Jaclyn Megan Sions1, Maureen Donohoe, Emma Haldane Beisheim-Ryan, Ryan Todd Pohlig, Tracy Michele Shank, Louise Reid Nichols. 1. Department of Physical Therapy (Drs Sions and Beisheim-Ryan and Ms Shank), University of Delaware, Newark, Delaware; Therapeutic and Rehabilitative Services Department (Dr Donohoe) and Orthopedics Department (Dr Nichols), Nemours Alfred I. duPont Hospital for Children, Wilmington, Delaware; VA Eastern Colorado Geriatric Research, Education, and Clinical Center (Dr Beisheim-Ryan), VA Eastern Colorado Health Care System, Aurora, Colorado; Biostatistics Core (Dr Pohlig), University of Delaware, Newark, Delaware.
Abstract
PURPOSE: Primary study objectives were to ( a ) characterize pain and explore differences between adolescents and adults with arthrogryposis multiplex congenita (AMC) and ( b ) evaluate associations between pain-related outcomes and mobility. METHODS: People who can walk and with AMC completed pain-related questionnaires. RESULTS: Sixty-three participants (28 adolescents and 35 young adults) were recruited. Pain was reported in the past week by 81% of participants; intensity ratings were similar between age groups. Per the McGill Pain Questionnaire, pain severity was significantly lower among adolescents. Adults had a greater number of painful regions compared with adolescents. Greater 7-day average pain intensity, McGill Pain Questionnaire scores, and number of painful regions were associated with reduced functional mobility. CONCLUSIONS: As most adolescents and young adults with AMC have at least mild pain, and pain is associated with mobility, future longitudinal investigations of pain and its functional consequences are warranted.
PURPOSE: Primary study objectives were to ( a ) characterize pain and explore differences between adolescents and adults with arthrogryposis multiplex congenita (AMC) and ( b ) evaluate associations between pain-related outcomes and mobility. METHODS: People who can walk and with AMC completed pain-related questionnaires. RESULTS: Sixty-three participants (28 adolescents and 35 young adults) were recruited. Pain was reported in the past week by 81% of participants; intensity ratings were similar between age groups. Per the McGill Pain Questionnaire, pain severity was significantly lower among adolescents. Adults had a greater number of painful regions compared with adolescents. Greater 7-day average pain intensity, McGill Pain Questionnaire scores, and number of painful regions were associated with reduced functional mobility. CONCLUSIONS: As most adolescents and young adults with AMC have at least mild pain, and pain is associated with mobility, future longitudinal investigations of pain and its functional consequences are warranted.
Authors: Marjolijn J Sorbi; Madelon L Peters; Dieta A Kruise; Cora J M Maas; Jan J Kerssens; Peter F M Verhaak; Jozien M Bensing Journal: Clin J Pain Date: 2006-01 Impact factor: 3.442