Literature DB >> 23830019

Disparity of care for children with parent-reported autism spectrum disorders.

Elizabeth Harstad1, Noelle Huntington, Janine Bacic, William Barbaresi.   

Abstract

OBJECTIVE: Although children with autism spectrum disorders (ASDs) are eligible to receive special education services via an individualized education program (IEP), approximately 12% to 20% do not. Our objective was to determine which clinical and demographic characteristics are associated with IEP receipt among a nationally representative sample of children with ASD.
METHODS: Using data from the 2007 National Survey of Children's Health, we determined which clinical and demographic covariates are associated with IEP receipt for children ages 6 to 17 years with a current, parent-reported ASD diagnosis (n = 759). Logistic regression models were used to assess the association of covariates with IEP receipt. Application of weighting techniques made the findings representative of the noninstitutionalized population of US children 6 to 17 years old.
RESULTS: In the weighted model, 90% of children with ASD receive an IEP. Maternal education level above high school (adjusted odds ratio [aOR] 4.08, P = .01) and presence of perceived need for coordination of care (aOR 3.62, P = .02) were associated with IEP receipt, while Hispanic children were less likely to receive an IEP compared with white children (aOR 0.12, P = .001). The following factors were not associated with IEP receipt: severity of ASD, speech, and behavior problems.
CONCLUSIONS: For children with ASD in the United States, socioeconomic factors, not disability severity, are associated with IEP receipt. Future research should address methods to overcome this disparity in care. Health care providers may help to advocate for appropriate educational services for patients with ASD.
Copyright © 2013 Academic Pediatric Association. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  autism spectrum disorders; disparities; special education

Mesh:

Year:  2013        PMID: 23830019     DOI: 10.1016/j.acap.2013.03.010

Source DB:  PubMed          Journal:  Acad Pediatr        ISSN: 1876-2859            Impact factor:   3.107


  20 in total

1.  The effect of Medicaid waivers on ameliorating racial/ethnic disparities among children with autism.

Authors:  Michelle LaClair; David S Mandell; Andrew W Dick; Khaled Iskandarani; Bradley D Stein; Douglas L Leslie
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2.  Amor and Social Stigma: ASD Beliefs Among Immigrant Mexican Parents.

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3.  Latino parents' perspectives on barriers to autism diagnosis.

Authors:  Katharine E Zuckerman; Brianna Sinche; Angie Mejia; Martiza Cobian; Thomas Becker; Christina Nicolaidis
Journal:  Acad Pediatr       Date:  2014 May-Jun       Impact factor: 3.107

4.  Factors associated with parental ratings of condition severity for children with autism spectrum disorder.

Authors:  Benjamin Zablotsky; Matthew Bramlett; Stephen J Blumberg
Journal:  Disabil Health J       Date:  2015-03-20       Impact factor: 2.554

5.  Brief Report: Regional Variations in Characteristics of ASD Hospitalizations in the U.S.

Authors:  Wanqing Zhang; Marziye Eshghi
Journal:  J Autism Dev Disord       Date:  2019-03

6.  Implementing an intervention to address challenging behaviors for autism spectrum disorder in publicly-funded mental health services: Therapist and parent perceptions of delivery with Latinx families.

Authors:  Colby Chlebowski; Sandy Magaña; Blanche Wright; Lauren Brookman-Frazee
Journal:  Cultur Divers Ethnic Minor Psychol       Date:  2018-07-19

7.  'If I was a different ethnicity, would she treat me the same?': Latino parents' experiences obtaining autism services.

Authors:  Amber M Angell; Olga Solomon
Journal:  Disabil Soc       Date:  2017-07-03

8.  Disparities in the quality of and access to services in children with autism spectrum disorders: a structural equation modeling.

Authors:  Mohammad Asghari Jafarabadi; Kamal Gholipour; Hassan Shahrokhi; Ayyoub Malek; Akbar Ghiasi; Hamid Pourasghari; Shabnam Iezadi
Journal:  Arch Public Health       Date:  2021-04-26

9.  A Retrospective Chart Review of Children with ASD's Individual Education Plans Compared to Subsequent Independent Psychological Evaluations.

Authors:  Nicholas W Gelbar; Mary Beth Bruder; Emily DeBiase; John D Molteni
Journal:  J Autism Dev Disord       Date:  2018-11

10.  Predictors of Age of Diagnosis for Children with Autism Spectrum Disorder: The Role of a Consistent Source of Medical Care, Race, and Condition Severity.

Authors:  Natacha D Emerson; Holly E R Morrell; Cameron Neece
Journal:  J Autism Dev Disord       Date:  2016-01
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