Literature DB >> 35198038

Maternal beliefs about autism: A link between intervention services and autism severity in White and Latino mothers.

Nuri M Reyes1,2, Olivia J Lindly3, Alison E Chavez4, Ann Folan2,5, Kristy Macias6, Kathryn A Smith6,7, Ann Reynolds1, Katherine Zuckerman8,9.   

Abstract

Variation in parental beliefs about Autism Spectrum Disorder (ASD) may impact subsequent service use profiles. This study aimed to examine (1) variation in beliefs about ASD among English language proficient White (EP-W) mothers, English language proficient Latino (EPL) mothers, and limited English language proficient Latino (LEP-L) mothers of children with ASD; (2) variation in beliefs about ASD in the context of the child's ASD severity, among EP White mothers, EP Latino others, and LEP Latino mothers; and (3) potential links between maternal beliefs about ASD and children's current ASD treatment. This multi-site study included 305 English or Spanish-speaking parents of children with ASD, ages 2-10 years, who completed a survey about their beliefs about their child's ASD, their child's ASD severity, and treatments used by their children. Results showed that mothers in the EP-W, EP-L, and LEP-L groups differed in their beliefs about viewing ASD as a mystery. Only maternal views of ASD severity in the EP-W group were linked to their beliefs about ASD. Finally, maternal beliefs about ASD having major consequences on their child's life, and ASD being a mystery were strongly associated with a child's use of ASD intervention services. These findings provide new knowledge of how maternal beliefs about ASD vary in linguistically diverse groups, how a child's ASD severity may influence such beliefs, and how maternal beliefs correlate with the amount of therapy children with ASD receive. Future research should address how these beliefs or views are formed, what factors influence them, or whether they are malleable. Understanding parents' beliefs or views of having a child with ASD can potentially help us increase use of ASD intervention services in families of children with ASD.

Entities:  

Keywords:  ASD severity; Autism; Children; Intervention services use; Maternal beliefs about ASD

Year:  2018        PMID: 35198038      PMCID: PMC8862686          DOI: 10.1016/j.rasd.2018.04.001

Source DB:  PubMed          Journal:  Res Autism Spectr Disord


  37 in total

1.  Factors associated with parental ratings of condition severity for children with autism spectrum disorder.

Authors:  Benjamin Zablotsky; Matthew Bramlett; Stephen J Blumberg
Journal:  Disabil Health J       Date:  2015-03-20       Impact factor: 2.554

2.  Parent health beliefs, social determinants of health, and child health services utilization among U.S. school-age children with autism.

Authors:  Katharine E Zuckerman; Olivia J Lindly; Brianna K Sinche; Christina Nicolaidis
Journal:  J Dev Behav Pediatr       Date:  2015-04       Impact factor: 2.225

3.  Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism.

Authors:  Richard P Hastings; Hanna Kovshoff; Nicholas J Ward; Francesca degli Espinosa; Tony Brown; Bob Remington
Journal:  J Autism Dev Disord       Date:  2005-10

4.  Disparity of care for children with parent-reported autism spectrum disorders.

Authors:  Elizabeth Harstad; Noelle Huntington; Janine Bacic; William Barbaresi
Journal:  Acad Pediatr       Date:  2013 Jul-Aug       Impact factor: 3.107

Review 5.  Novel treatments for autistic spectrum disorders.

Authors:  Susan E Levy; Susan L Hyman
Journal:  Ment Retard Dev Disabil Res Rev       Date:  2005

6.  Disparities in diagnosis and access to health services for children with autism: data from the National Survey of Children's Health.

Authors:  Gregory S Liptak; Lauren B Benzoni; Daniel W Mruzek; Karen W Nolan; Melissa A Thingvoll; Christine M Wade; G Edgar Fryer
Journal:  J Dev Behav Pediatr       Date:  2008-06       Impact factor: 2.225

7.  Parent Beliefs About the Causes of Learning and Developmental Problems Among Children With Autism Spectrum Disorder: Results From a National Survey.

Authors:  Katharine E Zuckerman; Olivia J Lindly; Brianna Sinche
Journal:  Am J Intellect Dev Disabil       Date:  2016-09

8.  Racial and ethnic disparities in quality of health care among children with autism and other developmental disabilities.

Authors:  Sandra Magaña; Susan L Parish; Roderick A Rose; Maria Timberlake; Jamie G Swaine
Journal:  Intellect Dev Disabil       Date:  2012-08

9.  The developmental niche: a theoretical framework for analyzing the household production of health.

Authors:  S Harkness; C M Super
Journal:  Soc Sci Med       Date:  1994-01       Impact factor: 4.634

10.  Living in a world of our own: the experience of parents who have a child with autism.

Authors:  Roberta L Woodgate; Christine Ateah; Loretta Secco
Journal:  Qual Health Res       Date:  2008-08
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