Literature DB >> 35833095

Delays in autism diagnosis for U.S. Spanish-speaking families: The contribution of appointment availability.

Alison E Chavez1, Melanie S Feldman1, Alice S Carter1, Abbey Eisenhower1, Thomas I Mackie2, Leah Ramella2, Noah Hoch3, R Christopher Sheldrick4.   

Abstract

Promoting equity in health services requires an understanding of the mechanisms that produce disparities. Utilizing a sequential, mixed-methods, explanatory study design, we analyzed child-, family-, and organizational-level factors and their association with wait times for an ASD diagnostic evaluation among 353 families scheduled for English and Spanish language appointments (27% Spanish language). A subset of parents and caregivers participated in English and Spanish language focus groups to provide their perspectives on the diagnostic process. Spanish language was associated with greater completion of, and time to evaluations than English language. The only variable found to mediate associations with time-to-evaluation was appointment availability - an organizational factor. Qualitative results elucidate potential explanations for greater Spanish language evaluation completion (e.g., fewer community-based diagnostic options). Results serve as a case study to support the utility and importance of analyzing the influence of organizational-level factors on delays and disparities for childhood health and mental health services. We discuss our findings in relation to strategies that can be widely applied to support equitable services access for childhood diagnostic and intervention services.

Entities:  

Keywords:  Spanish language; appointment availability; autism; health disparity; organizational factors

Year:  2021        PMID: 35833095      PMCID: PMC9273058          DOI: 10.1080/23794925.2021.2001772

Source DB:  PubMed          Journal:  Evid Based Pract Child Adolesc Ment Health


  20 in total

1.  Brief report: screening tool for autism in two-year-olds (STAT): development and preliminary data.

Authors:  W L Stone; E E Coonrod; O Y Ousley
Journal:  J Autism Dev Disord       Date:  2000-12

2.  Required sample size to detect the mediated effect.

Authors:  Matthew S Fritz; David P Mackinnon
Journal:  Psychol Sci       Date:  2007-03

3.  'Discovering' chronic illness: using grounded theory.

Authors:  K Charmaz
Journal:  Soc Sci Med       Date:  1990       Impact factor: 4.634

4.  Early Identification of Autism Spectrum Disorder: Recommendations for Practice and Research.

Authors:  Lonnie Zwaigenbaum; Margaret L Bauman; Wendy L Stone; Nurit Yirmiya; Annette Estes; Robin L Hansen; James C McPartland; Marvin R Natowicz; Roula Choueiri; Deborah Fein; Connie Kasari; Karen Pierce; Timothy Buie; Alice Carter; Patricia A Davis; Doreen Granpeesheh; Zoe Mailloux; Craig Newschaffer; Diana Robins; Susanne Smith Roley; Sheldon Wagner; Amy Wetherby
Journal:  Pediatrics       Date:  2015-10       Impact factor: 7.124

Review 5.  No-shows in appointment scheduling - a systematic literature review.

Authors:  Leila F Dantas; Julia L Fleck; Fernando L Cyrino Oliveira; Silvio Hamacher
Journal:  Health Policy       Date:  2018-02-15       Impact factor: 2.980

6.  Transportation barriers to accessing health care for urban children.

Authors:  Serena Yang; Robert L Zarr; Taha A Kass-Hout; Atoosa Kourosh; Nancy R Kelly
Journal:  J Health Care Poor Underserved       Date:  2006-11

7.  Disparities in Diagnosis and Treatment of Autism in Latino and Non-Latino White Families.

Authors:  Katharine E Zuckerman; Olivia J Lindly; Nuri M Reyes; Alison E Chavez; Kristy Macias; Kathryn N Smith; Ann Reynolds
Journal:  Pediatrics       Date:  2017-05       Impact factor: 7.124

8.  The clinical validity and reliability of the Brief Infant-Toddler Social and Emotional Assessment (BITSEA).

Authors:  Koray Karabekiroglu; Margaret J Briggs-Gowan; Alice S Carter; Ayse Rodopman-Arman; Seher Akbas
Journal:  Infant Behav Dev       Date:  2010-08-30

9.  Timing of identification among children with an autism spectrum disorder: findings from a population-based surveillance study.

Authors:  Paul T Shattuck; Maureen Durkin; Matthew Maenner; Craig Newschaffer; David S Mandell; Lisa Wiggins; Li-Ching Lee; Catherine Rice; Ellen Giarelli; Russell Kirby; Jon Baio; Jennifer Pinto-Martin; Christopher Cuniff
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2009-05       Impact factor: 8.829

10.  Racial and ethnic disparities in quality of health care among children with autism and other developmental disabilities.

Authors:  Sandra Magaña; Susan L Parish; Roderick A Rose; Maria Timberlake; Jamie G Swaine
Journal:  Intellect Dev Disabil       Date:  2012-08
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