Literature DB >> 35892038

Transition of care of patients with eosinophilic gastrointestinal diseases: Challenges and opportunities.

Girish Hiremath1, Adrian Chapa-Rodriguez2, David A Katzka3, Jonathan M Spergel4, Benjamin Gold5, Albert J Bredenoord6, Evan S Dellon7, Jeannie Huang8, Sandeep K Gupta9.   

Abstract

Eosinophilic gastrointestinal disorders (EGID) are a group of allergen-mediated conditions which are characterized by eosinophilic inflammation affecting one or more parts of the gastrointestinal tract. A disproportionately higher number of EGID patients are diagnosed in the pediatric age group. Given the chronic course of EGIDs and lack of curative therapies at this time, majority of the pediatric EGID patients may require continued care well into their adulthood. However, to date, scant data are available regarding the health care transition (HCT), the transition of care (TC), and the effectiveness of transfer of care EGID patients from pediatric-oriented to adult-oriented providers. Herein, we review the lessons learnt from transfer of care of children with other chronic gastrointestinal and allergic conditions, analyze the current knowledge, potential barriers, the role of various stakeholders in successful transfer of care of EGID patients, propose a conceptual framework for HCT and TC of EGID patients, and identify outcome measures to ensure the quality of progression of care.

Entities:  

Keywords:  Eosinophilic gastrointestinal diseases; eosinophilic esophagitis; health care transition; transfer of care; transition of care

Year:  2022        PMID: 35892038      PMCID: PMC9311497          DOI: 10.3233/trd-220054

Source DB:  PubMed          Journal:  Transl Sci Rare Dis


  38 in total

Review 1.  Epidemiology and Natural History of Eosinophilic Esophagitis.

Authors:  Evan S Dellon; Ikuo Hirano
Journal:  Gastroenterology       Date:  2017-08-01       Impact factor: 22.682

2.  Depression, Anxiety, and Emergency Department Use for Asthma.

Authors:  Naomi S Bardach; Caroline Neel; Lawrence C Kleinman; Charles E McCulloch; Robert Thombley; Bonnie T Zima; Jacqueline Grupp-Phelan; Tumaini R Coker; Michael D Cabana
Journal:  Pediatrics       Date:  2019-10       Impact factor: 7.124

3.  Health-care utilization, costs, and the burden of disease related to eosinophilic esophagitis in the United States.

Authors:  Elizabeth T Jensen; Michael D Kappelman; Christopher F Martin; Evan S Dellon
Journal:  Am J Gastroenterol       Date:  2014-09-30       Impact factor: 10.864

4.  TELEmedicine for Patients with Inflammatory Bowel Disease (TELE-IBD): Design and implementation of randomized clinical trial.

Authors:  Raymond K Cross; Guruprasad Jambaulikar; Patricia Langenberg; J Kathleen Tracy; Joseph F Collins; Jonathan Katz; Miguel Regueiro; David A Schwartz; Charlene C Quinn
Journal:  Contemp Clin Trials       Date:  2015-03-24       Impact factor: 2.226

Review 5.  Patient advocacy: what is its role?

Authors:  Alice Ann Lara; Lisa Salberg
Journal:  Pacing Clin Electrophysiol       Date:  2009-07       Impact factor: 1.976

Review 6.  Worldwide incidence and prevalence of inflammatory bowel disease in the 21st century: a systematic review of population-based studies.

Authors:  Siew C Ng; Hai Yun Shi; Nima Hamidi; Fox E Underwood; Whitney Tang; Eric I Benchimol; Remo Panaccione; Subrata Ghosh; Justin C Y Wu; Francis K L Chan; Joseph J Y Sung; Gilaad G Kaplan
Journal:  Lancet       Date:  2017-10-16       Impact factor: 79.321

Review 7.  Pediatric Asthma: A Global Epidemic.

Authors:  Denise Serebrisky; Andrew Wiznia
Journal:  Ann Glob Health       Date:  2019-01-22       Impact factor: 2.462

Review 8.  Treatment Adherence in Adolescents with Asthma.

Authors:  Alan Kaplan; David Price
Journal:  J Asthma Allergy       Date:  2020-01-14

Review 9.  Malnutrition in Eosinophilic Gastrointestinal Disorders.

Authors:  Martina Votto; Maria De Filippo; Francesca Olivero; Alessandro Raffaele; Emanuele Cereda; Mara De Amici; Giorgia Testa; Gian Luigi Marseglia; Amelia Licari
Journal:  Nutrients       Date:  2020-12-31       Impact factor: 5.717

10.  Epidemiology of Nonesophageal Eosinophilic Gastrointestinal Diseases in Symptomatic Patients: A Systematic Review and Meta-Analysis.

Authors:  Amelia Licari; Martina Votto; Luigia Scudeller; Annalisa De Silvestri; Chiara Rebuffi; Antonella Cianferoni; Gian Luigi Marseglia
Journal:  J Allergy Clin Immunol Pract       Date:  2020-02-28
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