| Literature DB >> 35263233 |
Elaine Griffeth, Iman Sharif, Alexandria Caldwell, M Townsend Cooper, Hollyce Tyrrell, Marny Dunlap.
Abstract
BACKGROUND: Low health literacy affects one-third of adults in the United States and can have a negative effect on health behavior and outcomes.Entities:
Mesh:
Year: 2022 PMID: 35263233 PMCID: PMC8919674 DOI: 10.3928/24748307-20220208-01
Source DB: PubMed Journal: Health Lit Res Pract ISSN: 2474-8307
Faculty and Resident Demographics
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| Resident ( | ||||||
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| Year | ||||||
| 1 | 71 (29) | 13 | 14 | 18 | 23 | 1 |
| 2 | 85 (34) | 20 | 14 | 21 | 23 | 6 |
| 3 | 82 (33) | 18 | 20 | 17 | 18 | 4 |
| 4 | 10 (4) | 2 | 3 | 1 | 4 | 0 |
| Missing data | 1 | - | - | - | - | - |
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| Faculty ( | ||||||
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| Years in practice | ||||||
| 0-5 | 27 (18) | 6 | 3 | 9 | 7 | 2 |
| 6-10 | 27 (18) | 7 | 5 | 8 | 7 | 0 |
| >10 | 98 (64) | 28 | 16 | 21 | 28 | 5 |
| Missing data | 1 | - | - | - | - | - |
Note. Nine residents have missing regions.
Northeast (NE) region: Pennsylvania, New York, New Hampshire, and Connecticut; Southeast (SE) region: Virginia, Maryland, Florida, North Carolina, and Alabama; Midwest (MW) region: Missouri, Illinois, and Michigan; Southwest (SW) region: Oklahoma, Kansas, and Texas; West (W) region: California.
Themes from the Qualitative Question: “What Have Been Some Unexpected Challenges in Addressing Health Literacy as Part of Your Practice?”
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| Examples of time barrier | “Time limitations of appointments” |
| “How long it takes, it takes way more time to work with patients with low health literacy than those who have high health literacy; hard to find good handouts in other languages” | |
| “Busy practice. No time to extend the visit to draw pictures, explain several times” | |
| “Time is always a barrier in so many ways. One example: even when trying to model health literacy techniques for residents, I often don't have time to discuss some of the techniques that I had modeled with them, as they hurry off to their next patient” | |
| “Time restraints to use tools such as Teach Back” | |
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| Language | “Language barrier in Spanish-speaking families, teenage or young parents” |
| “Language and cultural barriers” | |
| “The toughest cases are when I have to use a translator for a language that I am not familiar with at all (such as Vietnamese). | |
| I have a very difficult time then determining whether or not the patient/parent is understanding what I am trying to tell them” “Time and language barriers. We don't do anything differently for patients who speak a different language, which I feel is another barrier to navigating the health care system and following directions” | |
| “Language - I do not speak Spanish, we have great phone interpreter systems, but I'm sure things are lost in translation at times” | |
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| Limited training/resources | “Limited resources and training” |
| “Lack of resources of patients with poor health literacy and lack of time that can be spent with patients to address the matter” | |
| “Not enough resources or not knowing what resources to offer” | |
| “Some of our standard handouts are too long. However, I do want families to have access to resources, so I do provide, but not sure how many families use the resources?” | |
| “There are some office practices within our network that don't have syringes and measuring cups to show families how to give the medications” | |
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| Identifying low health literacy | “Patients often find using the portal a challenge if they have poor health literacy, but yet they may not tell us that and we assume they can access information” |
| “Providers basing their ideas about patient “health literacy” on racist preconceptions about intelligence. This leads to “dumbing down” information (rather than translating it) to a degree that functionally withholds important health information from patients and families” | |
| “Addressing health literacy in parents while working with their children” | |
| “Patients/parents are very good at hiding their confusion, especially if a physician acts like they clearly explained everything” | |
| “Often challenging to determine who has low health literacy (as this correlates fairly poorly with overall degree of education)” | |
Themes from the Qualitative Question: “Please Elaborate on An Experience with a Patient/Caregiver Where Health Literacy Was a Barrier and You Felt That It Impacted Care”
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| General literacy or obvious confusion | “A patient did not understand verbal or written instructions. Only diagrams and demonstrations helped. Mom was giving the wrong amount of feedings leading to weight loss of her child” |
| “So many. Just this week I was teaching a mom to not feed her infant rice cereal in the bottle and advised to mix it with formula and feed from spoon. Mom then asked if she should mix the dry formula with the dry cereal and spoon to the baby. It took three tries before she got the idea of mixing formula and making a 'spoonable' consistency” | |
| “A set of illiterate parents made care at the hospital very difficult, likely because they did not fully understand what was occurring with their child” | |
| “We had a mother who could not read the numbers on a thermometer with a newborn infant” | |
| “The most difficult case I have had was with a mother who was deaf, who did not sign very well (according to multiple ASL interpreters) who also did not know how to read. When she came in with a newborn who was not gaining weight, I could not determine how much she was feeding her” | |
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| Indicating understanding when not present | “Mom agreed to (and consented for) circumcision but didn't actually know what the procedure was and after the fact didn't actually want it done” |
| “A patient, who seemed intelligent misunderstood information explained multiple times to her. As a result, she had incorrect understanding about her condition and her treatment course” “So many! I have a patient's mom who is essentially illiterate, and she told me because she felt comfortable, but it wasn't obvious for a bit” | |
| “Mother of a young infant with a serious medical problem, resident said she understood everything. When I got in the room she was just ‘yessing’ us; but when I said, ‘I'd like to make sure I was clear enough, could you tell me how you will manage his [condition]’ she was really not able to until we broke it down, wrote it down, reviewed, and rechecked” | |
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| Disease mismanagement | “Multiple missed appointments despite a condition that needs regular follow up” |
| “I find this happens a lot with children with asthma, the parents do not understand the disease process and therefore do not comply with our medication regimen and their child doesn't do well” | |
| “Several clinic experience with obese children, whose parents I am concerned have low health literacy and do not understand the importance of making healthy diet choices” | |
| “Common barriers including understanding of asthma care and eczema care. The different medications and step up/down approach are confusing for families” | |
| “Asthma care. . .significant numbers of patients, even with written asthma action plans do not take correct medications” | |
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| Resource use or nonuse | “Mother did not bring child in for 2-week checkup because they didn't have a ride. Discussed with her that her Medicaid case manager could help her with that” |
| “We often have patients who, upon follow-up, have not sought out the referrals provided” | |
| Incomplete understanding by a parent led to unnecessary repeated visits” | |
| “Family of a premature baby - poor health literacy affected ability to understand and keep specialty appointments - delayed interventions for developmental delays; I also feel that poor healthy literacy may increase ER utilization because of difficulty understanding which services are appropriate - this leads to poor continuity and decreased quality of care” | |
| “Many patients do not understand treatment and end up getting hospitalized” | |
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| Language | “We frequently encounter this with several barriers including language barriers and poor socioeconomic status” |
| “Language barrier always difficult - frequently cannot access printed info and cannot write out info in other languages” | |
| “Both parents unable to read English. So, printing out the after-visit summary and reviewing it does not help the family remember what we talked about during the visit” | |
| “Child with new-onset diabetes whose mother had a language barrier and some cognitive disability - was very hard to get shared understanding of how to manage the diabetes on discharge” | |
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| Fixed misconceptions | “Had to contact CPS for a baby whose mother was convinced that feeding the baby half strength formula was what was best for her despite my (and other's) best attempts at trying to convince her otherwise” |
| “Patient family who thought SSRIs were addictive drugs similar to benzos or opioids and refused medical treatment of depression” | |
| “Trying to discuss home asthma care with a family that didn't believe in/understand the diagnosis” | |
| “Patients often do not want to vaccinate their children when they have mild viral illnesses” | |
Note. ASL = American Sign Language; CPS = child protection services; SSRIs = selective serotonin reuptake inhibitors.