Catherine Quinn1, Sharon M Nelis2, Anthony Martyr2, Christina Victor3, Robin G Morris4, Linda Clare2. 1. Centre of Applied Dementia Studies (CQ), University of Bradford, Faculty of Health Studies, Bradford, United Kingdom; Centre for Research in Ageing and Cognitive Health (REACH) (CQ, SMN, AM, LC), University of Exeter Medical School and College of Life and Environmental Sciences, St Luke's Campus, Exeter, United Kingdom. Electronic address: c.quinn1@bradford.ac.uk. 2. Centre for Research in Ageing and Cognitive Health (REACH) (CQ, SMN, AM, LC), University of Exeter Medical School and College of Life and Environmental Sciences, St Luke's Campus, Exeter, United Kingdom. 3. Department of Clinical Sciences (CV), College of Health and Life Sciences, Brunel University London, Uxbridge, United Kingdom. 4. King's College London Institute of Psychiatry, Psychology and Neuroscience (RGM), London.
Abstract
OBJECTIVE: The aim of this study was to identify the potential impact of positive and negative dimensions of caregiving on caregiver well-being and satisfaction with life (SwL). METHODS: This study used time-point one data from the Improving the experience of Dementia and Enhancing Active Life (also known as IDEAL)cohort study that involved 1,283 informal caregivers of people in the mild-to-moderate stages of dementia recruited from 29 sites within Great Britain. Multivariate linear regression modeling was used to investigate the associations between positive dimensions of caregiving (measured by caregiving competence and perceptions of positive aspects of caregiving), negative dimensions of caregiving (measured by caregiving stress and role captivity), and caregiver well-being and SwL. RESULTS: Lower well-being was associated with low caregiving competence (-13.77; 95% confidence interval [CI]:-16.67, -10.87), perceiving fewer positive aspects of caregiving (-7.67; 95% CI:-10.26, -5.07), high caregiving stress (-24.45; 95% CI:-26.94, -21.96), and high role captivity (-15.61; 95% CI:-18.33, -12.89). Lower SwL was associated with low caregiving competence (-4.61; 95% CI:-5.57, -3.66), perceiving fewer positive aspects of caregiving (-3.09; 95% CI:-3.94, -2.25), high caregiving stress (-7.88; 95% CI:-8.71, -7.06), and high role captivity (-6.41; 95% CI:-7.27, -5.54). When these four measures were combined within the same model, only positive aspects of caregiving and caregiving stress retained independent associations with well-being and SwL. CONCLUSION: Both positive and negative dimensions of caregiving were associated with caregiver well-being and SwL. Psychological therapies and interventions need to consider not only the negative aspects of caregiving but also positive caregiving experiences and their implications for caregiver well-being and SwL.
OBJECTIVE: The aim of this study was to identify the potential impact of positive and negative dimensions of caregiving on caregiver well-being and satisfaction with life (SwL). METHODS: This study used time-point one data from the Improving the experience of Dementia and Enhancing Active Life (also known as IDEAL)cohort study that involved 1,283 informal caregivers of people in the mild-to-moderate stages of dementia recruited from 29 sites within Great Britain. Multivariate linear regression modeling was used to investigate the associations between positive dimensions of caregiving (measured by caregiving competence and perceptions of positive aspects of caregiving), negative dimensions of caregiving (measured by caregiving stress and role captivity), and caregiver well-being and SwL. RESULTS: Lower well-being was associated with low caregiving competence (-13.77; 95% confidence interval [CI]:-16.67, -10.87), perceiving fewer positive aspects of caregiving (-7.67; 95% CI:-10.26, -5.07), high caregiving stress (-24.45; 95% CI:-26.94, -21.96), and high role captivity (-15.61; 95% CI:-18.33, -12.89). Lower SwL was associated with low caregiving competence (-4.61; 95% CI:-5.57, -3.66), perceiving fewer positive aspects of caregiving (-3.09; 95% CI:-3.94, -2.25), high caregiving stress (-7.88; 95% CI:-8.71, -7.06), and high role captivity (-6.41; 95% CI:-7.27, -5.54). When these four measures were combined within the same model, only positive aspects of caregiving and caregiving stress retained independent associations with well-being and SwL. CONCLUSION: Both positive and negative dimensions of caregiving were associated with caregiver well-being and SwL. Psychological therapies and interventions need to consider not only the negative aspects of caregiving but also positive caregiving experiences and their implications for caregiver well-being and SwL.
Authors: Linda Clare; Laura D Gamble; Anthony Martyr; Serena Sabatini; Sharon M Nelis; Catherine Quinn; Claire Pentecost; Christina Victor; Roy W Jones; Ian R Jones; Martin Knapp; Rachael Litherland; Robin G Morris; Jennifer M Rusted; Jeanette M Thom; Rachel Collins; Catherine Henderson; Fiona E Matthews Journal: J Gerontol B Psychol Sci Soc Sci Date: 2022-10-06 Impact factor: 4.942
Authors: Anthony Martyr; Sharon M Nelis; Catherine Quinn; Jennifer M Rusted; Robin G Morris; Linda Clare Journal: Int J Geriatr Psychiatry Date: 2019-05-20 Impact factor: 3.485
Authors: Mike C Horton; Jan Oyebode; Linda Clare; Molly Megson; Leanne Shearsmith; Carol Brayne; Paul Kind; Zoe Hoare; Hareth Al Janabi; Val Hewison; Alan Tennant; Penny Wright Journal: Gerontologist Date: 2021-04-03
Authors: Catherine Quinn; Laura D Gamble; Sophie Parker; Anthony Martyr; Rachel Collins; Christina Victor; Eleanor Dawson; Anna Hunt; Claire Pentecost; Louise Allan; Linda Clare Journal: Int J Geriatr Psychiatry Date: 2022-03-24 Impact factor: 3.850