| Literature DB >> 35713942 |
Warren James Donnellan1, Jasmine Grace Warren1.
Abstract
BACKGROUND: Informal dementia care is uniquely stressful and necessitates effective methods of identifying and understanding the needs of potentially at-risk carers so that they can be supported and sustained in their roles. One such method is examining carers' engagement in online support platforms. Research has explored emotional word use on online discussion forums as a proxy for underlying emotional functioning. We are not aware of any research that has analyzed the content of posts on discussion forums specific to carers of people living with dementia in order to examine their emotional states.Entities:
Keywords: aging; dementia; dementia care; digital health; elderly population; emotional language; emotional states; online forum; online health
Year: 2022 PMID: 35713942 PMCID: PMC9250063 DOI: 10.2196/32603
Source DB: PubMed Journal: JMIR Aging ISSN: 2561-7605
Frequencies of participant demographic characteristics.
| Participants | Frequency, n (%) | |
| Noncarers (control) | 100 (27) | |
| Carers | 270 (73) | |
|
| 119 (43) | |
|
| Current | 84 (71) |
|
| Former | 31 (26) |
|
| Missing | 4 (3) |
|
| 151 (55) | |
|
| Current | 59 (39) |
|
| Former | 84 (56) |
|
| Missing | 8 (5) |
|
| ||
|
| Current | 143 (55) |
|
| Former | 115 (45) |
Example adapted quotes to illustrate how emotion words appeared in carers’ posts.
| Emotion words | Adapted example quotes from carer posts |
| Affective processesa | “My Dad was the |
| Positive | “…we’ve been the |
| Negative | “My husband has vascular dementia. The past year has been |
| Anxiety | “Lately I’m feeling |
| Anger | “Now he is verbally |
| Sadness | “…I get |
a“Affective processes” is an overarching category including positive, negative, anxiety, anger, and sadness words.
Descriptive statisticsa for effect of group, carer type, and care status on emotional word use (values are mean and SD).
| Participants | Emotional word types, mean (SD) | |||||||
|
|
| Affective processes | Positive | Negative | Anxiety | Anger | Sadness | |
|
| ||||||||
|
| Carers | 5.41 (2.63) | 2.94 (2.17) | 2.39 (1.76) | 0.56 (0.97) | 0.31 (0.59) | 0.74 (1.04) | |
|
| Noncarers | 3.52 (2.09) | 2.55 (1.81) | 0.91 (0.89) | 0.17 (0.31) | 0.13 (0.29) | 0.26 (0.46) | |
|
| ||||||||
|
| Spousal | 5.56 (2.94) | 2.69 (2.17) | 2.82 (2.00) | 0.69 (1.27) | 0.39 (0.73) | 0.77 (1.12) | |
|
| Parental | 5.20 (2.32) | 3.07 (2.10) | 2.04 (1.46) | 0.43 (0.63) | 0.24 (0.44) | 0.73 (.98) | |
|
| ||||||||
|
| Current | 4.72 (2.11) | 2.28 (1.65) | 2.37 (1.56) | 0.58 (0.76) | 0.38 (0.70) | 0.48 (.82) | |
|
| Former | 6.10 (2.49) | 3.66 (2.25) | 2.38 (1.81) | 0.43 (0.59) | 0.23 (0.42) | 1.10 (1.20) | |
aNon-log-transformed descriptive statistics are presented for illustrative purposes.
Figure 1Clustered bar chart showing the effect of group on emotional word use (*P<.05). Error bars represent 95% CIs. Non-log-transformed data used for illustrative purposes.
Figure 2Clustered bar chart showing the effect of carer type on emotional word use (*P<.05). Error bars represent 95% CIs. Non-log-transformed data used for illustrative purposes.
Figure 3Clustered bar chart showing the effect of care status on emotional word use (*P<.05). Error bars represent 95% CIs. Non-log-transformed data used for illustrative purposes.