Linda Clare1,2, Laura D Gamble3, Anthony Martyr1, Serena Sabatini1, Sharon M Nelis1, Catherine Quinn4,5, Claire Pentecost1, Christina Victor6, Roy W Jones7, Ian R Jones8, Martin Knapp9, Rachael Litherland10, Robin G Morris11, Jennifer M Rusted12, Jeanette M Thom13, Rachel Collins1, Catherine Henderson9, Fiona E Matthews3. 1. Centre for Research in Ageing and Cognitive Health, University of Exeter Medical School, Exeter, UK. 2. NIHR Applied Research Collaboration South-West Peninsula, Exeter, UK. 3. Population Health Sciences Institute, Newcastle University, New Castle, UK. 4. Centre for Applied Dementia Studies, Bradford University, Bradford, UK. 5. Wolfson Centre for Applied Health Research, Bradford, UK. 6. College of Health, Medicine and Life Sciences, Brunel University London, Brunel, UK. 7. Research Institute for the Care of Older People (RICE), Bath, UK. 8. Wales Institute for Social and Economic Research, Data and Methods, Cardiff University, Cardiff, UK. 9. Care Policy and Evaluation Centre, London School of Economics and Political Science, London, UK. 10. Innovations in Dementia CIC, Exeter, UK. 11. Institute of Psychiatry, Psychology, and Neuroscience, King's College, London, UK. 12. School of Psychology, University of Sussex, Brighton, UK. 13. School of Health Sciences, The University of Sydney, Sydney, Australia.
Abstract
OBJECTIVES: Understanding whether and how caregivers' capability to "live well" changes over time, and the factors associated with change, could help target effective caregiver support. METHODS: We analyzed 3 time points (12 months apart) of Improving the experience of Dementia and Enhancing Active Life (IDEAL) cohort data from coresident spouse caregivers of community-dwelling individuals who had mild-to-moderate dementia at baseline, using latent growth and growth mixture models. Capability to "live well" was derived from measures of quality of life, well-being, and satisfaction with life. RESULTS: Data from 995 spouse caregivers at Time 1, 780 at Time 2, and 601 at Time 3 were included. The mean "living well" score decreased slightly over time. We identified 3 classes of caregivers: one with higher baseline scores declining slightly over time (Stable; 66.8%), one with low baseline scores remaining stable (Lower Stable; 26.0%), and one with higher baseline scores showing marked decline (Declining; 7.2%). Scores on baseline measures differentiated the Lower Stable, but not the Declining, from the Stable class. Longitudinally, the Declining class was associated with care recipient cognitive decline and increasing hours providing care, as well as caregiver stress and depression. Findings were similar when caregivers with other kin relationships were included. DISCUSSION: The findings indicate the importance of prompt identification of, and support for, caregivers at risk of the declining capability to "live well" and may assist in identifying those caregivers who could benefit most from targeted support.
OBJECTIVES: Understanding whether and how caregivers' capability to "live well" changes over time, and the factors associated with change, could help target effective caregiver support. METHODS: We analyzed 3 time points (12 months apart) of Improving the experience of Dementia and Enhancing Active Life (IDEAL) cohort data from coresident spouse caregivers of community-dwelling individuals who had mild-to-moderate dementia at baseline, using latent growth and growth mixture models. Capability to "live well" was derived from measures of quality of life, well-being, and satisfaction with life. RESULTS: Data from 995 spouse caregivers at Time 1, 780 at Time 2, and 601 at Time 3 were included. The mean "living well" score decreased slightly over time. We identified 3 classes of caregivers: one with higher baseline scores declining slightly over time (Stable; 66.8%), one with low baseline scores remaining stable (Lower Stable; 26.0%), and one with higher baseline scores showing marked decline (Declining; 7.2%). Scores on baseline measures differentiated the Lower Stable, but not the Declining, from the Stable class. Longitudinally, the Declining class was associated with care recipient cognitive decline and increasing hours providing care, as well as caregiver stress and depression. Findings were similar when caregivers with other kin relationships were included. DISCUSSION: The findings indicate the importance of prompt identification of, and support for, caregivers at risk of the declining capability to "live well" and may assist in identifying those caregivers who could benefit most from targeted support.
Authors: Cristian Balducci; Eva Mnich; Kevin J McKee; Giovanni Lamura; Anke Beckmann; Barbro Krevers; Z Beata Wojszel; Mike Nolan; Constantinos Prouskas; Barbara Bien; Birgitta Oberg Journal: Gerontologist Date: 2008-06
Authors: Elizabeth Fauth; Kyle Hess; Kathy Piercy; Maria Norton; Chris Corcoran; Peter Rabins; Constantine Lyketsos; JoAnn Tschanz Journal: Aging Ment Health Date: 2012 Impact factor: 3.658
Authors: Catherine Quinn; Sharon M Nelis; Anthony Martyr; Christina Victor; Robin G Morris; Linda Clare Journal: Am J Geriatr Psychiatry Date: 2019-02-11 Impact factor: 4.105
Authors: Linda Clare; Yu-Tzu Wu; Catherine Quinn; Ian R Jones; Christina R Victor; Sharon M Nelis; Anthony Martyr; Rachael Litherland; James A Pickett; John V Hindle; Roy W Jones; Martin Knapp; Michael D Kopelman; Robin G Morris; Jennifer M Rusted; Jeanette M Thom; Ruth A Lamont; Catherine Henderson; Isla Rippon; Alexandra Hillman; Fiona E Matthews Journal: Alzheimer Dis Assoc Disord Date: 2019 Jan-Mar Impact factor: 2.703