Literature DB >> 35476620

What Matters to Whom: Patient and Public Involvement in Research.

Karen J Gibbins1, Jamie O Lo.   

Abstract

We outline a call to action for reproductive health researchers to include patient and public involvement (PPI) in research. PPI prioritizes the patient perspective from study design through dissemination of results which centers the people research intends to serve. PPI highlights the patient as an expert in their own condition. PPI that includes groups harmed by health care disparities can draw attention to these harms and generate novel approaches to address them. Numerous frameworks exist for the use of PPI in research. Because obstetrics and gynecology conditions can be particularly sensitive, PPI is crucial in our field.
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Year:  2022        PMID: 35476620      PMCID: PMC9060323          DOI: 10.1097/GRF.0000000000000694

Source DB:  PubMed          Journal:  Clin Obstet Gynecol        ISSN: 0009-9201            Impact factor:   1.966


  27 in total

1.  Can research development bursaries for patient and public involvement have a positive impact on grant applications? A UK-based, small-scale service evaluation.

Authors:  Dawn-Marie Walker; Raksha Pandya-Wood
Journal:  Health Expect       Date:  2013-09-19       Impact factor: 3.377

2.  EVALUATING COMMUNITY ENGAGEMENT IN RESEARCH: QUANTITATIVE MEASURE DEVELOPMENT.

Authors:  Melody S Goodman; Vetta L Sanders Thompson; Cassandra Arroyo Johnson; Renee Gennarelli; Bettina F Drake; Pravleen Bajwa; Maranda Witherspoon; Deborah Bowen
Journal:  J Community Psychol       Date:  2016-12-13

3.  ACOG Committee Opinion No. 729: Importance of Social Determinants of Health and Cultural Awareness in the Delivery of Reproductive Health Care.

Authors:  Veronica Ades; Brian Goddard; Savannah Pearson Ayala; Sonya Chemouni Bach; Stephanie X Wu
Journal:  Obstet Gynecol       Date:  2018-06       Impact factor: 7.661

4.  Caring for Patients Who Have Experienced Trauma: ACOG Committee Opinion Summary, Number 825.

Authors: 
Journal:  Obstet Gynecol       Date:  2021-04-01       Impact factor: 7.661

5.  Consulting parents about the design of a randomized controlled trial of osteopathy for children with cerebral palsy.

Authors:  Vanessa Edwards; Katrina Wyatt; Stuart Logan; Nicky Britten
Journal:  Health Expect       Date:  2011-01-18       Impact factor: 3.377

6.  Future Research in Graves' Orbitopathy: From Priority Setting to Trial Design Through Patient and Public Involvement.

Authors:  Petros Perros; Colin M Dayan; A Jane Dickinson; Daniel G Ezra; Janis L Hickey; Christoph Hintschisch; George Kahaly; John H Lazarus; Marian Ludgate; Beate Bartès; Caroline J MacEwen; Anna L Mitchell; Dan Morris; Nicole O'Connor; Simon H Pearce; Geoffrey E Rose; Mario Salvi; Wilmar M Wiersinga; Alyson Williamson
Journal:  Thyroid       Date:  2015-10-14       Impact factor: 6.568

Review 7.  Patient engagement in research: a systematic review.

Authors:  Juan Pablo Domecq; Gabriela Prutsky; Tarig Elraiyah; Zhen Wang; Mohammed Nabhan; Nathan Shippee; Juan Pablo Brito; Kasey Boehmer; Rim Hasan; Belal Firwana; Patricia Erwin; David Eton; Jeff Sloan; Victor Montori; Noor Asi; Abd Moain Abu Dabrh; Mohammad Hassan Murad
Journal:  BMC Health Serv Res       Date:  2014-02-26       Impact factor: 2.655

8.  Reporting and appraising the context, process and impact of PPI on contributors, researchers and the trial during a randomised controlled trial - the 3D study.

Authors:  Cindy Mann; Simon Chilcott; Katrina Plumb; Edmund Brooks; Mei-See Man
Journal:  Res Involv Engagem       Date:  2018-05-14

9.  Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot.

Authors:  Trisha Greenhalgh; Lisa Hinton; Teresa Finlay; Alastair Macfarlane; Nick Fahy; Ben Clyde; Alan Chant
Journal:  Health Expect       Date:  2019-04-22       Impact factor: 3.377

10.  How to incorporate patient and public perspectives into the design and conduct of research.

Authors:  Pat Hoddinott; Alex Pollock; Alicia O'Cathain; Isabel Boyer; Jane Taylor; Chris MacDonald; Sandy Oliver; Jenny L Donovan
Journal:  F1000Res       Date:  2018-06-18
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