Literature DB >> 35665870

Setting Families Up for Success: A Pilot Study of a Toolkit to Enhance the Autism Spectrum Disorder Diagnostic Evaluation Process.

Rachel Haine-Schlagel1,2, Christina Corsello3, Barbara Caplan4,5, Hilary Gould5, Lauren Brookman-Frazee4,5,6.   

Abstract

Families of children with autism spectrum disorder (ASD) face challenges engaging in services following diagnosis. This study: (1) developed and implemented a toolkit to tailor ASD evaluation feedback to families' needs, and (2) evaluated caregiver and provider perceptions of the toolkit. Focus groups with providers (N = 11) informed toolkit development. Seven providers participated in pilot training and implementation. Provider and caregiver toolkit perceptions were assessed using interviews, surveys, and a fidelity checklist. Toolkit strategies reflect focus group themes. Provider and caregiver ratings suggest the initial feasibility, acceptability, and utility of the toolkit. This toolkit may be feasible to implement in community settings and may increase caregiver satisfaction, though further refinements are needed to support service connection.
© 2022. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.

Entities:  

Keywords:  ASD; Caregivers; Diagnostic evaluation; Linkage; Services

Year:  2022        PMID: 35665870     DOI: 10.1007/s10803-022-05601-3

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  23 in total

1.  BUILDING A RESEARCH-COMMUNITY COLLABORATIVE TO IMPROVE COMMUNITY CARE FOR INFANTS AND TODDLERS AT-RISK FOR AUTISM SPECTRUM DISORDERS.

Authors:  Lauren Brookman-Frazee; Aubyn C Stahmer; Karyn Lewis; Joshua D Feder; Sarah Reed
Journal:  J Community Psychol       Date:  2012-08

2.  A mixed-methods process evaluation of Family Navigation implementation for autism spectrum disorder.

Authors:  Sarabeth Broder-Fingert; Sarah Qin; Julia Goupil; Jessica Rosenberg; Marilyn Augustyn; Nate Blum; Amanda Bennett; Carol Weitzman; James P Guevara; Ada Fenick; Michael Silverstein; Emily Feinberg
Journal:  Autism       Date:  2018-11-08

Review 3.  Behavioral interventions in children and adolescents with autism spectrum disorder: a review of recent findings.

Authors:  Geraldine Dawson; Karen Burner
Journal:  Curr Opin Pediatr       Date:  2011-12       Impact factor: 2.856

4.  Child and Family Characteristics that Predict Autism Spectrum Disorder Specialty Clinic Appointment Attendance and Alignment with Providers.

Authors:  Gazi F Azad; Vini Singh; Luke Kalb; Melanie Pinkett-Davis; Rebecca Landa
Journal:  J Autism Dev Disord       Date:  2019-08

Review 5.  A meta-synthesis of how parents of children with autism describe their experience of advocating for their children during the process of diagnosis.

Authors:  Kobie Boshoff; Deanna Gibbs; Rebecca L Phillips; Louise Wiles; Lisa Porter
Journal:  Health Soc Care Community       Date:  2018-12-12

6.  Access to specialty medical care for children with mental retardation, autism, and other special health care needs.

Authors:  Marty Wyngaarden Krauss; Stephen Gulley; Mark Sciegaj; Nora Wells
Journal:  Ment Retard       Date:  2003-10

7.  Modeling the information preferences of parents of children with mental health problems: a discrete choice conjoint experiment.

Authors:  Charles E Cunningham; Ken Deal; Heather Rimas; Don H Buchanan; Michelle Gold; Katherine Sdao-Jarvie; Michael Boyle
Journal:  J Abnorm Child Psychol       Date:  2008-05-15

8.  Promoting the Development of Adaptive Expertise: Exploring a Simulation Model for Sharing a Diagnosis of Autism With Parents.

Authors:  Anne Kawamura; Maria Mylopoulos; Angela Orsino; Elizabeth Jimenez; Nancy McNaughton
Journal:  Acad Med       Date:  2016-11       Impact factor: 6.893

9.  Advancing a conceptual model of evidence-based practice implementation in public service sectors.

Authors:  Gregory A Aarons; Michael Hurlburt; Sarah McCue Horwitz
Journal:  Adm Policy Ment Health       Date:  2011-01

10.  Leadership and organizational change for implementation (LOCI): a randomized mixed method pilot study of a leadership and organization development intervention for evidence-based practice implementation.

Authors:  Gregory A Aarons; Mark G Ehrhart; Lauren R Farahnak; Michael S Hurlburt
Journal:  Implement Sci       Date:  2015-01-16       Impact factor: 7.327

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