Literature DB >> 35963905

Long-Term Outcomes for Patients with Multiple Endocrine Neoplasia Type 1 and Duodenopancreatic Neuroendocrine Neoplasms.

Jason B Liu1,2, Jinman Cai3, Mashaal Dhir4, Alessandro Paniccia2, Amer H Zureikat2, Kimberly M Ramonell1, Kelly L McCoy1, Sally E Carty1, Linwah Yip5.   

Abstract

BACKGROUND: Liver metastasis from duodenopancreatic neuroendocrine neoplasms (DP-NENs) is a major cause of mortality in multiple endocrine neoplasia type 1 (MEN1) patients, yet much of their natural history is unknown.
METHODS: This longitudinal, retrospective cohort study analyzed all MEN1 patients with imageable functional (F) and nonfunctional (NF) DP-NENs (1990-2021) for liver metastasis-free survival (LMFS) and overall survival (OS).
RESULTS: Of 138 patients, 85 (61.6%) had imageable DP-NENs (28 F, 57 NF), and the mean largest tumor size was 1.8 ± 1.4 cm. Multifocality was present in 32 patients (37.7%). Surgery was performed for 49 patients (57.7%). During an 11-year median follow-up period (IQR, 6-17 years), 23 (27.1%) of the patients had liver metastasis, and 19 (22.4%) patients died. Death was attributed to liver metastasis in 60% of cases. The patients with F-DP-NENs versus NF-DP-NENs more often had liver metastasis (46.4% vs. 15.8%; p = 0.002) but had similar 10-year LMFS (80.9 vs. 87.0%; p = 0.44) and OS (82.7 vs. 94.3%; p = 0.69). The patients with NF-DP-NENs had surgery when their tumors were larger (p < 0.001). Tumor size was not associated with liver metastasis (p = 0.89). The average growth rate was 0.04 cm/year (SE, 0.02 cm/year; p = 0.01) during active surveillance for NF-DP-NENs (n = 38). Liver metastasis developed in four patients with tumors smaller than 2 cm. The risk of liver metastasis was independent of surgery (hazard ratio [HR], 0.78; 95% confidence interval [CI], 0.21-2.93; p = 0.72) and death (HR, 0.51; 95% CI, 0.08-3.06; p = 0.46).
CONCLUSIONS: Although the observed outcomes in this study were better than historical data, small NF-DP-NENs still developed liver metastasis and liver metastasis remains a major cause of death. These results suggest that size as a sole criterion for surgery may be insufficient to predict tumor behavior.
© 2022. Society of Surgical Oncology.

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Year:  2022        PMID: 35963905     DOI: 10.1245/s10434-022-12350-1

Source DB:  PubMed          Journal:  Ann Surg Oncol        ISSN: 1068-9265            Impact factor:   4.339


  23 in total

Review 1.  Clinical aspects of multiple endocrine neoplasia type 1.

Authors:  Abdallah Al-Salameh; Guillaume Cadiot; Alain Calender; Pierre Goudet; Philippe Chanson
Journal:  Nat Rev Endocrinol       Date:  2021-02-09       Impact factor: 43.330

2.  Health-Related Quality of Life in Patients with Multiple Endocrine Neoplasia Type 1.

Authors:  Rachel S van Leeuwaarde; Carolina R C Pieterman; Anne M May; Olaf M Dekkers; Anouk N van der Horst-Schrivers; Ad R Hermus; Wouter W de Herder; Madeleine L Drent; Peter H Bisschop; Bas Havekes; Menno R Vriens; Gerlof D Valk
Journal:  Neuroendocrinology       Date:  2020-05-04       Impact factor: 4.914

3.  Metastatic Potential and Survival of Duodenal and Pancreatic Tumors in Multiple Endocrine Neoplasia Type 1: A GTE and AFCE Cohort Study (Groupe d'étude des Tumeurs Endocrines and Association Francophone de Chirurgie Endocrinienne).

Authors:  Sandrine Vinault; Anne-Sophie Mariet; Maëlle Le Bras; Eric Mirallié; Catherine Cardot-Bauters; François Pattou; Philippe Ruszniewski; Alain Sauvanet; Philippe Chanson; Eric Baudin; Dominique Elias; Fabrice Menegaux; Sébastien Gaujoux; Françoise Borson-Chazot; Jean-Christophe Lifante; Philippe Caron; Nicolas Carrère; Antoine Tabarin; Christophe Laurent; Marc Klein; Laurent Brunaud; Patricia Niccoli; Frédéric Sebag; Guillaume Cadiot; Reza Kianmanesh; Maxime Luu; Christine Binquet; Pierre Goudet
Journal:  Ann Surg       Date:  2020-12       Impact factor: 12.969

4.  Comparison of surgical results in patients with advanced and limited disease with multiple endocrine neoplasia type 1 and Zollinger-Ellison syndrome.

Authors:  J A Norton; H R Alexander; D L Fraker; D J Venzon; F Gibril; R T Jensen
Journal:  Ann Surg       Date:  2001-10       Impact factor: 12.969

Review 5.  Challenges and controversies in management of pancreatic neuroendocrine tumours in patients with MEN1.

Authors:  Christopher J Yates; Paul J Newey; Rajesh V Thakker
Journal:  Lancet Diabetes Endocrinol       Date:  2015-07-09       Impact factor: 32.069

6.  Risk factors and causes of death in MEN1 disease. A GTE (Groupe d'Etude des Tumeurs Endocrines) cohort study among 758 patients.

Authors:  Pierre Goudet; Arnaud Murat; Christine Binquet; Christine Cardot-Bauters; Annie Costa; Philippe Ruszniewski; Patricia Niccoli; Fabrice Ménégaux; Georges Chabrier; Françoise Borson-Chazot; Antoine Tabarin; Philippe Bouchard; Brigitte Delemer; Alfred Beckers; Claire Bonithon-Kopp
Journal:  World J Surg       Date:  2010-02       Impact factor: 3.352

Review 7.  Prognostic factors for the outcome of nonfunctioning pancreatic neuroendocrine tumors in MEN1: a systematic review of literature.

Authors:  S M Sadowski; C R C Pieterman; N D Perrier; F Triponez; G D Valk
Journal:  Endocr Relat Cancer       Date:  2020-06       Impact factor: 5.678

8.  High Fear of Disease Occurrence Is Associated With Low Quality of Life in Patients With Multiple Endocrine Neoplasia Type 1: Results From the Dutch MEN1 Study Group.

Authors:  Rachel S van Leeuwaarde; Carolina R C Pieterman; Eveline M A Bleiker; Olaf M Dekkers; Anouk N van der Horst-Schrivers; Ad R Hermus; Wouter W de Herder; Madeleine L Drent; Peter H Bisschop; Bas Havekes; Menno R Vriens; Gerlof D Valk
Journal:  J Clin Endocrinol Metab       Date:  2018-06-01       Impact factor: 5.958

9.  Long-term Follow-up of MEN1 Patients Who Do Not Have Initial Surgery for Small ≤2 cm Nonfunctioning Pancreatic Neuroendocrine Tumors, an AFCE and GTE Study: Association Francophone de Chirurgie Endocrinienne & Groupe d'Etude des Tumeurs Endocrines.

Authors:  Frederic Triponez; Samira M Sadowski; François Pattou; Catherine Cardot-Bauters; Eric Mirallié; Maëlle Le Bras; Frédéric Sebag; Patricia Niccoli; Sophie Deguelte; Guillaume Cadiot; Gilles Poncet; Jean-Christophe Lifante; Françoise Borson-Chazot; Philippe Chaffanjon; Olivier Chabre; Fabrice Menegaux; Eric Baudin; Philippe Ruszniewski; Hélène Du Boullay; Pierre Goudet
Journal:  Ann Surg       Date:  2018-07       Impact factor: 12.969

Review 10.  Multiple Endocrine Neoplasia Type 1 and the Pancreas: Diagnosis and Treatment of Functioning and Non-Functioning Pancreatic and Duodenal Neuroendocrine Neoplasia within the MEN1 Syndrome - An International Consensus Statement.

Authors:  Bruno Niederle; Andreas Selberherr; Detlef K Bartsch; Maria L Brandi; Gerard M Doherty; Massimo Falconi; Pierre Goudet; Thorvardur R Halfdanarson; Tetsuhide Ito; Robert T Jensen; Alberto Larghi; Lingaku Lee; Kjell Öberg; Marianne Pavel; Aurel Perren; Samira M Sadowski; Francesco Tonelli; Frédéric Triponez; Gerlof D Valk; Dermot O'Toole; David Scott-Coombes; Rajesh V Thakker; Geoffrey B Thompson; Giorgio Treglia; Bertram Wiedenmann
Journal:  Neuroendocrinology       Date:  2020-09-24       Impact factor: 4.914

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