Claudia Delgado-Corcoran1,2, Sarah E Wawrzynski3,4, Kelly J Mansfield4, Brian Flaherty1, Danielle D DeCourcey5, Dominic Moore2, Lawrence J Cook1, Christina K Ullrich6,7,8, Lenora M Olson1. 1. Division of Critical Care, Department of Pediatrics, University of Utah, Salt Lake City, Utah, USA. 2. Division of Pediatric Palliative Care, Department of Pediatrics, University of Utah, Salt Lake City, Utah, USA. 3. Pediatric Critical Care Services, Primary Children's Hospital, Intermountain Healthcare, Salt Lake City, Utah, USA. 4. College of Nursing, University of Utah, Salt Lake City, Utah, USA. 5. Division of Medical Critical Care, Department of Pediatrics, Boston Children's Hospital, Boston, Massachusetts, USA. 6. Division of Pediatric Palliative Care, Dana-Farber Cancer Institute, Boston, Massachusetts, USA. 7. Division of Hematology/Oncology, Boston Children's Hospital, Boston, Massachusetts, USA. 8. Department of Pediatrics, Harvard Medical School, Boston, Massachusetts, USA.
Abstract
Background: Pediatric palliative care (PPC) consultation is infrequent among children on extracorporeal membrane oxygenation (ECMO). Objective: Investigate intensive care unit (ICU) team members' perceptions of automatic PPC consultation for children on ECMO in an ICU in the United States. Methods: Cross-sectional survey assessing benefits, barriers to PPC, and consultation processes. Results: Of 291 eligible respondents, 48% (n = 140) completed the survey and 16% (n = 47) answered an open-ended question. Benefits included support in decision-making (n = 98; 70%) and identification of goals of care (n = 89; 64%). Barriers included perception of giving up on families (n = 59; 42%) and poor acceptability by other team members (n = 58; 41%). Respondents endorsed communication with the primary ICU team before (n = 122; 87%) and after (n = 129; 92%) consultation. Open-ended responses showed more positive (79% vs. 13%) than negative statements. Positive statements reflected on expanding PPC to other critically-ill children where negative statements revealed unrecognized value in PPC. Conclusions: Results demonstrate opportunities for education about the scope of PPC and improvements in PPC delivery.
Background: Pediatric palliative care (PPC) consultation is infrequent among children on extracorporeal membrane oxygenation (ECMO). Objective: Investigate intensive care unit (ICU) team members' perceptions of automatic PPC consultation for children on ECMO in an ICU in the United States. Methods: Cross-sectional survey assessing benefits, barriers to PPC, and consultation processes. Results: Of 291 eligible respondents, 48% (n = 140) completed the survey and 16% (n = 47) answered an open-ended question. Benefits included support in decision-making (n = 98; 70%) and identification of goals of care (n = 89; 64%). Barriers included perception of giving up on families (n = 59; 42%) and poor acceptability by other team members (n = 58; 41%). Respondents endorsed communication with the primary ICU team before (n = 122; 87%) and after (n = 129; 92%) consultation. Open-ended responses showed more positive (79% vs. 13%) than negative statements. Positive statements reflected on expanding PPC to other critically-ill children where negative statements revealed unrecognized value in PPC. Conclusions: Results demonstrate opportunities for education about the scope of PPC and improvements in PPC delivery.
Authors: Aaron M Olden; Robert Holloway; Susan Ladwig; Timothy E Quill; Edwin van Wijngaarden Journal: J Pain Symptom Manage Date: 2011-03-27 Impact factor: 3.612
Authors: David Hui; Masanori Mori; Yee-Choon Meng; Sharon M Watanabe; Augusto Caraceni; Florian Strasser; Tiina Saarto; Nathan Cherny; Paul Glare; Stein Kaasa; Eduardo Bruera Journal: Support Care Cancer Date: 2017-07-19 Impact factor: 3.603
Authors: Jeffrey E Lutmer; Lisa Humphrey; Tanya Maria Kempton; Melissa Moore-Clingenpeel; Onsy Ayad Journal: Pediatr Crit Care Med Date: 2016-08 Impact factor: 3.624
Authors: Renee Boss; Judith Nelson; David Weissman; Margaret Campbell; Randall Curtis; Jennifer Frontera; Michelle Gabriel; Dana Lustbader; Anne Mosenthal; Colleen Mulkerin; Kathleen Puntillo; Daniel Ray; Rick Bassett; Karen Brasel; Ross Hays Journal: Pediatr Crit Care Med Date: 2014-10 Impact factor: 3.624
Authors: Laila A Mahmood; Denise Casey; James G Dolan; Ann M Dozier; David N Korones Journal: Pediatr Blood Cancer Date: 2016-05-03 Impact factor: 3.167
Authors: Akash Sharma; Nguyen Tran Minh Duc; Tai Luu Lam Thang; Nguyen Hai Nam; Sze Jia Ng; Kirellos Said Abbas; Nguyen Tien Huy; Ana Marušić; Christine L Paul; Janette Kwok; Juntra Karbwang; Chiara de Waure; Frances J Drummond; Yoshiyuki Kizawa; Erik Taal; Joeri Vermeulen; Gillian H M Lee; Adam Gyedu; Kien Gia To; Martin L Verra; Évelyne M Jacqz-Aigrain; Wouter K G Leclercq; Simo T Salminen; Cathy Donald Sherbourne; Barbara Mintzes; Sergi Lozano; Ulrich S Tran; Mitsuaki Matsui; Mohammad Karamouzian Journal: J Gen Intern Med Date: 2021-04-22 Impact factor: 6.473