Katherine A Traino1, Caroline M Roberts1, Rachel S Fisher1, Alexandria M Delozier1, Paul F Austin2, Laurence S Baskin3, Yee-Ming Chan4, Earl Y Cheng5, David A Diamond6, Allyson J Fried7, Bradley Kropp8, Yegappan Lakshmanan9, Sabrina Z Meyer7, Theresa Meyer5, Cindy Buchanan10, Blake W Palmer11, Alethea Paradis12, Kristy J Reyes11, Amy Tishelman6,13, Pierre Williot7, Cortney Wolfe-Christensen11, Elizabeth B Yerkes5, Larry L Mullins1, Amy B Wisniewski1. 1. Center for Pediatric Psychology, Psychology Department, Oklahoma State University, Stillwater, OK. 2. Department of Urology, Texas Children's Hospital, Houston, TX. 3. Department of Urology, University of California San Francisco Medical Center, San Francisco, CA. 4. Division of Endocrinology, and Harvard Medical School, Boston Children's Hospital, Boston, MA. 5. Department of Urology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL. 6. Department of Urology, Harvard Medical School, Boston Children's Hospital, Boston, MA. 7. Pediatric Urology of Western New York, John R. Oishei Children's Hospital, Buffalo, NY. 8. OKC Kids Urology, PLLC., Oklahoma City, OK. 9. Department of Urology, Children's Hospital of Michigan, Detroit, MI. 10. Department of Psychiatry, University of Colorado Anschutz Medical Campus, Aurora, CO. 11. Department of Pediatric Urology, Cook Children's Medical Center, Fort Worth, TX. 12. Division of Urologic Surgery, St. Louis Children's Hospital, St. Louis, MO. 13. Department of Psychiatry, Boston Children's Hospital, Boston College, Boston, MA.
Abstract
OBJECTIVE: The impact of parent-reported stigma due to their child's disorder/difference of sex development (DSD) on parent psychosocial adjustment is poorly understood. In other pediatric populations, perceived interference of medical conditions into daily activities (i.e., illness intrusiveness ) mediates the relationship of stigma to adjustment. This study assessed relationships between parent-focused and child-focused stigma → illness intrusiveness → depressive and anxious symptoms . Exploratory analyses sought to identify patient characteristics associated with stigma. METHOD: Caregivers (59 women and 43 men) of 63 children diagnosed with a DSD up to age 4 years completed measures of demographics, parent-focused and child-focused stigma, illness intrusiveness, and depressive and anxious symptoms. RESULTS: Increased parent-focused and child-focused stigma were associated with increased illness intrusiveness, which, in turn, was associated with increased depressive and anxious symptoms for parents nested within dyads. Among children with DSD family histories, parents reported greater child-focused stigma. CONCLUSION: Parents who experience DSD-related stigma report greater interference of their child's DSD into their daily activities, which is associated with poorer psychosocial adjustment. Findings support developing clinical interventions related to parents' perceptions of stigma and illness intrusiveness to improve parent adjustment.
OBJECTIVE: The impact of parent-reported stigma due to their child's disorder/difference of sex development (DSD) on parent psychosocial adjustment is poorly understood. In other pediatric populations, perceived interference of medical conditions into daily activities (i.e., illness intrusiveness ) mediates the relationship of stigma to adjustment. This study assessed relationships between parent-focused and child-focused stigma → illness intrusiveness → depressive and anxious symptoms . Exploratory analyses sought to identify patient characteristics associated with stigma. METHOD: Caregivers (59 women and 43 men) of 63 children diagnosed with a DSD up to age 4 years completed measures of demographics, parent-focused and child-focused stigma, illness intrusiveness, and depressive and anxious symptoms. RESULTS: Increased parent-focused and child-focused stigma were associated with increased illness intrusiveness, which, in turn, was associated with increased depressive and anxious symptoms for parents nested within dyads. Among children with DSD family histories, parents reported greater child-focused stigma. CONCLUSION: Parents who experience DSD-related stigma report greater interference of their child's DSD into their daily activities, which is associated with poorer psychosocial adjustment. Findings support developing clinical interventions related to parents' perceptions of stigma and illness intrusiveness to improve parent adjustment.
Authors: Cortney Wolfe-Christensen; David A Fedele; Larry L Mullins; Yegappan Lakshmanan; Amy B Wisniewski Journal: J Pediatr Endocrinol Metab Date: 2014-07 Impact factor: 1.634
Authors: Marissa N Baudino; Megan N Perez; Caroline M Roberts; Clayton S Edwards; Kaitlyn L Gamwell; Natalie G Keirns; Jeanne Tung; Noel J Jacobs; John E Grunow; Larry L Mullins; John M Chaney Journal: J Pediatr Psychol Date: 2021-01-20
Authors: Caroline M Roberts; Marissa N Baudino; Kaitlyn L Gamwell; Clayton S Edwards; Katherine A Traino; Jeanne Tung; John E Grunow; Noel J Jacobs; Larry L Mullins; John M Chaney Journal: J Pediatr Gastroenterol Nutr Date: 2021-03-01 Impact factor: 2.839