| Literature DB >> 35396821 |
Amy Barr1, Elizabeth Coates1, Ellen Kingsley2, Gina Gomez de la Cuesta3, Katie Biggs1, Ann Le Couteur4, Barry Wright5.
Abstract
Many autistic children and young people need extra support with social skills. Social skills programmes, such as LEGO® based therapy (LBT), are commonly used to help with these difficulties. The aim of this study was to examine the acceptability of LBT using qualitative interviews and questionnaires with facilitators and parents/guardians on behalf of autistic children and young people. Acceptability was measured in line with constructs of the Theoretical Framework of Acceptability. Questionnaires were analyzed descriptively and between group comparisons were undertaken using the Mann-Whitney U Test. Telephone interviews were undertaken with a sub-sample of facilitators. All interviews were recorded, transcribed verbatim, and framework analysis was performed by two researchers supported by NVivo. The questionnaire response rate was 80% for facilitators and 77% for parents/guardians. Overall acceptability, measured on a 1-5 (minimum-maximum) scale, was high for both facilitators and parents/guardians with a median (range) of 5 (4-5) and 4 (3-5), respectively. Facilitators rated the acceptability of the programme significantly higher overall than parents (p < 0.001). Facilitators reported that participants and wider school staff viewed the programme positively. They observed improvements in communication and social skills during the sessions. Potential barriers to programme delivery, such as resources and staff schedules, were identified but facilitators reported that these challenges did not outweigh the benefits. There is increasing emphasis on the role of schools in seeking to improve social outcomes for autistic children therefore this high degree of acceptability makes this an attractive school-based programme for schools, autistic children and their families. LAYEntities:
Keywords: LEGO®; autism; play brick therapy; qualitative research; questionnaires; social communication
Mesh:
Year: 2022 PMID: 35396821 PMCID: PMC9324108 DOI: 10.1002/aur.2725
Source DB: PubMed Journal: Autism Res ISSN: 1939-3806 Impact factor: 4.633
Demographic characteristics of facilitators and parents/guardians
| Survey respondents | Interview participants | ||
|---|---|---|---|
| Characteristic | Parents/guardians ( | Facilitators ( | Facilitators ( |
| Median age [range] | 38 [28–54] | 43 [20–62] | 48 [≤25–≥55 |
| Gender | |||
| Female | 87 (89%) | 55 (85%) | 14 (88%) |
| Male | 8 (8%) | 9 (14%) | 2 (13%) |
| Not specified | 3 (3%) | 1 (2%) | 0 (0%) |
| Ethnicity | |||
| English/Welsh/Scottish/ | 81 (83%) | 60 (92%) | ≥80% |
| Northern Irish/British | |||
| Other ethnic group | 16 (16%) | 5 (8%) |
|
| Prefer not to say | 1 (1%) | 0 (0%) |
|
| Relationship to child | |||
| Mother/father | 97 (99%) | ||
| Other person with parental responsibility | 1 (1%) | ||
| Role | |||
| Teaching assistant | 41 (63%) | 10 (63%) | |
| Other | 24 (37%) | 6 (37%) | |
| Median years' of experience [range] | 11 [1–39] | 14 [1–25] |
Includes: Teacher, learning mentor and SENCO.
Approximation and/or suppression due to low numbers.
Acceptability of LEGO®‐based therapy intervention to facilitators and parents/guardians – All participants
| Facilitators ( | Facilitators ( | ||||
|---|---|---|---|---|---|
| Acceptability construct | Median (range) | Parents ( |
| % reporting 4 or 5 | Parents ( |
| Affective attitude | 5 (4–5) | 5 (4–5) | 100 | 91.8 | |
| Burden | 5 (4–5) | 3 (2.75–4) | 86.2 | 49.0 | |
| Ethicality | 4 (4–5) | 4 (4–5) | 93.9 | 78.4 | |
| Intervention coherence | 5 (5–5) | 3 (3–4) | 93.9 | 46.8 | |
| Opportunity costs | 5 (4–5) | 4 (4–5) | 95.4 | 83.5 | |
| Perceived effectiveness – General | 4 (4–5) | 4 (3–5) | 92.2 | 69.1 | |
| Perceived effectiveness – Social skills | 4 (4–5) | 4 (3–4) | 90.6 | 66.0 | |
| Perceived effectiveness – Academic confidence | 5 (4–5) | 4 (4–5) | 89.2 | 75.3 | |
| Perceived effectiveness – Communication skills | 5 (4–5) | 4 (4–5) | 95.4 | 84.5 | |
| Perceived effectiveness – Behavior | 4 (4–5) | 4 (3–4) | 73.4 | 54.6 | |
| Perceived effectiveness – Overall | 5 (4–5) | 4 (3–5) | 87.7 | 69.9 | |
| Self‐efficacy | 5 (4–5) | 4 (4–5) | 100 | 79.6 | |
| Overall acceptability | 5 (4–5) | 4 (3–5) | <0.001 | 91.6 | 70.8 |
Median (range).
Mann Whitney U Test.
% rating intervention positively (pooled Likert scores 4 and 5). Higher scores indicate a greater level of acceptability.
Summary of open‐ended qualitative responses on acceptability questionnaire – Facilitators (n = 45)
| Summary | ||
|---|---|---|
| 1. Enjoyed LEGO®‐based therapy | 1.1 Children and young people | Fifteen facilitators said that the children and young people involved in LEGO®‐based therapy enjoyed their sessions and looked forward to them every week |
| 1.2 Interventionist | Twenty‐two of the facilitators said that, despite certain challenges, LEGO®‐based therapy was a rewarding and useful intervention to run, and that they enjoyed delivering LBT sessions in their schools | |
| 2. Benefits | 2.1 During sessions | Eighteen facilitators said that LEGO®‐based therapy has clear benefits, and they have seen improvements in communication, social skills, & confidence during the sessions. Three facilitators did say that, although they had seen the benefits during the sessions, these might not be reflected in the classroom |
| 2.2 Wider benefits | Eight of the facilitators said that their children and young people had been more confident and had improved communication in the wider school setting. Two facilitators also said that they had seen a positive effect in children and young people without ASD, including those with challenging behaviors | |
| 3. Resources | Two facilitators stated that they had trouble finding a suitable space for some of their sessions, as space in their schools was lacking. Two interventionist said that LEGO®‐based therapy was easy to set up and deliver | |
| 4. Challenges | Five of the facilitators found LEGO®‐based therapy challenging to run at times. One interventionist said that having two children and young people with ASD in the group was tough, as they needed a lot of prompting to communicate, whereas others found that they struggled to find a suitable space to hold the sessions. One interventionist said that their children and young people struggled with finding the necessary language to describe the pieces, and another said that their children and young people lost motivation after seven or eight sessions, making the final sessions more difficult to run | |
| 5. Implementation | Five facilitators said that their school has decided to continue with LEGO®‐based therapy, and are trialing it with more groups, or that they have rolled it out across their whole school. One school said they will be implementing this over a half term (6 weeks), then revisiting at a later date, rather than delivering it as a 12 weeks block | |
| 6. Recommendations | One interventionist said that her group would have liked to have done more than 12 sessions, however, another said that 12 weeks was too long, and that they would possibly split this up into two blocks in the future. Three secondary school facilitators said that LEGO®‐based therapy may be more suitable in a primary setting rather than secondary, and that secondary schools needed more complex sets for it to be effective. One of the facilitators said that they would include more free‐style in future groups, to allow children and young people to be more creative, and another said that they would only use children and young people in the same year group in the future | |
Abbreviation: LBT, LEGO® based therapy.
Summary of open‐ended qualitative responses on acceptability questionnaire – Parents/guardians (n = 44)
| Summary | ||
|---|---|---|
| 1. Enjoyed LEGO®‐based therapy | Twenty‐seven parents/guardians stated that their children and young people enjoyed taking part in LEGO®‐based therapy. Eleven parents/guardians said they had seen noticeable changes in their children and young people's behavior, communication, and social skills, however, seven parents/guardians said that, although their children and young people enjoyed the session, they did not see any impact at home. One parent suggested this may be because it is ‘too early’ to see any significant changes | |
| 2. Benefits | 2.1 Social skills | Seven parents/guardians felt that LEGO®‐based therapy has improved their children and young people's social skills, as it helped them with making new friends and interacting with other children and young people in class |
| 2.2 Communication | Eight parents/guardians noticed that LEGO®‐based therapy had a positive impact on their children and young people's communication with their peers. Two parents/guardians also said that their children and young people has been more open and spoken about their feelings more at home | |
| 2.3 Confidence | Two parents/guardians noticed that their children and young people had grown in confidence after taking part in LEGO®‐based therapy sessions | |
| 2.4 Calmness | One parent stated that there is more relaxed and calmer since taking part in LEGO®‐based therapy | |
| 3. Children and young people/parent would like to continue LEGO®‐based therapy | Three parents/guardians would have liked their children and young people to continue with LEGO®‐based therapy because they have enjoyed it so much, and to continue to develop their skills further and apply these at home | |
| 4. Feedback from school | Four parents/guardians found that they were not sure how their children and young people got on during LEGO®‐based therapy, as they received little or no feedback from the school | |
| 5. Didn't enjoy LEGO®‐based therapy | Three of the parents/guardians stated that their children and young people did not enjoy LEGO®‐based therapy due to having lots of previous building experience, or wanting more structure to the sessions | |