Claire Goodman; Lisa Irvine; Natalie Hall; Michael Walker Journal: Dementia (London) Date: 2018-08-19