Literature DB >> 36001608

Barriers, enablers and acceptability of home-based care following elective total knee or hip replacement at a private hospital: A qualitative study of patient and caregiver perspectives.

Jason A Wallis1,2, Emma Gearon1,2, Justine Naylor3,4, Kirby Young5, Shay Zayontz6, Phillipa Risbey5, Ian A Harris4,7, Rachelle Buchbinder1,2, Denise O'Connor1,2.   

Abstract

BACKGROUND: To facilitate implementation of home-based care following an elective total knee or hip replacement in a private hospital, we explored patient and caregiver barriers and enablers and components of care that may increase its acceptability.
METHOD: Thirty-one patients (mean age 71 years, 77% female) and 14 caregivers (mean age 69 years, 57% female) were interviewed. All themes were developed using thematic analysis, then categorised as barriers or enablers to uptake of home-based care or acceptable components of care. Barrier and enabler themes were mapped to the Theoretical Domains Framework.
RESULTS: Eight themes emerged as barriers or enablers: feeling unsafe versus confident; caregivers' willingness to provide support and patients' unwillingness to seek help; less support and opportunity to rest; positive feelings about home over the hospital; certainty about anticipated recovery; trusting specialist advice over family and friends; length of hospital stay; paying for health insurance. Five themes emerged as acceptable components: home visits prior to discharge; specific information about recovery at home; one-to-one physiotherapy and occupational therapy perceived as first-line care; medical, nursing and a 24/7 direct-line perceived as second-line care for complications; no one-size-fits-all model for domestic support. Theoretical domains relating to barriers included emotion (e.g., feeling unsafe), environmental context and resources (e.g., perceived lack of physiotherapy) and beliefs about consequences (e.g., unwillingness to burden their caregiver). Theoretical domains relating to enablers included beliefs about capabilities (e.g., feeling strong), skills (e.g., practising stairs), procedural knowledge (e.g., receiving advice about early mobility) and social influences (e.g., caregivers' willingness to provide support).
CONCLUSIONS: Multiple factors, such as feeling unsafe and caregivers' willingness to provide support, may influence implementation of home-based care from the perspectives of privately insured patients and caregivers. Our findings provide insights to inform design of suitable home-based care following joint replacement in a private setting.

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Year:  2022        PMID: 36001608      PMCID: PMC9401137          DOI: 10.1371/journal.pone.0273405

Source DB:  PubMed          Journal:  PLoS One        ISSN: 1932-6203            Impact factor:   3.752


Introduction

Following acute care elective inpatient admission for total knee and hip replacements (TKRs, THRs), patients may receive either ongoing inpatient care at a rehabilitation facility/ward or non-inpatient care. Inpatient rehabilitation includes 24-hour a day nursing and medical care, daily sessions of physical and occupational therapy, and may be indicated for a minority of patients with complex conditions, the elderly, and those without social supports [1]. Utilisation of this rehabilitation pathway is common amongst elective TKR or THR recipients in Australia [2], but for the majority, non-inpatient care is suitable [3-6]. Hospital-at-home and rehabilitation-at-home facilitate earlier transition to home where patients may continue to receive one-to-one acute care (i.e., hospital-at-home) and/or rehabilitation-at-home [7, 8]. Compared to inpatient care, hospital-at-home and rehabilitation-at-home following TKRs and THRs provides similar patient outcomes including no increased risk of hospital readmission [3-7]. Hospital-at-home and rehabilitation-at-home may also provide superior patient satisfaction without increasing caregiver burden and may lead to a reduction in costs to the health service [7, 9]. In Australia, over 111,000 TKRs and THRs occur annually within two distinct healthcare sectors [10]. Public hospitals are a single-payer system with patient costs covered by the government and private hospitals form part of a multiple-payer system for insured or self-funded patients. The majority (70%) of joint replacements are performed in the private sector in Australia [11]. Despite evidence of similar outcomes, a higher proportion of patients in the private sector in Australia utilise more costly inpatient rehabilitation compared to the public sector (56% and 33% in the private sector versus 7% and 4% in the public sector for TKRs and THRs respectively) [2]. Shifting care from the inpatient setting to the home setting may raise concerns for both patients and their caregivers, especially in private settings where rates of inpatient rehabilitation are higher. It is also likely that perverse incentives exist in private settings in Australia that encourage higher uptake of inpatient rehabilitation [2]. This highlights the need to target the private sector where this problem is largest. Given rates of joint replacement are expected to substantially increase during the next decade [11], demand for inpatient rehabilitation is likely to increase, especially in the private sector in Australia. Qualitative research can provide an understanding of factors influencing implementation and acceptability of home-based care services by giving insights into people’s perceptions that cannot be achieved by other research methods [12]. Previous qualitative studies have provided some understanding of these factors within the context of different countries [13-16] but these may not be applicable to private hospital settings in Australia. One previous qualitative study exploring clinician and patient decision-making for rehabilitation following THR and TKR in private hospital settings in Australia identified patient preference for inpatient rehabilitation as a key barrier to home discharge [17]. However, this study did not use a theoretical approach to explore barriers and enablers to home-based care in the private setting. Using a theoretical framework facilitates a more thorough assessment of the factors influencing implementation and can assist in designing tailored strategies likely to achieve greater uptake of hospital-at-home and rehabilitation-at-home [18-20]. From the perspective of privately insured patients undergoing an elective TKR or THR and their caregivers in a private hospital setting, this qualitative study aimed to (i) explore barriers and enablers to implementation of home-based care, including theoretical explanations, and (ii) explore components of home-based care that may increase its acceptability for privately insured patients. In this study we used the term implementation to describe the uptake of best care, evidence-based practices into routine practice with the aim of improving patient care [21]. We used the term acceptability to reflect the extent to which people receiving a healthcare intervention consider it to be appropriate, based on anticipated or experienced cognitive and emotional responses to the intervention [22].

Materials and methods

Design

A qualitative descriptive study involving semi-structured interview questions aimed at exploring patients’ and caregivers‘ perspectives on home-based care was conducted [23, 24]. Ethics approval was obtained from the Cabrini Health Human Research Ethics Committee prior to commencement of the study (02-28-10-19). All patients and caregivers provided written, informed consent prior to their participation in the interview. The consolidated criteria for reporting qualitative research (COREQ) checklist was used for study reporting [25].

Participants

Privately insured patients with osteoarthritis who were scheduled for an elective TKR or THR between November 2019 and March 2020 at a single private institution were eligible to participate in the study. Adult caregivers who would primarily help with activities of daily living (e.g., meals preparation) during the individual’s recovery were also eligible to participate in the study. Patients and caregivers not able to speak fluent English were excluded.

Setting

This study was conducted at a large 508-bed, not-for-profit, private hospital (Cabrini Health, Melbourne, Australia) which conducts a high volume of elective orthopaedic surgery. Following surgery, acute inpatient care was typically provided for up to five days and then patients were referred to either rehabilitation-at-home, outpatient rehabilitation or inpatient rehabilitation. Within the multiple payer system, patients may be eligible for some or all services depending on their insurance coverage. At the time of study recruitment, hospital-at-home was not utilised for this patient cohort and provides an alternative option to acute inpatient care. For hospital-at-home, patients remain admitted as acute patients where they have a short acute inpatient stay (2 days) followed by daily care from a physician, nurse, and physiotherapist (all employed by the hospital) in their homes for a limited time (typically 2 to 3 days). These patients are then referred onto rehabilitation-at-home or outpatient physiotherapy following discharge from hospital-at-home. For rehabilitation-at-home, patients are discharged from acute care to the hospital service (‘Therapy in the Home’ with staff employed by the hospital) or an external private home rehabilitation service. Rehabilitation-at-home programs are provided for about 4 to 6 weeks by allied health professionals and include negotiated goals aiming to optimise the patient’s functioning and quality of life, caregiver support and education. For outpatient rehabilitation, patients may attend a facility such as a private physiotherapy practice (may include home visits) or an outpatient rehabilitation service. For inpatient rehabilitation, patients receive subacute care in the dedicated rehabilitation ward or an external hospital, and length of stay is typically about 10 days. Following inpatient rehabilitation, patients are commonly referred to outpatient rehabilitation at either the hospital outpatient facility or to an external facility.

Recruitment

We invited participation in the study at consecutive preadmission information sessions. These group-based sessions were conducted weekly at the hospital and face-to-face. A hospital-employed clinician presenter informed attending patients and caregivers about the study verbally, and provided a study flyer in patients’ information packs. If any patients and caregivers were interested in participating, they returned an expression of interest or contacted the primary investigator (JW) available at the end of each session or via phone. Interested patients and caregivers were provided with the participant information and consent forms by the primary investigator. The primary investigator explained the purpose of the research was ‘to gain an understanding of the potential obstacles, enablers and acceptability with alternative rehabilitation services to inpatient rehabilitation, such as home-based care’. At this preadmission session, patients completed the Risk Assessment and Prediction Tool (RAPT) [26]. The RAPT is a 6-item questionnaire with a 12-point scoring system used to predict a patient’s destination at discharge following acute care, with an additional open-ended question asking the patients preferred destination. The RAPT is also used to identify the need for targeted interventions (e.g., educating patients and families) to increase patient readiness and self-confidence for discharge [27]. The predictive accuracy of the score has been validated in different countries and settings with predictive accuracy around 75% in an Australian public hospital setting and 78% in a US setting [27]. Incorrect RAPT predictions mainly occur for scores between 6 to 9, the intermediate risk category that predicts discharge home with additional intervention such as rehabilitation-at-home [27]. Lower scores (< 6) are indicative of higher risk for inpatient rehabilitation [27]. To ensure a range of views were explored in this study, purposive sampling was used to include patients with their preferred discharge destination as either inpatient or home using the RAPT. We planned to recruit 30 patients undergoing TKR or THR and 15 caregivers on the basis that this would likely enable us to reach data saturation with no new themes emerging.

Data collection

The semi-structured interview guide was informed by the Theoretical Domains Framework (TDF) [19, 20]. The order of questions in the interview guide was flexible and adapted by the interviewer (e.g., ‘tell me more about that’) to fit the flow of conversation with patients and caregivers. We explored the theoretical domains considered most relevant to the uptake of home-based care [18] (S1 and S2 Tables). The interviews also explored components of care that may improve acceptability of home-based care to patients and caregivers. An understanding of which components of care (e.g., medical care), including domestic supports (e.g., transport, cleaning, meal preparation), are most important to patients and their caregivers, may also inform interventions to increase uptake of hospital-at-home and rehabilitation-at-home services by privately insured patients. The interview guide was developed by our multidisciplinary team with clinical expertise in joint replacement surgery and rehabilitation, as well as academic expertise in qualitative and implementation research to ensure it was clinically relevant and comprehensible. The same interview questions, including prompts, were used for all interviews, and field notes were taken during and after interviews. The interview guide was not pilot tested prior to data collection. Interviews were conducted face-to-face in patient’s homes or via the telephone, and conducted one-to-one or in dyads (i.e., patient with their caregiver) depending on their preferences. The interviews were conducted before or after surgery to include patients and caregivers with and without recent experience of different postoperative pathways (e.g., inpatient rehabilitation and rehabilitation-at-home). All interviews were conducted by a male postdoctoral research fellow (JW), an experienced physiotherapist (20 years) providing care at the hospital and with in-depth knowledge of the hospital services and experience in leading qualitative research, including conducting one-to-one interviews. None of the patients or caregivers were known to the interviewer. All interviews were audiotaped, transcribed verbatim by an independent transcriber, and read by the interviewer to check for accuracy of transcription. Individual transcripts were sent back to each patient and caregiver to confirm veracity, and to make any necessary changes. At interview the following patient data were collected: age, sex, body mass index, employment status, comorbid conditions, RAPT score, and previous joint replacement surgery. For patients who had already undergone joint replacement, we also collected inpatient length-of-stay (acute and rehabilitation), insurance provider, surgeon, discharge destination and any post-operative adverse events. For caregivers, we collected their age, sex, relationship to the patient and employment status.

Data analysis

NVivo 12.0 data management software was used to assist with thematic analysis [28]. Qualitative analysis of interview data commenced with a close review of each transcript by two authors, both of whom are experienced in qualitative data collection and analysis (JW, EG). Working independently, each author developed descriptive codes using an inductive approach to code the interview data. Descriptive codes were identified from five initial interviews (3 patients, 2 caregivers) followed by a discussion between the two authors to reach consensus. This method was repeated for a further five and then 10 randomly selected interviews. The remaining 19 interviews were coded by one researcher (JW). All nine authors discussed the emergent themes until a consensus on themes was reached. Subsequently, themes were categorised deductively as either barriers or enablers to implementation of home-based care, and acceptable components of home-based care. We used the concept of ‘barriers and enablers to implementation’ as the themes related to patients’ uptake of home-based care. The barrier and enabler themes were then mapped to the TDF by one author (JW) and checked by a second author (DOC). For acceptability, these themes related to how patients and caregivers considered the components of home-based care to be appropriate, based on anticipated or experienced cognitive and emotional responses to the intervention. There was no theoretical underpinning for the themes related to acceptability. All authors have knowledge that hospital-at-home and rehabilitation-at-home interventions are underutilised, yet with similar effectiveness compared to inpatient care.

Results

All interviews were undertaken between November 2019 and March 2020. Data saturation was achieved after 39 interviews (20 face-to-face, 19 via telephone) involving 31 patients and 14 caregivers. The patient response rate to participate was 26%. All patients who expressed interest participated in the interviews, except for one female patient who was ineligible due to having a partial knee replacement. Twenty interviews were conducted before surgery (13 patients, five caregivers and two pairs of patients and caregivers interviewed concurrently). Nineteen interviews were conducted one to four weeks after surgery (12 patients, 3 caregivers and four pairs of patients and caregivers interviewed concurrently). The average interview length was 27 minutes (range 15 to 45 minutes). No repeat interviews were conducted. Table 1 and S3 Table reports the characteristics of the 31 patients. Mean (SD) age was 71 (10) years, 24 patients were female, and 24 patients had caregiver assistance. Twenty patients had a planned TKR, and 11 patients had a planned THR. One patient interviewed prior to a planned TKR cancelled surgery. Twenty-nine patients had a RAPT score of six or above. Of those that had the surgery, 13 patients received inpatient rehabilitation and the remaining 17 patients received rehabilitation-at-home, and none received hospital-at-home. Eleven of the 13 patients who received inpatient rehabilitation had a RAPT score between 6 and 9, while all 17 patients who received rehabilitation-at-home had RAPT scores of 6 or above. Six out of 18 patients who had indicated a preference for inpatient rehabilitation before surgery received rehabilitation-at-home, and all had a RAPT score of 10 or above.
Table 1

Patient characteristics.

VariablesAll patients (n = 31*)Received inpatient rehabilitation (n = 13)Received rehabilitation at home (n = 17)$
Mean (SD)Mean (SD)Mean (SD)
Age, years71 (10)74 (11)68 (8)
Acute inpatient length of stay, days4.5 (1.8)4.9 (2.0)4.3 (1.5)
Inpatient rehabilitation length of stay, days12.4 (3.1)12.4 (3.1)N/A
N (%#)N (%^)N (%^)
Interviewed before surgery*15 (48)8 (53)6 (40)
Female24 (77)11 (46)13 (54)
Employed12 (39)4 (25)8 (75)
Surgery type
 TKR*20 (65)9 (45)10 (55)
 THR11 (35)4 (36)7 (64)
Previous joint replacement
 Knee8 (26)4 (50)4 (50)
 Hip2 (6)1 (50)1 (50)
Caregiver
 Living with caregiver21 (68)5 (24)16 (76)
 Caregiver assistance available*3 (10)1 (33)1 (33)
 No caregiver available7 (22)7 (100)0 (0)
RAPT score
 1–52 (6)2 (100)0 (0)
 6–918 (58)11 (61)7 (39)
 10–12*11 (35)0 (0)10 (91)
Preferred discharge destination
 Inpatient rehabilitation18 (58)12 (67)6 (33)
 Home*13 (42)1 (8)11 (85)
Orthopaedic surgeon
 Surgeon 111 (35)6 (55)5 (45)
 Surgeon 2*10 (32)3 (38)6 (75)
 Surgeon 38 (26)3 (38)5 (63)
 Surgeon 42 (6)1 (50)1 (50)

*Surgery cancelled (n = 1);

#Proportion of patients for each variable per total number of patients;

^Proportion of patients receiving either inpatient rehabilitation or rehabilitation-at-home per number of patients for each variable.

$Seven patients received Cabrini’s service, and 10 patients received an external service including Medibank-at-home (n = 3), Remedy (n = 3), unknown home service provider (n = 4); RAPT—Risk Assessment and Prediction Tool—score 1 to 5 predicts transfer to inpatient rehabilitation, score 6 to 9 predicts additional intervention to discharge directly home, score 10 to 12 predicts discharge directly home; TKR = total knee replacement; THR = total hip replacement

*Surgery cancelled (n = 1); #Proportion of patients for each variable per total number of patients; ^Proportion of patients receiving either inpatient rehabilitation or rehabilitation-at-home per number of patients for each variable. $Seven patients received Cabrini’s service, and 10 patients received an external service including Medibank-at-home (n = 3), Remedy (n = 3), unknown home service provider (n = 4); RAPT—Risk Assessment and Prediction Tool—score 1 to 5 predicts transfer to inpatient rehabilitation, score 6 to 9 predicts additional intervention to discharge directly home, score 10 to 12 predicts discharge directly home; TKR = total knee replacement; THR = total hip replacement For the 14 caregivers, mean (SD) age was 69 (12) years, 8 were female, 5 were employed and 10 were spouses or partners. Other caregivers included a sibling, daughter, friend, and paid caregiver. One caregiver interview was excluded from the qualitative analysis due to non-fluent English.

Summary of barrier and enabler themes

Eight themes that emerged as barriers and enablers of home-based care included: feeling unsafe versus confident; caregivers’ willingness to provide support and patients’ unwillingness to seek help; less support and opportunity to rest; positive feelings about home over the hospital; certainty about anticipated recovery; trusting specialist advice over family and friends; length of hospital stay; paying for health insurance. A summary of the eight themes is included below, with illustrative quotes. S4 Table shows the themes mapped to theoretical domains, with additional illustrative quotes.

Feeling unsafe versus confident

Patients who received inpatient rehabilitation expressed multiple safety concerns if they had opted for home-based care. This included concerns about mobility and personal care (e.g., fear of falling in the shower), managing household activities, managing stairs, wound care, taking medications or injections, causing damage to the new joint, and not having a live-in caregiver if something was to happen when they were alone. “I live alone, and I’ve got stairs, and until I regain strength and mobility, I would be better off in rehab, than on my own.” (Patient 2, female, 51 years, RAPT score 8, interviewed before surgery, received inpatient rehabilitation) Patients who received rehabilitation-at-home felt safe and relieved any anxiety at home by having an able caregiver who was retired or living with them, especially if the caregiver had a healthcare background and could assist in their management. Patients also felt safe if they perceived themselves (or caregiver perceived the patient) as young, fit, and not needing full-time care. Other factors that increased confidence at home included rearranging their house, having ready-made food available for their household and pets, having built up strength pre-surgery, being motivated to exercise or receiving advice that exercise was simple to perform, receiving reassurance that they could contact their surgeon if there were surgical complications, and having a trusted physiotherapist who would assist in their care. For a few patients and caregivers interviewed after surgery, having received training on crutches and stairs under supervision of the physiotherapist, and having received information about the effectiveness and safety of early walking changed their beliefs and concerns about safety with mobility. “My husband actually is a medical practitioner so that may have relieved any anxiety I might have had if I’ve gone home without having that support. I had that confidence nothing is going to go really wrong here.” (Patient 27, female, 65 years, RAPT score 12, interviewed before surgery, received rehabilitation-at-home)

Caregivers’ willingness to provide support and patients’ unwillingness to seek help

Caregivers expressed a willingness to being ‘on-call’ when they were needed, and without limits to the amount of support they would provide. “Whatever she needed, I would look after her but, I didn’t have a limit or an expectation” (Caregiver 7, female, daughter, 40 years, interviewed after surgery, patient received rehabilitation-at-home) Patients who received inpatient rehabilitation did not feel comfortable asking family for support, expressed concerns about their caregiver being unreliable, giving up their own activities and hobbies, or keeping them awake at night. A few female patients interviewed before surgery also thought it would be too taxing or unrealistic for their husbands to be performing household tasks from making beds, gardening, and cooking. “You’re putting an enormous amount of pressure on the people around you who have to support you. I don’t want to punish the people around me.” (Patient 26, male, 63 years, RAPT score 8, interviewed after surgery, received inpatient rehabilitation)

Less support and opportunity to rest

Patients who were interviewed either before or after surgery, and received inpatient rehabilitation described this setting as more ‘official’, ‘disciplined’ and ‘sensible’ representing potential barriers to home-based care. This included the perception of more intensive supervision and exercise sessions, better facilities and equipment, ‘on-tap’ medical care for careful monitoring, analgesia and managing complications. There were concerns about feasibility of receiving the same intensity of rehabilitation support with home-based care, and concerns about potential delays or absence of clinical support at home. “They probably wouldn’t supervise you that much because they’d only be here for half an hour.” (Patient 16, female, 73 years, RAPT score 7, interviewed after surgery, received inpatient rehabilitation) Some patients preferred inpatient rehabilitation to ‘receive a break’, ‘switch off’ from their usual daily lives and activities, and ‘relax’ knowing their meal would be provided, and they did not have to cook and clean, which would not be the case with home-based care. “I need a rest—I’d like to be not cooking and I just want to switch off.” (Patient 22, female, 68 years, RAPT score 9, interviewed before surgery, received inpatient rehabilitation)

Positive feelings about home over the hospital

Patients and caregivers perceived their homes in a positive way and the hospital in a negative way (even if patients preferred inpatient rehabilitation). Homes were perceived as familiar, relaxing, comfortable, allowing better sleep, more visitors, independence, control, solitude, and greater flexibility to develop their own routines. “I’d much rather be at home in my own bed.” (Patient 15, female, 68 years, RAPT score 10, interviewed before surgery, received rehabilitation-at-home) Hospital wards were perceived as noisy and busy places, akin to an ‘institution’ or a ‘prison’ that provided terrible food that did not meet their dietary requirements or cultural preferences. Hospitals had routines that made them go ‘stir crazy’, feel uptight, bored, and depressed, and provided group sessions that were the same for everyone. “I kept thinking in the first week, ‘What would I have done if I’d been there [inpatient rehabilitation]? I would have been in prison.” (Patient 31, female, 74 years, RAPT score 8, interviewed after surgery, received rehabilitation-at-home) For a few patients interviewed after surgery, a negative hospital experience changed their preference in favour of rehabilitation-at-home, and a few patients interviewed at the beginning of the Covid-19 pandemic perceived the hospital was a place where there was a risk of catching the contagious virus. “The only time I might change my mind about [rehabilitation-at-home] is if you told me corona virus, Ebola virus, was rampant through hospitals.” (Patient 26, male, 63 years, RAPT score 8, interviewed after surgery, received inpatient rehabilitation)

Certainty about anticipated recovery

Patients who preferred home-based care, perceived the home setting facilitated the ‘optimal recovery’, provided one-on-one rehabilitation attention, and psychological benefits resulting from being in their own home and from outdoor physical activity. Patients’ determination for an ‘optimal recovery’ included reaching milestones in the shortest possible time by performing their normal routines, activities, hobbies, and work. “I thought by having physio come into my home they would arrive at a set time, rather than being in a group and not having that one-on-one attention” (Patient 11, female, 65 years, RAPT score 7, interviewed after surgery, received rehabilitation-at-home) “I really want to be on my feet and doing what I should do in as short a time as possible.” (Patient 10, female, 73 years, RAPT score 9, interviewed after surgery, received rehabilitation-at-home) Patients and caregivers who had previously had joint replacement surgery preferred the same rehabilitation setting (and sometimes the same clinician). This gave them confidence in the knowledge that this service provided a safe and effective recovery. Some patients and caregivers who had not previously had joint replacement surgery were uncertain with post-operative mobility and in a ‘totally new world’ by not knowing if they would be well enough to cope at home. Instead, they preferred to wait and see how they recovered after surgery before making a choice about rehabilitation setting. “The outcome’s unknown at the moment for me. I don’t know what he will do, how my leg might be. Everything might go haywire.” (Patient 25, female, 73 years, RAPT score 7, interviewed before surgery, received inpatient rehabilitation)

Trusting specialist advice over family and friends

Receiving a recommendation from a specialist or general practitioner about their discharge destination was perceived as being helpful as doctors were experts and knew about their health circumstances. For some patients this allowed them to be open-minded and their doctor’s advice influenced their preferred rehabilitation setting. Receiving advice from friends and family about their rehabilitation destination, including receiving “convincing lectures” was not always trusted by patients. “I’m still open to the fact that if I’m having difficulty post-surgery and they suggest that I go to rehab [“Oh, he’ll go” (Caregiver 11, female, wife, 55 years)] “Then I’ll go” (Patient 20, male, 60 years, RAPT score 12, interviewed together before surgery, received rehabilitation-at home) “Whilst people are very free with advice and well-meaning, that’s what happened historically and is useless information today.” (Patient 3, male, 70 years, RAPT score 11, interviewed before surgery, received rehabilitation-at-home)

Length of hospital stay

For some patients, a short acute inpatient length of stay (i.e., 3 days) was perceived to be too short, acting as a potential barrier to hospital-at-home. A longer acute hospital stay (i.e., 5 days) or the flexibility to extend their stay was perceived to enable sufficient time to recover from surgery and acted as a potential enabler for rehabilitation-at-home. In contrast, some patients preferred the shortest possible hospital stay, acting as potential enabler for hospital-at-home. The usual length of stay in inpatient rehabilitation (i.e., 10 days) also represented a potential enabler for rehabilitation-at-home. “When I learnt that I would have had to stay there [inpatient rehabilitation] seven days or ten and I didn’t want to do that. I would have been happy to go for three [days], but not for seven or ten.” (Patient 31, female, 74 years, RAPT score 8, interviewed after surgery, received rehabilitation-at-home)

Paying for health insurance

A few patients and caregivers expected their health insurer to cover their preferred setting, were ‘not impressed’ that home services depended on their level of insurance. A few patients also felt their insurance payments warranted inpatient rehabilitation, representing a potential barrier to home-based care. “He has private insurance and all covered. Why to send him home?” (Caregiver 3, female, paid caregiver, 55 years, interviewed before surgery, patient received inpatient rehabilitation) A few patients and caregivers expressed a willingness to pay for rehabilitation-at-home and expressed satisfaction with hospital staff who advocated on their behalf for the insurance company to fund services at home serving as potential enablers for home-based care. “We’re in a position where we’re fortunate where we can pay [for home-based care] now.” (Caregiver 5, female, sibling, 73 years, interviewed before surgery, patient received rehabilitation-at-home)

Summary of acceptability themes

Five themes that emerged as acceptable components of home-based care included: home visits prior to discharge; specific information about recovery at home; one-to-one physiotherapy and occupational therapy perceived as first-line care; medical, nursing and a 24/7 direct-line perceived as second-line care for complications; no one size fits all model for domestic support. A summary of the five themes and illustrative quotes is included below.

Home visits prior to discharge

Some patients and caregivers expressed a desire for a home visit by a physiotherapist or occupational therapist prior to discharge for reassurance their home was a suitable and safe environment for rehabilitation. This included advice on safe access around their home (especially kitchens and bathrooms), to assess their need for equipment (e.g., suitable sized shower stools), and to identify suitable places to perform their exercise routines (e.g., walking programs). “I was surprised somebody didn’t come to check out the house prior to coming home to make sure it’s suitable.” (Patient 17, female, 64 years, RAPT score 21, interviewed after surgery, received rehabilitation-at-home)

Specific information about recovery at home

Patients and caregivers expressed the importance of specific information about recovery at home (e.g., expected recovery of pain and activity levels each week; extent to which the caregiver would need to look after the patient; rehabilitation-at-home schedules). Some patients and caregivers also wanted more information about ‘strong’ analgesics for managing pain overnight when the pain was perceived to be worse, and more practical instructions for self-administering injections to prevent deep vein thrombosis. “You need some more information about the issues that you might come across at home.” (Patient 24, female, 72 years, RAPT score 8, interviewed after surgery, received rehabilitation-at-home) “So, people can know what’s normal and put people’s minds at ease” (Caregiver 7, female, 40 years, daughter, interviewed after surgery, patient received rehabilitation-at-home)

One-to-one physiotherapy and occupational therapy perceived as first-line care

Patients and caregivers desired at least two home visits from clinicians in the first week following home discharge, with a higher number of sessions desired if patients were living alone and without caregiver support. For subsequent weeks, it was acceptable to reduce or tailor the number of regular visits depending on the patient’s progress. Important components of care included provision of information and advice in response to patient and caregiver questions, observing how patients interacted in their home setting, and ensuring exercise performance was ‘absolutely right’, ‘customised’, and diverse with a range of exercises that were progressed incrementally. One-to-one sessions were perceived to provide support to manage individual difficulties (e.g., pain levels), individual challenges (e.g., exercise performance), and to improve confidence to walk at home, as well as improve their mood, and alleviate safety fears about returning home. “You would want somebody [physio] maybe two or three times a week in the first week and then dropped it down if they’re coping well.” (Patient 15, female, 68 years, RAPT score 10, interviewed before surgery, received rehabilitation-at-home)” “Seeing how the patient was interacting with their home environment, with the animals, with showering, kitchen, all of those sorts of things which they wouldn’t necessarily see [in hospital]” (Caregiver 9, female, friend, 75 years, interviewed after surgery, patient received inpatient rehabilitation)

Medical, nursing and a 24/7 direct-line perceived as second-line care in the case of complications

Patients believed routine home visits by doctors and/or nurses were not essential, providing there was an option for a doctor and/or nurse visit if required. This included a 24-hour, 7 days-a-week direct line for medical advice and to arrange a home visit if required. This option of a doctor and/or nurse visit was perceived as important in the immediate rehabilitation period given the patients and caregivers’ perception that it would be difficult and costly to attend a private emergency department. This was also perceived to alleviate concerns about pain management, wound care, blood clot prevention and managing potential medical complications such as adverse reactions to medications. Some patients and caregivers believed it was acceptable if medical support was provided by the patient’s general practitioner, a doctor that was part of the home service or a nurse practitioner. “You don’t really need a doctor unless you are in trouble.” (Patient 2, female, 51 years, RAPT score 8, interviewed before surgery, received inpatient rehabilitation) “At three o’clock in the morning, [patient] was screaming in pain and I give her Palexia or something and about an hour later, she’s still screaming. What do I do? A direct line to the doctor to tell me what to do” (Caregiver 13, male, spouse, 75 years, interviewed after surgery, patient received inpatient rehabilitation)

No one size fits all model for domestic support

Acceptable components of domestic support included a balanced healthy main meal (with multicultural options), and a cleaner for ‘hard’ chores such as vacuuming, laundry, cleaning the bathroom and changing the bedding. For patients without a caregiver and tentative about getting in the shower and falling, personal care support was desired to ensure they were safe and stable to get dried and dressed. There was not a ‘one size fits all model’ due to different needs and depending on recovery. An option to be able to apply for, or modify, the domestic support was also important, providing there were no out-of-pocket costs. “You can’t just make one size fits them all you know” (Patient 9, female, 68 years, RAPT score 9, interviewed after surgery, received rehabilitation-at-home) “The heavy cleaning, the vacuuming, washing the floors, toilets because you can’t do it” (Patient 24, female, 72 years, RAPT score 8, interviewed after surgery, received inpatient rehabilitation) For patients with a preference for inpatient rehabilitation and without a caregiver, domestic support was perceived as ‘unrealistic’ because it did not replace a caregiver who would perform regular tasks throughout the day and did not address their specific barriers to care at home. For some patients with a preference for rehabilitation-at-home, domestic support was perceived not to be required because of existing services (e.g., cleaners, online food, and shopping services), having food prepared in the freezer, and their caregiver’s proficiency to assist the patient at home (e.g., cooking and driving). “Not for me—I have got a cleaner who comes every two weeks and [Husband] does everything” (Patient 12, female, 67 years, RAPT score 10, interviewed after surgery, received rehabilitation-at-home)

Discussion

Fears around safety (e.g., being home alone), perceived lack of rehabilitation support and opportunity to rest at home, and patients’ unwillingness to seek help from caregivers emerged as major barriers to uptake of home-based care as perceived by privately insured THR and TKR patients. These barriers were commonly perceived by patients who received inpatient rehabilitation. Theoretical domains relating to these barriers included ‘emotion’, ‘environmental context and resources’ and ‘beliefs about consequences’. A live-in caregiver, positive perceptions of their home (e.g., freedoms) and fitness, caregiver willingness to support the patient’s choice, and advice from specialists emerged as major enablers to uptake of home-based care. Theoretical domains relating to these enablers included ‘beliefs about capabilities’, ‘skills’, ‘procedural knowledge’ and ‘social influences.’ The key barrier and enabler themes identified in our study converged with themes identified in qualitative studies conducted in multiple countries, hospital settings (public and private) and with different aims [13-17]. For example, a perceived lack of caregiver support and lack of confidence to cope with daily activities emerged as a barrier for home discharge in a study that examined patients’ choice of discharge destination in Singapore [16]. ‘Paying for health insurance’ that emerged as a barrier to home-based care in our study is consistent with findings from a previous Australian study where patients’ perceived sense of entitlement influenced the discharge destination towards inpatient rehabilitation [17]. However, most patients and caregivers in our study did not think financial factors influenced their preferred rehabilitation setting. It is possible that they were more focussed on their safety and the ‘optimal recovery’ than financial considerations. It is also possible patients and caregivers were not willing to divulge to the interviewer that financial factors influenced their preferred care. Another unique finding in our study was that the patients’ preferred choice of care setting may be altered by external threats. This included the perceived increased risk with inpatient care as a direct result of the Covid-19 pandemic. A recent study conducted in the same hospital setting observed reductions in inpatient rehabilitation following THR and TKR that appeared to indicate a change in patient preference as a direct result of the pandemic [29]. Another unique finding was caregivers’ willingness to support the patient’s choice for rehabilitation-at-home or inpatient rehabilitation, and to provide support to patients during rehabilitation-at-home. This contrasted with patients’ unwillingness to seek help from caregivers in our study. A previous qualitative study that examined the experiences of live-in caregivers (spouses and offspring) in looking after patients during hospital-at-home following a joint replacement has shown that caregivers may provide a small degree of assistance with hygiene, dressing, mobility and overall responsibility [15]. A review of hospital-of-home has also shown a low level of burden experienced by caregivers after joint replacement [7]. Our findings suggest that clinicians should encourage their patients to ask family or friends to be their caregiver in the early days at home and this may be an important enabler to home-based care following THR or TKR. As well as providing assurance to the patient about the overall low level of burden [7] and small degree of assistance their caregivers may need to provide [15]. Patients and caregivers in our study had a high desire for home physiotherapy including information about recovery at home. Domestic support was desired for patients without caregiver support, and medical support was deemed needed in the case of complications. Hospital-at-home and rehabilitation-at-home services worldwide primarily involve nursing and allied health services, with care sometimes involving physicians and home help for various conditions including TKRs and THRs [7]. The increased desire for home physiotherapy in the immediate rehabilitation period identified in our study may have been because patients were concerned with the ‘optimum recovery’ of their joints and returning to their normal activities as quickly and safely as possible. The need for home physiotherapy and to obtain knowledge about recovery at home was also found in previous qualitative studies exploring the experiences with rehabilitation-at-home after THR in China [13]. Domestic support may have been a lower priority in our setting because most patients interviewed in our study had caregivers and they were an affluent population. In view of these findings, hospital-at-home and rehabilitation-at-home services need to consider an optimal balance between medical, allied health and domestic support. Our findings from a single centre private hospital give valuable insight for health systems and providers designing suitable home programs that may be applicable to other Australian private hospitals with similar patient and clinical characteristics. We have also provided a thick description of the patients and caregivers, study context, and research process so that readers can judge if our findings from a private institution are transferable to their setting. The role of the policy maker is to ensure financing, guidelines and objectives for home care services reduce demand for inpatient hospital beds, reduce costs and optimise health outcomes. The role of the clinician is to provide patients and caregivers with the knowledge, skills, resources, and confidence they require to engage in early discharge, hospital-at-home and rehabilitation-at-home. An understanding of our study findings may help to illuminate factors (i.e., barriers and enablers) influencing uptake of home-based care and provide health systems and clinicians with a framework for successful implementation. Our findings also give valuable insight into designing implementation strategies likely to improve uptake of rehabilitation-at-home or hospital-at-home in the private hospital setting. A 2018 Cochrane review containing 18 randomised controlled trials showed patient education and information interventions (e.g., patient information materials) probably improves recommended healthcare delivery by 11% and 12% respectively, compared to usual care [30]. However, none of these studies were targeting uptake of home-based models of care. Patient education and information interventions could target important theoretical domains (e.g., emotion), and address identified barriers (e.g., dispel concerns about home safety), and enhance the enablers (e.g., trusted specialists communicating the evidence for recovery) of home-based care. These interventions could be presented using various modes of delivery (e.g., print materials, videos, pre-operative education with knowledgeable health professionals). They could be targeted to specific patients who prefer inpatient rehabilitation, as indicated by a lower RAPT score (i.e., 6 to 9), those living without a caregiver and retired. Targeting healthcare staff to address patients’ choice of care and sense of entitlement may also be warranted based on qualitative studies conducted in private settings in Australia [17]. Other barriers related to having adequate caregiver support, or home-based care not being perceived as equivalent support to inpatient care may be more difficult to address. Therefore, not all patients may be willing to receive rehabilitation-at-home and hospital-at-home programs in private hospital settings. Strengths of this study included the purposive sampling of patients and caregivers with preferences for care at home and in hospital ensuring we captured these differing perspectives. We also explored theoretical explanations for low uptake of home-based care that can be used to design implementation interventions aimed at improving uptake in private hospital settings. The response rate for patient participation may be underestimated as we did not know if all patients attending the preadmission sessions were eligible, and the caregiver response rate was not calculated. The interview guide did not explicitly differentiate between hospital-at home and rehabilitation-at-home, the perspective from patients having received hospital-at-home and their caregivers are missing and the interview guide was not pilot tested. As we did not include questions for every TDF domain in the interview guide, only those considered most relevant, we cannot exclude the possibility that factors associated with these domains do not exist. Also, our study sample was limited to patients and their caregivers from a private setting, and we did not explore manager, clinician, or policy level perspectives. Views of administrators across multiple private hospitals and whether they see home-based care as beneficial or a lost opportunity to increase revenue is an area of further research. A risk of social desirability bias exists as patients may have not wanted to divulge to the interviewer all factors relevant for the preferred care, and caregivers could have given the impression that they were supportive of the patient’s choice.

Conclusions

Multiple factors emerged, such as feeling unsafe and caregivers’ willingness to provide support, that influence implementation of home-based care from the perspectives of privately insured patients and caregivers. Our findings give valuable insight for health systems and providers designing suitable home programs. Future research is needed to investigate strategies that dispel fears around safety and promote the benefits of home-based care for improving uptake of these services for patients undergoing a TKR or THR in a private hospital setting.

Patient interview schedule.

(DOCX) Click here for additional data file.

Caregiver interview schedule.

(DOCX) Click here for additional data file.

Additional patient characteristics.

*Surgery cancelled (n = 1); #Proportion of patients for each variable per total number of patients; ^Proportion of patients receiving either inpatient rehabilitation or rehabilitation-at-home per number of patients for each variable. (DOCX) Click here for additional data file.

Barriers and enablers of home-based care, with themes mapped to the Theoretical Domains Framework and illustrative quotes.

P—patient; C—caregiver; F—female; M—male; B—interviewed before surgery; A—interviewed after surgery. (DOCX) Click here for additional data file.

Consolidated criteria for reporting qualitative research (COREQ) checklist.

(PDF) Click here for additional data file. 17 Jan 2022
PONE-D-21-32322
Barriers, enablers and acceptability of hospital-at-home and rehabilitation-at-home following elective total knee or hip replacement at a private hospital: A qualitative study of patient and caregiver perspectives
PLOS ONE Dear Dr. Wallis, Thank you for submitting your manuscript to PLOS ONE. After careful consideration, we feel that it has merit but does not fully meet PLOS ONE’s publication criteria as it currently stands. Therefore, we invite you to submit a revised version of the manuscript that addresses the points raised during the review process. Please submit your revised manuscript by Mar 03 2022 11:59PM. If you will need more time than this to complete your revisions, please reply to this message or contact the journal office at plosone@plos.org. When you're ready to submit your revision, log on to https://www.editorialmanager.com/pone/ and select the 'Submissions Needing Revision' folder to locate your manuscript file. Please include the following items when submitting your revised manuscript:
A rebuttal letter that responds to each point raised by the academic editor and reviewer(s). You should upload this letter as a separate file labeled 'Response to Reviewers'. A marked-up copy of your manuscript that highlights changes made to the original version. You should upload this as a separate file labeled 'Revised Manuscript with Track Changes'. An unmarked version of your revised paper without tracked changes. You should upload this as a separate file labeled 'Manuscript'. If you would like to make changes to your financial disclosure, please include your updated statement in your cover letter. Guidelines for resubmitting your figure files are available below the reviewer comments at the end of this letter. If applicable, we recommend that you deposit your laboratory protocols in protocols.io to enhance the reproducibility of your results. Protocols.io assigns your protocol its own identifier (DOI) so that it can be cited independently in the future. For instructions see: https://journals.plos.org/plosone/s/submission-guidelines#loc-laboratory-protocols. Additionally, PLOS ONE offers an option for publishing peer-reviewed Lab Protocol articles, which describe protocols hosted on protocols.io. Read more information on sharing protocols at https://plos.org/protocols?utm_medium=editorial-email&utm_source=authorletters&utm_campaign=protocols. We look forward to receiving your revised manuscript. Kind regards, Carsten Bogh Juhl, PhD Academic Editor PLOS ONE Journal Requirements: When submitting your revision, we need you to address these additional requirements. 1. Please ensure that your manuscript meets PLOS ONE's style requirements, including those for file naming. The PLOS ONE style templates can be found at https://journals.plos.org/plosone/s/file?id=wjVg/PLOSOne_formatting_sample_main_body.pdf and https://journals.plos.org/plosone/s/file?id=ba62/PLOSOne_formatting_sample_title_authors_affiliations.pdf Additional Editor Comments (if provided): Dear Author The reviewer have found your study interesting - but have some important suggestions - especially clarifying the method and especially align the conclusion with the available data as these only represent a selected group of patients Best Academic editor Carsten Juhl [Note: HTML markup is below. Please do not edit.] Reviewers' comments: Reviewer's Responses to Questions Comments to the Author 1. Is the manuscript technically sound, and do the data support the conclusions? The manuscript must describe a technically sound piece of scientific research with data that supports the conclusions. Experiments must have been conducted rigorously, with appropriate controls, replication, and sample sizes. The conclusions must be drawn appropriately based on the data presented. Reviewer #1: Yes Reviewer #2: Partly Reviewer #3: Partly Reviewer #4: Yes ********** 2. Has the statistical analysis been performed appropriately and rigorously? Reviewer #1: N/A Reviewer #2: Yes Reviewer #3: N/A Reviewer #4: N/A ********** 3. Have the authors made all data underlying the findings in their manuscript fully available? The PLOS Data policy requires authors to make all data underlying the findings described in their manuscript fully available without restriction, with rare exception (please refer to the Data Availability Statement in the manuscript PDF file). The data should be provided as part of the manuscript or its supporting information, or deposited to a public repository. For example, in addition to summary statistics, the data points behind means, medians and variance measures should be available. If there are restrictions on publicly sharing data—e.g. participant privacy or use of data from a third party—those must be specified. Reviewer #1: No Reviewer #2: No Reviewer #3: Yes Reviewer #4: No ********** 4. Is the manuscript presented in an intelligible fashion and written in standard English? PLOS ONE does not copyedit accepted manuscripts, so the language in submitted articles must be clear, correct, and unambiguous. Any typographical or grammatical errors should be corrected at revision, so please note any specific errors here. Reviewer #1: Yes Reviewer #2: Yes Reviewer #3: No Reviewer #4: Yes ********** 5. Review Comments to the Author Please use the space provided to explain your answers to the questions above. You may also include additional comments for the author, including concerns about dual publication, research ethics, or publication ethics. (Please upload your review as an attachment if it exceeds 20,000 characters) Reviewer #1: This paper identified barriers and enablers of hospital-at-home and rehabilitation-at-home in privately insured patients receiving total knee and hip replacement. Furthermore, components of care that may increase the acceptability of hospital-at-home and rehabilitation-at-home were identified. Overall, this study provides an interesting insight into barriers, enablers and acceptability of hospital-at-home and rehabilitation-at-home. The authors used interviews for exploring privately insured patients’ and caregivers’ perspectives and used triangulation in both the data collection and in the analysis. The authors presented the findings in a thick description and related the findings to findings in other studies in the discussion. However, some concerns way be raised related primarily to the introduction and the method section. These concerns must be addressed to increase the credibility of this study. • The authors mentioned that hospital-at-home and rehabilitation-at-home facilitates earlier transition to home and provides similar results compared to inpatient care. Furthermore, the demand for inpatient rehabilitation in the private sector will increase, but it is mentioned in the discussion, that it is unknown whether the administrators of private hospitals sees hospital-at-home and rehabilitation-at-home as beneficial. Therefore, the reason for carrying out this qualitative study in a private setting can be mentioned more explicitly. • The authors used the Consolidated criteria for reporting qualitative studies (COREQ) checklist for their reporting (line 101-102) which is a relevant checklist for qualitative studies. Several points related to the research team and reflexivity are not fully described in the paper. • The authors used interviews for exploring patients’ and caregivers’ perspectives. On this basis, I assume, that a phenomenological approach was taken, however, the approach is not described in the paper. Please identify the approach adopted to this qualitative study. • The authors obtained study approval and the informants gave signed informed content prior to commencement of the study. It is recommended to add this information to the manuscript. • In the selection process of informants purposive sampling was used (line 123-124) – a relevant approach for achieving an insight into the phenomenon of interest. The objective is to explore barriers and enablers of both rehabilitation-at-home and hospital-at-home (line 92-95), but only the selection criteria: inpatient rehabilitation and rehabilitation-at-home were used (line 123-124). As reported in the results none of the informants received hospital-at-home, thus the perspective from patients receiving hospital-at-home and their caregivers are missing. • The interview guide was guided by the Theoretical Domains Framework (line 129-131). Using a framework facilitates a thorough assessment of a phenomenon of interest in this case barriers and enablers of hospital-at-home and rehabilitation-at-home. Not all domains of the Theoretical Domains Framework were covered by questions in the interview guide (Table S1, S2) and a reason for this is not described in paper. Furthermore, it is recommended and usual practice to pilot test the interview guide. It is left unclear whether the interview guide has been pilot tested in this study (line 129-138). It would be useful to know have more information about this. • The patients were invited to participate in the study at the preadmission information session (line 122-123), but in what way they were invited and how many patients refused to participate is unclear. • The interviews were undertaken between November 2019 and March 2020 (line 182), but please describe the setting in which the interviews took place. • The discussion summarizes the finding and mention influential theoretical domains for the barriers (discussion, line 5-7). It is also suggested to mention the influential theoretical domains after summarizing the enablers (discussion, line 7-10). • In the fourth section of the discussion the authors wrote: “Patients and caregivers in our study had a low desire for medical and domestic support at home and a greater desire for home physiotherapy….”. The last four quotes in Table 3 indicates a desire for domestic support at home under the theme “No one size fits all model for domestic support” to increase the acceptance of hospital-at-home and rehabilitation-at-home indicates a bit of a contrast. It is suggested to rephrase. • The authors aimed at exploring the perspectives of privately insured patients at a private hospital and only privately insured patients participated in this study. It is recommended to mention in the conclusion (page 29) that these are privately insured patients. • Some minor suggestions for the tables: - Table 1 – Caption: please chose either patient or participant. - Table 1 – Surgery type: 20 patients having total knee replacement were interviewed. Nine patients received inpatient rehabilitation and 10 patients received rehabilitation-at-home (= 19 patients). I presume, that the * should be placed at TKR and not at “Interviewed before surgery”. - Table 1 – Please provide an explanation for the abbreviations TKR and THR. - Table 2 – I have a bit of a hard time seeing which quotes belong to which theoretical domain in a few sections for example in the section “Feeling unsafe” - can it be made more manageable? - Table 2 – The first section includes quotes from patient receiving inpatient rehabilitation. But in what way can the patient who cancelled surgery (last quote) be an inpatient? Suggest doing it as the authors did in the section: “Less support and opportunities to rest” (last quote). Reviewer #2: Thanks for the opportunity to read your article and make a review. This article addresses a topical issue in terms of patients and caregivers’ perspectives on rehabilitation-at-home and provides information about barriers and enablers for this intervention. It is important to consider participants’ views on the intervention, as acceptability may undermine the uptake and thus the implementation. Strengths of this study includes the qualitative approach that is underutilized, the inclusion of both patients and caregivers as well as use of TDF. The manuscript is well written and the presentation comprehensive and detailed, but there are some points that should be clarified. The authors should clarify definitions and differences between the different interventions and concepts around which the article circulates. This will help to provide an understanding of the authors’ preconceptions as well as clarify the difference between a statement classified as an enabler and a statement classified as a theme about an acceptable component. In the introduction inpatient rehabilitation is described, but rehabilitation-at-home and hospital-at-home is not elaborated to the same extent although the components are central to the study. Knowing the components of the interventions and the extent to which patients and caregivers’ have knowledge of the interventions and their content, is important to assess the interviewees statements and for assessing the relevance to their own practice for the international reader. The components of the interventions may be described briefly in the section about setting and be detailed in an additional file. The authors should elaborate and/or discuss hospital-at-home, as it is unclear whether hospital-at-home is studied, since the intervention is sparsely described, the interview guides (S1 and 2) use the term “home-based care”, it is unclear if the patients have knowledge about the intervention and no patients receive hospital-at-home (which is reflected in tables 1 and S3 and furthermore the purposive sampling doesn’t include hospital-at-home participants (p.6, l 122-124)). The authors may consider adding and discuss information on whether hospital-at-home and rehabilitation-at-home are interventions that are offered to all patients undergoing surgery in the private / public sector in Australia (or the private hospital where the study takes place). The second aim of the study concerns patients’ experience of components influencing the acceptability of the rehabilitation-at-home and hospital-at-home. The authors may consider to accurately describe acceptability and components influencing acceptability – what is the rationale for selection of the specific components (e.g., information and support by health professionals that are components asked about in the interview guide) and is it theoretical underpinned (data collection p. 7, l 133-138)? Implementation is used inconsistently in literature and across disciplines, thus an elaboration in this study is requested especially as implementation is a part of the conclusion. It is uncertain whether implementation is seen primarily as uptake to the interventions, as this is the primary argument for the purpose of the study. Does it e.g., primarily focus on the mechanism through which delivery is achieved. The authors should clarify why the use of data from RAPT is important in this qualitative study – do the authors expect it to have an impact on patients’ and/or caregivers’ statements or the interpretation of these? The authors might include a discussion if the RAPT results were as expected and whether it has had an impact on the statements / interpretations (P. 7, l. 147- and p. 9, l. 193-). Title and conclusion: The title and conclusion are appropriate if the above comments on acceptability and hospital-at-home can be substantiated in the article. Minor details to consider: P. 6, l. 107-: Consider using the term caregivers to clarify the transition from patient to caregiver P. 8, l.155-166: Missing source at last line. P. 8, l. 158: Body mass index is part of table1 and not mentioned in results or discussion – consider relevance or moving to S3. P. 8, l. 175: “All authors” – is it a reference to all 9 authors? P. 14, table 2, first quote under the heading “Intentions”: The patient uses the term “the only time I might change my mind about RAH is if you told me corona virus…” – are those the words that support the result that “the hospital was a place where there was a risk of catching the contagious virus”? P. 25: In the first lines of the discussion “TKA or TKA” probably should be corrected to “THA and TKA” Reviewer #3: A language revision is recommended throughout the manuscript. Please check grammar and spelling - there are several typos in the manuscript. E.g. a typo in the second line in the discussion section, “TKR or TKR” one should be THR. Reviewer #4: Comments to the authors: Overall, the manuscript is well-written with detailed information about methodological approach and considerations. Please see the comment below regarding each manuscript section. Abstract: • The abstract clearly states the rationale for conducting the study, the aim, results and conclusion in a precise way that inclines me to further reading. Introduction: • The induction gives a clear description of the patient population, health care setting and potential benefits of at-home rehabilitation. • The aim of the study is clear, however, it would be informative to include the authors hypothesis, as this will strengthen the transferability of the study. Methods: • The sampling strategy seems appropriate according to the study aim. • Data collection; there is a need for additional information regarding data collection, including the interview setting, i.e. face-to-face, hospital setting, at home, telephone? Was the setting the same for all participants, or was is based on the participants’ preferences? • It was nice to read that validations of transcripts were made by the participants. • The interviewer’s role related to the participants was not stated. Was the interviewer known to the participants before the interview? This is crucial due to risk of bias, pre-understanding, and influence during the research process. Should also be included in the discussion section. • Line 129: It is stated that the interviews are semi-structured. The supplementary material show that the interview guide is quite comprehensive and includes very specific questions. Suggest describing the interview procedure more in detail related to use of the interview guide, and/or referring to the interviews as “structured”? Results: • To increase transferability of the study, please provide a description of the recruitment process (i.e. description of number of patients invited, declined - and reasons for declining). • The sample size seems to be realistic and sufficient to answer the research question. The sample consisted of a variability regarding sex, employment status, surgery type and caregiver status. • The result section is very comprehensive. The use of both Tables (Table 2 + 3) and text description leads to many repetitions. It is recommended to merge the sections, and to use citations in the texts, as this will lead to a more coherent results section. • Line: 192 + 193. Suggest reporting only the numbers or the percentages. • Table 2: Under theme “Patient unwillingness to seek help”. The citation “ I have a husband at home but he’s a busy person, I mean he will in around but the idea of him doing all that I do is unrealistic” does not really seem to support the theme about being unwilling to seek help. Discussion: • The discussion includes a comprehensive summary of the findings, which is unnecessarily long. Instead more critical discussion of the findings related to existing evidence is needed. • Please provide discussion related to the transferability of the results, including application of results from a single-center private institution. ********** 6. PLOS authors have the option to publish the peer review history of their article (what does this mean?). If published, this will include your full peer review and any attached files. If you choose “no”, your identity will remain anonymous but your review may still be made public. Do you want your identity to be public for this peer review? For information about this choice, including consent withdrawal, please see our Privacy Policy. Reviewer #1: No Reviewer #2: Yes: Tenna Askjaer Reviewer #3: No Reviewer #4: No [NOTE: If reviewer comments were submitted as an attachment file, they will be attached to this email and accessible via the submission site. Please log into your account, locate the manuscript record, and check for the action link "View Attachments". If this link does not appear, there are no attachment files.] While revising your submission, please upload your figure files to the Preflight Analysis and Conversion Engine (PACE) digital diagnostic tool, https://pacev2.apexcovantage.com/. PACE helps ensure that figures meet PLOS requirements. To use PACE, you must first register as a user. Registration is free. Then, login and navigate to the UPLOAD tab, where you will find detailed instructions on how to use the tool. If you encounter any issues or have any questions when using PACE, please email PLOS at figures@plos.org. Please note that Supporting Information files do not need this step. Submitted filename: To the editor.docx Click here for additional data file. 28 Apr 2022 Due to the length of the response and formatting, please refer to the attached document 'Response to reviewers'. Submitted filename: Response to Reviewers (1).docx Click here for additional data file. 9 Jun 2022
PONE-D-21-32322R1
Barriers, enablers and acceptability of home-based care following elective total knee or hip replacement at a private hospital: A qualitative study of patient and caregiver perspectives
PLOS ONE Dear Dr. Jason Wallis Thank you for submitting your manuscript to PLOS ONE. After careful consideration, we feel that it has merit but does not fully meet PLOS ONE’s publication criteria as it currently stands. Therefore, we invite you to submit a revised version of the manuscript that addresses the points raised during the review process. Please submit your revised manuscript by Jul 24 2022 11:59PM. If you will need more time than this to complete your revisions, please reply to this message or contact the journal office at plosone@plos.org. When you're ready to submit your revision, log on to https://www.editorialmanager.com/pone/ and select the 'Submissions Needing Revision' folder to locate your manuscript file. Please include the following items when submitting your revised manuscript:
If you would like to make changes to your financial disclosure, please include your updated statement in your cover letter. Guidelines for resubmitting your figure files are available below the reviewer comments at the end of this letter. A rebuttal letter that responds to each point raised by the academic editor and reviewer(s). You should upload this letter as a separate file labeled 'Response to Reviewers'. A marked-up copy of your manuscript that highlights changes made to the original version. You should upload this as a separate file labeled 'Revised Manuscript with Track Changes'. An unmarked version of your revised paper without tracked changes. You should upload this as a separate file labeled 'Manuscript'. If applicable, we recommend that you deposit your laboratory protocols in protocols.io to enhance the reproducibility of your results. Protocols.io assigns your protocol its own identifier (DOI) so that it can be cited independently in the future. For instructions see: https://journals.plos.org/plosone/s/submission-guidelines#loc-laboratory-protocols. Additionally, PLOS ONE offers an option for publishing peer-reviewed Lab Protocol articles, which describe protocols hosted on protocols.io. Read more information on sharing protocols at https://plos.org/protocols?utm_medium=editorial-email&utm_source=authorletters&utm_campaign=protocols. We look forward to receiving your revised manuscript. Kind regards, Carsten Bogh Juhl, PhD Academic Editor PLOS ONE Journal Requirements: Please review your reference list to ensure that it is complete and correct. If you have cited papers that have been retracted, please include the rationale for doing so in the manuscript text, or remove these references and replace them with relevant current references. Any changes to the reference list should be mentioned in the rebuttal letter that accompanies your revised manuscript. If you need to cite a retracted article, indicate the article’s retracted status in the References list and also include a citation and full reference for the retraction notice. [Note: HTML markup is below. Please do not edit.] Reviewers' comments: Reviewer's Responses to Questions Comments to the Author 1. If the authors have adequately addressed your comments raised in a previous round of review and you feel that this manuscript is now acceptable for publication, you may indicate that here to bypass the “Comments to the Author” section, enter your conflict of interest statement in the “Confidential to Editor” section, and submit your "Accept" recommendation. Reviewer #1: All comments have been addressed Reviewer #2: (No Response) Reviewer #3: All comments have been addressed Reviewer #4: All comments have been addressed ********** 2. Is the manuscript technically sound, and do the data support the conclusions? The manuscript must describe a technically sound piece of scientific research with data that supports the conclusions. Experiments must have been conducted rigorously, with appropriate controls, replication, and sample sizes. The conclusions must be drawn appropriately based on the data presented. Reviewer #1: Yes Reviewer #2: Yes Reviewer #3: Yes Reviewer #4: Yes ********** 3. Has the statistical analysis been performed appropriately and rigorously? Reviewer #1: N/A Reviewer #2: N/A Reviewer #3: N/A Reviewer #4: N/A ********** 4. Have the authors made all data underlying the findings in their manuscript fully available? The PLOS Data policy requires authors to make all data underlying the findings described in their manuscript fully available without restriction, with rare exception (please refer to the Data Availability Statement in the manuscript PDF file). The data should be provided as part of the manuscript or its supporting information, or deposited to a public repository. For example, in addition to summary statistics, the data points behind means, medians and variance measures should be available. If there are restrictions on publicly sharing data—e.g. participant privacy or use of data from a third party—those must be specified. Reviewer #1: (No Response) Reviewer #2: No Reviewer #3: No Reviewer #4: Yes ********** 5. Is the manuscript presented in an intelligible fashion and written in standard English? PLOS ONE does not copyedit accepted manuscripts, so the language in submitted articles must be clear, correct, and unambiguous. Any typographical or grammatical errors should be corrected at revision, so please note any specific errors here. Reviewer #1: Yes Reviewer #2: Yes Reviewer #3: Yes Reviewer #4: Yes ********** 6. Review Comments to the Author Please use the space provided to explain your answers to the questions above. You may also include additional comments for the author, including concerns about dual publication, research ethics, or publication ethics. (Please upload your review as an attachment if it exceeds 20,000 characters) Reviewer #1: Thank you for the opportunity to re-review your article. You have adequately addressed the comments I have raised in the previous round of review leading to an improved manuscript that I think is suitable for publication. Reviewer #2: Thank you for the revised document. The previous raised comments have been taken into account. P. 24, l. 525-526 and l. 536-537: Patients' data (patient, gender, time for interview and intervention) are listed differently than in the rest of the article. Reviewer #3: Thank you for letting me review this revised manuscript. The manuscript (especially the method section) is much more accurate and transparent in the description after the revision. However, I still have some minor issues to point out. Abstract According to the PLOS One author guideline the length of the abstract should not exceed 300 words – your abstract is 389 word. Please, revise this. Methods Researchers characteristics Please elaborate how much experience the interviewer has in qualitative research. Results In the result section I would prefer that the author summed up/listed the barriers and enablers themes found, instead of listing them in a supplementary table (S4). Afterall, the barrier and enabler themes are the result of the study. The same goes for the acceptability themes – list the themes in the result section instead of in a supplementary table (S5). Listing the themes in the result section, may prevent the difference in themes listed in the abstract from those listed as headlines in the result section (they are not typed exactly in the same way) and they are not listed in the same order. This issue is also seen in the acceptability themes. After each quotation it would have been nice also to know the participant´s age and RAPT score, to get a quick impression of the participant´s mobility In the last two quotations under the headline “paying for health insurance” what kind of rehabilitation did these patients receive? Under the headline “no size fits all model for domestic support” what does P9 stand for? And Please do also elaborate (P12, F, A, RAH). Discussion In the discussion section (line 571-579), where you discus the contrast between patients´ unwillingness to seek help from caregivers and caregivers willingness to support the patients. In this path you refer to a study (ref 15) is this a comparison with your study? – if so please elaborate the finding of this study (ref 15) and compare them to your findings and e.g. state if it is an enabler or barrier to home-based care/rehabilitation. Conclusions In your conclusion, could you please be more specific about what is “multiple factors”? What do you want your readers to remember from reading this paper? Any specific factors? Please remember to align this with the conclusion in the abstract. Reviewer #4: Thank you for the opportunity to review the article again. The authors have answered all my questions and comments, and have satisfactorily made appropriate changes to the manuscript. I have only a few suggestions for correcting potential errors: Please check the wording in the following line. Page 8, lines 185: "we invited participation in the study at consecutive group-based, face-to-face preadmission information sessions, conducted weekly at the hospital". Page 10, lines 237-239: participants x 3 (written as "patients" in all other places). ********** 7. PLOS authors have the option to publish the peer review history of their article (what does this mean?). If published, this will include your full peer review and any attached files. If you choose “no”, your identity will remain anonymous but your review may still be made public. Do you want your identity to be public for this peer review? For information about this choice, including consent withdrawal, please see our Privacy Policy. Reviewer #1: No Reviewer #2: No Reviewer #3: No Reviewer #4: No ********** [NOTE: If reviewer comments were submitted as an attachment file, they will be attached to this email and accessible via the submission site. Please log into your account, locate the manuscript record, and check for the action link "View Attachments". If this link does not appear, there are no attachment files.] While revising your submission, please upload your figure files to the Preflight Analysis and Conversion Engine (PACE) digital diagnostic tool, https://pacev2.apexcovantage.com/. PACE helps ensure that figures meet PLOS requirements. To use PACE, you must first register as a user. Registration is free. Then, login and navigate to the UPLOAD tab, where you will find detailed instructions on how to use the tool. If you encounter any issues or have any questions when using PACE, please email PLOS at figures@plos.org. Please note that Supporting Information files do not need this step.
18 Jul 2022 Please refer to the attached file 'Response to reviewers' Submitted filename: Response to Reviewers.docx Click here for additional data file. 9 Aug 2022 Barriers, enablers and acceptability of home-based care following elective total knee or hip replacement at a private hospital: A qualitative study of patient and caregiver perspectives PONE-D-21-32322R2 Dear Dr Wallis We’re pleased to inform you that your manuscript has been judged scientifically suitable for publication and will be formally accepted for publication once it meets all outstanding technical requirements. Within one week, you’ll receive an e-mail detailing the required amendments. When these have been addressed, you’ll receive a formal acceptance letter and your manuscript will be scheduled for publication. An invoice for payment will follow shortly after the formal acceptance. To ensure an efficient process, please log into Editorial Manager at http://www.editorialmanager.com/pone/, click the 'Update My Information' link at the top of the page, and double check that your user information is up-to-date. If you have any billing related questions, please contact our Author Billing department directly at authorbilling@plos.org. If your institution or institutions have a press office, please notify them about your upcoming paper to help maximize its impact. If they’ll be preparing press materials, please inform our press team as soon as possible -- no later than 48 hours after receiving the formal acceptance. Your manuscript will remain under strict press embargo until 2 pm Eastern Time on the date of publication. For more information, please contact onepress@plos.org. Kind regards, Carsten Bogh Juhl, PhD Academic Editor PLOS ONE Additional Editor Comments (optional): Reviewers' comments: Reviewer's Responses to Questions Comments to the Author 1. If the authors have adequately addressed your comments raised in a previous round of review and you feel that this manuscript is now acceptable for publication, you may indicate that here to bypass the “Comments to the Author” section, enter your conflict of interest statement in the “Confidential to Editor” section, and submit your "Accept" recommendation. Reviewer #3: All comments have been addressed ********** 2. Is the manuscript technically sound, and do the data support the conclusions? The manuscript must describe a technically sound piece of scientific research with data that supports the conclusions. Experiments must have been conducted rigorously, with appropriate controls, replication, and sample sizes. The conclusions must be drawn appropriately based on the data presented. Reviewer #3: Yes ********** 3. Has the statistical analysis been performed appropriately and rigorously? Reviewer #3: N/A ********** 4. Have the authors made all data underlying the findings in their manuscript fully available? The PLOS Data policy requires authors to make all data underlying the findings described in their manuscript fully available without restriction, with rare exception (please refer to the Data Availability Statement in the manuscript PDF file). The data should be provided as part of the manuscript or its supporting information, or deposited to a public repository. For example, in addition to summary statistics, the data points behind means, medians and variance measures should be available. If there are restrictions on publicly sharing data—e.g. participant privacy or use of data from a third party—those must be specified. Reviewer #3: Yes ********** 5. Is the manuscript presented in an intelligible fashion and written in standard English? PLOS ONE does not copyedit accepted manuscripts, so the language in submitted articles must be clear, correct, and unambiguous. Any typographical or grammatical errors should be corrected at revision, so please note any specific errors here. Reviewer #3: Yes ********** 6. Review Comments to the Author Please use the space provided to explain your answers to the questions above. You may also include additional comments for the author, including concerns about dual publication, research ethics, or publication ethics. (Please upload your review as an attachment if it exceeds 20,000 characters) Reviewer #3: Thank you for the opportunity to re-review the article. The authors have answered my questions and comments and have satisfactorily made appropriate changes to the manuscript. I have only two minor points to raise. Table 1: please, align the use of n=xx (not N=xx) To generalize the study results, please consider the male representation in the study. The authors have interviewed 31 participants of which 24 is female ~ 77 %. The study includes 27 quotations of which 23 is made by female participants ~ 85%. I suggest that the authors add a few more quotations coming from male participants. ********** 7. PLOS authors have the option to publish the peer review history of their article (what does this mean?). If published, this will include your full peer review and any attached files. If you choose “no”, your identity will remain anonymous but your review may still be made public. Do you want your identity to be public for this peer review? For information about this choice, including consent withdrawal, please see our Privacy Policy. Reviewer #3: No ********** 15 Aug 2022 PONE-D-21-32322R2 Barriers, enablers and acceptability of home-based care following elective total knee or hip replacement at a private hospital: A qualitative study of patient and caregiver perspectives Dear Dr. Wallis: I'm pleased to inform you that your manuscript has been deemed suitable for publication in PLOS ONE. Congratulations! Your manuscript is now with our production department. If your institution or institutions have a press office, please let them know about your upcoming paper now to help maximize its impact. If they'll be preparing press materials, please inform our press team within the next 48 hours. Your manuscript will remain under strict press embargo until 2 pm Eastern Time on the date of publication. For more information please contact onepress@plos.org. If we can help with anything else, please email us at plosone@plos.org. Thank you for submitting your work to PLOS ONE and supporting open access. Kind regards, PLOS ONE Editorial Office Staff on behalf of Dr. Carsten Bogh Juhl Academic Editor PLOS ONE
  27 in total

1.  Predicting risk of extended inpatient rehabilitation after hip or knee arthroplasty.

Authors:  Leonie B Oldmeadow; Helen McBurney; Valma J Robertson
Journal:  J Arthroplasty       Date:  2003-09       Impact factor: 4.757

2.  Toward methodological emancipation in applied health research.

Authors:  Sally Thorne
Journal:  Qual Health Res       Date:  2010-12-16

3.  Making psychological theory useful for implementing evidence based practice: a consensus approach.

Authors:  S Michie; M Johnston; C Abraham; R Lawton; D Parker; A Walker
Journal:  Qual Saf Health Care       Date:  2005-02

4.  Total joint arthroplasty: a comparison of postacute settings on patient functional outcomes.

Authors:  M H Kelly; R M Ackerman
Journal:  Orthop Nurs       Date:  1999 Sep-Oct       Impact factor: 0.913

5.  Sooner and healthier: a randomised controlled trial and interview study of an early discharge rehabilitation service for older people.

Authors:  Amanda L Cunliffe; John R F Gladman; Sharon L Husbands; Paul Miller; Michael E Dewey; Rowan H Harwood
Journal:  Age Ageing       Date:  2004-05       Impact factor: 10.668

6.  A meta-analysis of "hospital in the home".

Authors:  Gideon A Caplan; Nur S Sulaiman; Dee A Mangin; Nicoletta Aimonino Ricauda; Andrew D Wilson; Louise Barclay
Journal:  Med J Aust       Date:  2012-11-05       Impact factor: 7.738

Review 7.  Economic evaluation of adult rehabilitation: a systematic review and meta-analysis of randomized controlled trials in a variety of settings.

Authors:  Natasha Kareem Brusco; Nicholas F Taylor; Jennifer J Watts; Nora Shields
Journal:  Arch Phys Med Rehabil       Date:  2013-04-03       Impact factor: 3.966

8.  Validation of the theoretical domains framework for use in behaviour change and implementation research.

Authors:  James Cane; Denise O'Connor; Susan Michie
Journal:  Implement Sci       Date:  2012-04-24       Impact factor: 7.327

9.  Acceptability of healthcare interventions: an overview of reviews and development of a theoretical framework.

Authors:  Mandeep Sekhon; Martin Cartwright; Jill J Francis
Journal:  BMC Health Serv Res       Date:  2017-01-26       Impact factor: 2.655

10.  Needs of Chinese patients undergoing home-based rehabilitation after hip replacement: A qualitative study.

Authors:  Jing Chen; Xiaoping Zhu; Jinxia Jiang; Yan Qi; Yan Shi
Journal:  PLoS One       Date:  2019-07-26       Impact factor: 3.240

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