| Literature DB >> 35349014 |
Joya G Chrystal1, Karen E Dyer2, Cynthia E Gammage2, Ruth S Klap2,3, Diane V Carney4, Susan M Frayne4,5, Elizabeth M Yano2,6, Alison B Hamilton2,3.
Abstract
BACKGROUND: Meaningful engagement of patients in health research has the potential to increase research impact and foster patient trust in healthcare. For the past decade, the Veterans Health Administration (VA) has invested in increasing Veteran engagement in research.Entities:
Keywords: Veterans; patient engagement; research engagement; vulnerable populations; women’s health
Mesh:
Year: 2022 PMID: 35349014 PMCID: PMC8993961 DOI: 10.1007/s11606-021-07126-4
Source DB: PubMed Journal: J Gen Intern Med ISSN: 0884-8734 Impact factor: 6.473
Summary of interview guide
| Experiences with/knowledge of research | |
| Attitudes/beliefs regarding engagement in research | |
| Preferred study role and level of engagement | |
| Practical issues (e.g., barriers, facilitators to participation) | |
| Interest in research engagement | |
| Engagement in women Veteran–related activities | |
| Views of women’s health research priorities in VA |
VA Women's Health stakeholders (WH-PCPs and administrators)
| WH-PCPs ( | Administrators ( | |
|---|---|---|
| Great Lakes | 13.6% (3) | 16.7% (1) |
| South | 9.1% (2) | 33.3% (2) |
| Pacific Northwest | 27.3% (6) | 16.7% (1) |
| West | 27.3% (6) | 0.0% (0) |
| Midwest | 22.7% (5) | 33.3% (2) |
| Male | 4.5% (1) | 33.3% (2) |
| Female | 95.5% (21) | 66.7% (4) |
Women Veteran demographics (N=31)
| Great Lakes | 22.6% (7) |
| South | 12.9% (4) |
| Pacific Northwest | 22.6% (7) |
| West | 19.3% (6) |
| Midwest | 22.6% (7) |
| Mean (SD) | 55.6 (13.0) |
| Range | 25-86 |
| White | 45.2% (14) |
| African American | 32.2% (10) |
| Other | 9.7% (3) |
| Unknown | 12.9% (4) |
| Married, partnered | 25.8% (8) |
| Single (including divorced, separated) | 64.5% (20) |
| Unknown | 9.7% (3) |
| Yes | 41.9% (13) |
| No | 48.4% (15) |
| Unknown | 9.7% (3) |
| 1 | 3.2% (1) |
| 2 | 19.4% (6) |
| 3 | 12.9% (4) |
| 4 | 3.2% (1) |
| 5 | 3.2% (1) |
| Army | 29.0% (15) |
| Air Force | 48.4% (9) |
| Navy | 16.1% (5) |
| Coast Guard | 3.2% (1) |
| Reserve/National Guard | 3.2% (1) |
| During Vietnam Era | 9.7% (3) |
| During Post-Vietnam Era | 41.9% (13) |
| Between Persian Gulf War and 9/11 | 3.2% (1) |
| During September 11, 2001, to present | 16.1% (5) |
| Extended service across multiple eras | 19.4% (6) |
| Unknown | 9.7% (3) |
| Mean (SD) | 8.14 (7.22) |
| Range | 1.25–32.00 |
Barriers to and facilitators of women Veterans’ research engagement
| Identified by women Veterans and WH-PCPs/administrators | Identified by women Veterans only | Identified by WH-PCPs/administrators only | |
|---|---|---|---|
• Unawareness of opportunities • Distrust of research • Competing priorities • Confidentiality concerns | • Reluctance to discuss military experiences • Belief that participation will not yield change | • Environmental concerns • Mental health distress | |
• Utilization of patient-facing portals of the electronic health record • Warm hand-offs from provider/staff • Accessible research registry • Communicate potential research impact | • Outreach (e.g., social media, Veteran events) | • Research ambassadors • Provide Veterans with research findings • Trauma-informed research |