Literature DB >> 35476767

Refocusing the Conduct of Maternal Mortality Research in Black Pregnant Populations: Ethical Considerations.

Alexis Dunn Amore1.   

Abstract

INTRODUCTION: Maternal morbidity and mortality rates are on the rise in the United States, particularly among Black populations. Recently, there has been an uptick in research funding to identify and address root causes, particularly among at-risk groups. However, given the historical trauma experienced by Black populations in research settings, novel approaches built firmly on ethical principles and grounded in a framework of reproductive justice are necessary to minimize harm and center the research process on maintaining the dignity and respect of research participants.
METHODS: Ethical principles as outlined by the American Nurses Association, Black Mamas Matter Alliance, and federal research guidelines are reviewed within the context of conducting maternal mortality-focused research. In addition, community developed research frameworks and methodologies are presented and discussed within the research context.
CONCLUSIONS: Black pregnant people have reported mistreatment during clinical encounters; therefore, intentional protections to promote safety must be considered in the research setting. Ethical principles must be considered when designing and implementing research initiatives focused on addressing maternal mortality risk in Black communities.
Copyright © 2022 Wolters Kluwer Health, Inc. All rights reserved.

Entities:  

Mesh:

Year:  2022        PMID: 35476767      PMCID: PMC9060348          DOI: 10.1097/JPN.0000000000000646

Source DB:  PubMed          Journal:  J Perinat Neonatal Nurs        ISSN: 0893-2190            Impact factor:   2.522


  24 in total

1.  The Nursing Code of Ethics: Its Value, Its History.

Authors:  Beth Epstein; Martha Turner
Journal:  Online J Issues Nurs       Date:  2015-05-31

2.  Community-based participatory research contributions to intervention research: the intersection of science and practice to improve health equity.

Authors:  Nina Wallerstein; Bonnie Duran
Journal:  Am J Public Health       Date:  2010-02-10       Impact factor: 9.308

3.  The medical ethics of Dr J Marion Sims: a fresh look at the historical record.

Authors:  L L Wall
Journal:  J Med Ethics       Date:  2006-06       Impact factor: 2.903

Review 4.  The Impact of Racism and Midwifery's Lack of Racial Diversity: A Literature Review.

Authors:  Jyesha Wren Serbin; Elizabeth Donnelly
Journal:  J Midwifery Womens Health       Date:  2016-11       Impact factor: 2.388

5.  The Ethics of Perinatal Care for Black Women: Dismantling the Structural Racism in "Mother Blame" Narratives.

Authors:  Karen A Scott; Laura Britton; Monica R McLemore
Journal:  J Perinat Neonatal Nurs       Date:  2019 Apr/Jun       Impact factor: 1.638

6.  Uprooting Racism: The Role of Nurses in Cultivating Improved Maternal Outcomes for Black and African American Women.

Authors:  Jacquelyn McMillian-Bohler; Angela Richard-Eaglin
Journal:  Creat Nurs       Date:  2021-02-01

7.  More than Tuskegee: understanding mistrust about research participation.

Authors:  Darcell P Scharff; Katherine J Mathews; Pamela Jackson; Jonathan Hoffsuemmer; Emeobong Martin; Dorothy Edwards
Journal:  J Health Care Poor Underserved       Date:  2010-08

8.  A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting.

Authors:  Linda S Franck; Monica R McLemore; Norlissa Cooper; Baylee De Castro; Anastasia Y Gordon; Schyneida Williams; Shanell Williams; Larry Rand
Journal:  J Vis Exp       Date:  2018-01-12       Impact factor: 1.355

9.  The Giving Voice to Mothers study: inequity and mistreatment during pregnancy and childbirth in the United States.

Authors:  Saraswathi Vedam; Kathrin Stoll; Tanya Khemet Taiwo; Nicholas Rubashkin; Melissa Cheyney; Nan Strauss; Monica McLemore; Micaela Cadena; Elizabeth Nethery; Eleanor Rushton; Laura Schummers; Eugene Declercq
Journal:  Reprod Health       Date:  2019-06-11       Impact factor: 3.223

10.  The Cycle to Respectful Care: A Qualitative Approach to the Creation of an Actionable Framework to Address Maternal Outcome Disparities.

Authors:  Carmen L Green; Susan L Perez; Ashlee Walker; Tracey Estriplet; S Michelle Ogunwole; Tamika C Auguste; Joia A Crear-Perry
Journal:  Int J Environ Res Public Health       Date:  2021-05-06       Impact factor: 3.390

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