| Literature DB >> 35673683 |
Megha Pruthi1, Sushma Bhatnagar2, Abhaya Indrayan3, Gaurav Chanana4.
Abstract
Objectives: A well-educated and aware staff are the needed to overcome barriers to palliative care provision in the face of ever-increasing needs of palliative care in developing countries like India. Lack of a standardised and locally validated need assessment tool is felt as one of the important requirements for any successful educational program. This project is to develop and validate a basic palliative care knowledge needs assessment questionnaire. Materials andEntities:
Keywords: Awareness; Evaluation; Knowledge; Nurse; Palliative care
Year: 2022 PMID: 35673683 PMCID: PMC9168284 DOI: 10.25259/IJPC_80_2021
Source DB: PubMed Journal: Indian J Palliat Care ISSN: 0973-1075
Figure 1:Summary of selection of retrieved articles.
Figure 2:Summary of item generation.
Figure 3:Development and validation of PCKQ-B. PCKQ-B: Palliative care knowledge questionnaire-basic, S-CVI: Scale content validity index, p: Item difficulty, d: Item discrimination, ICC: Intra class correlation, KR-20: Kuder-Richardson 20.
Demographic characteristics of participants (n=99).
| Characteristic |
| % | Missing data, |
|---|---|---|---|
| Age (years) | |||
| 21–25 | 58 | 64.4 | 9 |
| 26–30 | 20 | 22.2 | |
| 30+ | 12 | 13.3 | |
| Total | 90 | 100.0 | |
| Gender | |||
| F | 79 | 82.3 | 3 |
| M | 17 | 17.7 | |
| Total | 96 | 100.0 | |
| Marital status | |||
| Single | 66 | 71.7 | 7 |
| Married | 26 | 28.3 | |
| Total | 92 | 100.0 | |
| Education | |||
| Bachelor’s degree | 88 | 85.8 | 1 |
| PG | 14 | 14.3 | |
| Total | 98 | 100.0 | |
| Job position | |||
| SN | 87 | 90.6 | 3 |
| Ed | 6 | 6.3 | |
| Sup | 3 | 3.1 | |
| Total | 96 | 100.0 | |
| Department of work | |||
| Ward | 38 | 39.6 | 3 |
| Oncology | 33 | 34.4% | |
| ICU | 20 | 20.8 | |
| Others | 5 | 5.2 | |
| Total | 96 | 100.0 | |
| Clinical experience (years) | |||
| 0 - Less than 2 | 45 | 52.9 | 14 |
| 2 - Less than 4 | 27 | 31.8 | |
| 4 and above | 13 | 15.3 | |
| Total | 85 | 100.0 | |
| Number of terminally ill patients ever cared for | |||
| None | 36 | 40.9 | 11 |
| 1–10 | 24 | 27.3 | |
| 10–50 | 14 | 15.9 | |
| 50 and above | 14 | 15.9 | |
| Total | 88 | 100.0 | |
| Number of cancer patients ever cared for | |||
| None | 27 | 30.3 | 10 |
| 1–10 | 22 | 24.7 | |
| 10–50 | 17 | 19.1 | |
| 50–100 | 9 | 10.1 | |
| >100 | 14 | 15.7 | |
| Total | 89 | 100.0 | |
F: Female, M: Male, PG: Post Graduate, Ed: nursing Educator, Sup: nursing Supervisor, SN: Staff Nurse, ICU: Intensive Care Unit, W: Ward
Comparison of psychometric properties of PCKQ-B with other validation studies.
| Questionnaire (Reference) |
|
| KR-20 | Cronbach’s α | Test-Retest (ICC) | Known-Group | Factor Analysis |
|---|---|---|---|---|---|---|---|
| PCKQ-B | 0.1–0.9 | >0.2 | 0.65 | 0.52 | |||
| PCQN[ | 0.2–0.8 | >0.5 | 0.78 | 0.56 | |||
| PCQN-F[ | 0.2–0.8 | +ve | 0.6 | ||||
| PCQN-SV[ | 0.55 (average) | >0.2(except 6 items) | 0.72 | 0.67* | |||
| PCKT[ | IRT, −2.9–3.09 | IRT, 0.33–2.25 | 0.81 | 0.88 | |||
| PCPS[ | 0.8–0.91 each domain | ICC each domain 0.64–0.74 | Exploratory factor analysis with promax rotation | ||||
| PCDS[ | 0.85–0.93 each domain | ICC each domain 0.61–0.69 | Exploratory factor analysis with promax rotation | ||||
| PEACE-Q[ | IRT, −2.76– 0.29 | IRT, 0.69–2.67 | 0.87 | 0.84 | |||
| Home Palliative Care Knowledge Test (Shimizu | IRT, −3.24– 1.05 | IRT, 0.56–3.06 | 0.87* | ||||
| PCS[ | 0.27–0.99 | 0.81* | Exploratory factor analysis with varimax rotation | ||||
| K-PCCSI[ | 0.90 | ||||||
| PCAK[ | 0.636–0.824 | 0.95 | |||||
| UNPCKS[ | 0.7 | Exploratory factor analysis |
Cronbach’s α calculated for dichotomous items, p: Item difficulty index, d: Item discrimination index, +ve: Positive, IRT: Item response theory, ICC: ICC, PCKQ: B: Palliative care knowledge questionnaire-basic, PCQN: Palliative care quiz for nursing, PCQN: F: French version of palliative care quiz for nurses, PCQN: SV: Spanish version of palliative care quiz for nurses, PCKT: Palliative care knowledge test, PCPS: Palliative care self-reported practices scale, PDPS: Palliative care difficulties scale, PEACE: Q: Palliative care Emphasis program on symptom management and assessment for continuous medical education questionnaire, PCS: Palliative care survey, K: PCCSI: Knowledge regarding palliative care consultation services inventory, PCAK: Palliative care attitude and knowledge, UNPCKS: Undergraduate nursing palliative care knowledge survey
| Palliative Care Knowledge Questionnaire-Basic (PCKQ-B) | ||||
|---|---|---|---|---|
| Yes | No | Don’t know | ||
| 1. Taking care of caregiver is equally important as patient’s care. | ||||
| When do you think palliative care is needed? | ||||
| 2. Care of patients with advanced cancer | ||||
| 3. Total care of chronically ill patients | ||||
| 4. HIV/AIDS patients | ||||
| 5. Chronic non-malignant diseases such as end-stage heart failure | ||||
| 6. Palliative care should start at the time of diagnosis of a life-threatening illness | ||||
| Pain in palliative care: | ||||
| 7. Is pain a vital sign? | ||||
| 8. Severity of pain determines method of pain treatment. | ||||
| 9. Most effective drug for cancer pain is fortwin+phenargan. | ||||
| 10. Use of placebos is appropriate in some types of pain. | ||||
| 11. A patient on morphine does not need NSAIDs (e.g. diclofenac)/ paracetamol. | ||||
| Morphine in palliative care: | ||||
| 12. Causes addiction in terminally ill patients | ||||
| 13. Causes death in all dying patients | ||||
| 14. Always causes nausea/vomiting | ||||
| 15. Patient with lung metastasis having breathlessness must be intubated (in palliative care) | ||||
| 16. Are you aware of problems and practical care of patient with colostomy? | ||||
| 17. Oxygen supplementation may help in last difficult breaths. | ||||
| Communication of prognosis: | ||||
| 18. Prognosis should always be clearly communicated | ||||
| 19. Prognosis should only be informed to family members | ||||
| Resuscitation in cancer patients: | ||||
| 20. Resuscitation must always be performed if a patient is crashing irrespective of advanced metastatic cancer. | ||||
| 21. Patients (if possible) and relatives both should always be involved in ‘Do Not Attempt Resuscitation (DNAR/DNR)’ decision making. | ||||
| Psycho-socio-spiritual issues: | ||||
| 22. Role of nurses is to take care of physical aspect of disease only, psychological issues must be dealt by psychiatrist or other professionals. | ||||
| 23. Role of nurses is to take care of physical aspect of disease only, social issues must be dealt by social worker or other professionals. | ||||
| Bereavement care: | ||||
| 24. Do you know what bereavement is? | ||||
| 25. Are you aware of concept of bereavement care? | ||||
PCKQ-B: Palliative Care Knowledge Questionnaire -Basic
| Demographic Data |
|---|
| Age |
| Gender : Male Female Others |
| Marital status Single/married/other |
| Education B. Sc. GNM Post-graduation Other |
| Clinical experience (after graduation) |
| Place of work |
| Job position |
| Department of work |
| Duration of working in the institution |
| Any experience in palliative care |
| Number of terminally ill cancer patients ever cared for |
| None 1 to 10 10 to 50 50 to 100 ˃100 |
| Number of cancer patients ever cared for |
| None 1 to 10 10 to 50 50 to 100 ˃100 |
| Participation in educational activities related to palliative care. Yes/No. If Yes, name and duration of course/CME: |
| Is there a palliative care physician in your institute? |