| Literature DB >> 36051549 |
Abstract
This paper describes the initial phases of the design and development of the Everyday Life Rehabilitation (ELR) intervention, and it presents preliminary findings on usefulness and implementation aspects derived from an ongoing larger trial exploring the effect, cost-effectiveness, and usefulness of ELR. ELR is a model designed to meet the absence of meaningful activities and challenges with integrated, activity- and recovery-oriented rehabilitation in sheltered and supported housing facilities for persons with extensive psychiatric disabilities. The aim of the present study was to examine early experiences of implementing the ELR model from the perspectives of managers, housing staff, and occupational therapists. The paper will sum up preliminary findings based on process data included in an internal pilot prior to a full-scale pragmatic clustered RCT. Four Swedish municipalities with 19 housing facility units were involved and provided process data for the study. Thematic analysis were applied. The informants perceived the methodology to be well suited to the target group and context and to contribute to positive changes in participants' lives. The web-based training was also experienced as relevant and easily accessible to staff, as well as elements of collegial learning and feedback. However, they reported that their municipalities lacked basic conditions for making the whole concept work in such a short time. The ELR is overall perceived as useful, but experiences also make complex difficulties visible regarding integrated, coordinated rehabilitation and organizational readiness. Based on findings, a recommendation on basic prerequisites will be added to the ELR guidance for leadership and management. Clinical trial registration: [ClinicalTrials.gov, 24 September 2021], identifier [NCT05056415].Entities:
Keywords: accommodations; coordinated; implementation; integrated; intervention development; psychiatric rehabilitation; psychosis; recovery-oriented
Year: 2022 PMID: 36051549 PMCID: PMC9424656 DOI: 10.3389/fpsyt.2022.954068
Source DB: PubMed Journal: Front Psychiatry ISSN: 1664-0640 Impact factor: 5.435
Figure 1Iterative process of the ELR design and development: sources of knowledge, key principles and mediators, and evidence that informed the program theory of ELR model.
Feasibility outcomes and modifications of the ELR intervention model.
|
| |||
|---|---|---|---|
|
|
|
|
|
| I. Preparatory study: User experiences of rehabilitation and activity changes in a supported housing facility context–the significance of home | -Emphasizing long-term rehabilitation and support perspectives, using authentic and meaningful real-life challenges, using progressive tensions, and working with inner as well as outer motivation and sociality | ||
| II. Outcome of ELR on activity and health variables | (Supporting continued research. Modifying research outcome to | ||
| III. Meaning-making of activity changes in a life context | -Underscoring social arenas and continuously deepened connectedness, using reflection on meaning and the doing, and strengthening sense of identity and personal agency | ||
| IV. Involvement and experiences of housing staff | -Converting education package to web-based training for HS and OTs | ||
| V. OT experiences of complex processes | -Clarifying transparency and negotiation of expectations | ||
I. Lindström et al. (27). II. Lindström et al. (28). III. Lindström et al. (25). IV. Lindström et al. (29). V. Lindström et al. (30).
Figure 2The Everyday Life Rehabilitation (ELR) intervention model.
Contextual features of sheltered and supported housing in Sweden, and concepts used.
| The role of the municipality, and legislative demands | In Sweden, people with severe and long-term psychiatric disabilities are entitled to live in sheltered or supported housing facilities, so called ‘LSS or SoL housing' according to the Act concerning Support and Service for Persons with Certain Functional Impairments (SFS 1993:387, LSS) or the Social Services Act (SFS 2001:453, SoL), when the disability is causing significant difficulties in daily life and thus requires extensive support or service by HS. It is mandatory to also offer basic healthcare, including rehabilitation, within the housing facilities (SFS 2017:30, HSL), and must be documented in an individual plan/rehab-plan. Thus, there are two areas of municipal responsibility where professionals, in order to meet the legal requirements, must collaborate in their work with the respective residents. |
| Sheltered and supported housing facilities | These terms describe two different forms of accommodations organized by the municipality. Here, ‘sheltered housing' refers to 24-h staffing and time-unlimited support to residents. ‘Supported housing' refers to staff based onsite up to 24-h per day. The number of people living in specific housing units can vary greatly but the type of support is similar. |
| Rehabilitation planning | ‘Rehabilitation' and ‘recovery' might be interchangeable, and both concepts can refer to either the process-steps led by professionals or the personal process of regaining meaningful activities, social roles etc. |
| Personal recovery path | Refers to the personal process of building a meaningful and satisfying everyday life of wellness and participation in society, despite severe mental illness and symptoms. In synthesized research, the five-domains of the CHIME model |
| HS roles and responsibilities | HS have a responsibility to support residents in their everyday lives. The methods are usually not regulated, and the level of competence is generally low |
| OTs roles and responsibilities | OTs have responsibility for assessing needs and planning individual rehabilitation, as well as collaborating with HS. OTs are responsible for full documentation according to statutory patient records. OTs are not stationed in housing, and belong to an organizational affiliation other than HS, whereupon ‘treatment as usual' in many municipalities have been described as single, short-term initiatives at the request of housing staff, such as prescribing cognitive technical aids. However, potential in the assignment exists in the form of outreach and motivation-strengthening offers of long-term recovery and activity-oriented rehabilitation based on the person's own wishes (in line with the ELR). |
Leamy et al. (16).
Socialstyrelsen (33).
Example of codes and related theme.
|
|
|
|---|---|
| Well-functioning for residents and staff but time-consuming, takes time to fully implement | Perceived usefulness of ELR |
| Based on collaboration and quality to users, at the same time competence development and collegial learning for staff | |
| Ideal way of working, increased collaboration | |
| Benefits for residents becoming more active | |
| Users having a more eventful life with more impressions and personal value | |
| Helpful for staff focusing on the right thing | |
| Basically good but needs to be simplified | |
| Nice way of working, educational, great to collaborate | |
| ELR make us do a better job, would like to continue with more users |