Literature DB >> 24339063

Development and evaluation of a telehealth videoconferenced support group for rural spouses of individuals diagnosed with atypical early-onset dementias.

Megan E O'Connell1, Margaret Crossley, Allison Cammer, Debra Morgan, Wendy Allingham, Betty Cheavins, Donna Dalziel, Maurice Lemire, Sheri Mitchell, Ernie Morgan.   

Abstract

Atypical and early-onset dementias can be particularly problematic for family caregivers, and support groups aimed at memory loss and Alzheimer's disease are not always helpful. Unfortunately, little has been developed specifically for caregivers of individuals with atypical dementias such as the frontotemporal dementias. Compounding the lack of access to interventions targeted specifically at caregivers of individuals with atypical and early-onset dementias are the unique needs of rural caregivers. Due to the relative infrequency of these particular dementias and the large geographical distances between rural caregivers, technology-facilitation is required for any group-based intervention. This paper describes the development of a secure telehealth videoconferenced support group for rural spouses of individuals with atypical and early-onset dementias. In addition, we provide preliminary evidence of effectiveness and describe a template for future groups based on the key therapeutic aspects of this novel technology-facilitated intervention.

Entities:  

Keywords:  caregiver; frontotemporal dementia; support group; telehealth

Mesh:

Year:  2013        PMID: 24339063     DOI: 10.1177/1471301212474143

Source DB:  PubMed          Journal:  Dementia (London)        ISSN: 1471-3012


  26 in total

1.  Development of a Psycho-Educational Support Program for Individuals with Primary Progressive Aphasia and their Care-Partners.

Authors:  Darby J Morhardt; Mary C O'Hara; Kristine Zachrich; Christina Wieneke; Emily J Rogalski
Journal:  Dementia (London)       Date:  2017-03-22

2.  The telehealth satisfaction scale: reliability, validity, and satisfaction with telehealth in a rural memory clinic population.

Authors:  Debra G Morgan; Julie Kosteniuk; Norma Stewart; Megan E O'Connell; Chandima Karunanayake; Rob Beever
Journal:  Telemed J E Health       Date:  2014-10-01       Impact factor: 3.536

3.  Evolution of a community-based participatory approach in a rural and remote dementia care research program.

Authors:  Debra Morgan; Margaret Crossley; Norma Stewart; Andrew Kirk; Dorothy Forbes; Carl D'Arcy; Vanina Dal Bello-Haas; Lesley McBain; Megan O'Connell; Joanne Bracken; Julie Kosteniuk; Allison Cammer
Journal:  Prog Community Health Partnersh       Date:  2014

4.  An Interprofessional Skills Workshop to Teach Family Caregivers of People Living with Dementia to Provide Complex Care.

Authors:  Patty Prado; Rocio S Norman; Liset Vasquez; Ashley Glassner; Precious Osuoha; Kylie Meyer; Jennifer R Brackett; Carole L White
Journal:  J Interprof Educ Pract       Date:  2021-11-18

Review 5.  Peer support for people living with rare or young onset dementia: An integrative review.

Authors:  Mary Pat Sullivan; Veronika Williams; Adetola Grillo; Roberta McKee-Jackson; Paul M Camic; Gill Windle; Joshua Stott; Emily Brotherhood; Sebastian J Crutch
Journal:  Dementia (London)       Date:  2022-09-16

6.  Acceptability of the voice your values, an advance care planning intervention in persons living with mild dementia using videoconferencing technology.

Authors:  Shirin Vellani; Martine Puts; Andrea Iaboni; Katherine S McGilton
Journal:  PLoS One       Date:  2022-04-26       Impact factor: 3.752

7.  Testing Tele-Savvy: Protocol for a randomized controlled trial.

Authors:  Mariya A Kovaleva; Elizabeth Bilsborough; Patricia C Griffiths; Joe Nocera; Melinda Higgins; Fayron Epps; Katie Kilgore; Allison Lindauer; Darby Morhardt; Raj C Shah; Kenneth Hepburn
Journal:  Res Nurs Health       Date:  2018-02-05       Impact factor: 2.228

8.  Rural Caregivers: Identification of Informational Needs Through Telemedicine Questions.

Authors:  Shoshana H Bardach; Allison Gibson; Kelly Parsons; April Stauffer; Gregory A Jicha
Journal:  J Rural Health       Date:  2020-05-01       Impact factor: 4.333

9.  Therapeutic groups via video teleconferencing and the impact on group cohesion.

Authors:  Amy Lopez; Brian Rothberg; Emily Reaser; Sarah Schwenk; Rachel Griffin
Journal:  Mhealth       Date:  2020-04-05

10.  Availability and Primary Health Care Orientation of Dementia-Related Services in Rural Saskatchewan, Canada.

Authors:  Debra G Morgan; Julie G Kosteniuk; Norma J Stewart; Megan E O'Connell; Andrew Kirk; Margaret Crossley; Vanina Dal Bello-Haas; Dorothy Forbes; Anthea Innes
Journal:  Home Health Care Serv Q       Date:  2015
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