| Literature DB >> 35173987 |
Deborah Stein1, Kerry Cannity2, Richard Weiner2, Shira Hichenberg1, Angelina Leon-Nastasi1, Smita Banerjee1, Patricia Parker1.
Abstract
AIMS: Advanced practice providers are a rapidly growing sector of the health-care field. Despite their relatively new place in the medical establishment, these providers are held to high standards of education, practice, and communication skills. However, the communication needs of these practitioners are somewhat different than those of nurses or physicians. These skills are even more necessary in specialized fields where providers frequently are involved in discussions of prognosis, goals of care, and end of life.Entities:
Year: 2022 PMID: 35173987 PMCID: PMC8805804 DOI: 10.6004/jadpro.2022.13.1.3
Source DB: PubMed Journal: J Adv Pract Oncol ISSN: 2150-0878
Frequency Statistics of Participant Work Experiences
| Characteristic | N (%) |
|---|---|
| Role | |
| Nurse practitioner | 158 (71.8%) |
| Physician assistant | 62 (28.2%) |
| Service | |
| Surgery | 88 (39.8%) |
| Medicine | 74 (33.5%) |
| Critical Care Medicine | 19 (8.6%) |
| Pediatrics | 15 (6.8%) |
| Other | 25 (11.3%) |
| Work setting | |
| Outpatient | 102 (53.1%) |
| Inpatient | 90 (46.9%) |
| Years of experience as an APP | |
| < 1 | 22 (9%) |
| 1–4 | 55 (22.4%) |
| 5–10 | 80 (32.7%) |
| > 10 | 88 (35.9%) |
| Years of experience in oncology | |
| < 1 | 23 (9.4%) |
| 2–4 | 41 (16.7%) |
| 5–7 | 32 (13.1%) |
| 8–10 | 39 (15.9%) |
| > 10 | 110 (44.9%) |
Descriptive Statistics for Self-Reported Confidence and Challenges for APPs
| M (SD) | Percentage who agreed or strongly agreed | |
|---|---|---|
|
| ||
| Addressing palliative needs | 3.84 (1.08) | 66.5 |
| Discussing death, dying, and end-of-life goals of care | 3.56 (1.16) | 53.7 |
| Sharing serious news | 3.70 (1.15) | 61.3 |
| Responding to patients’ and families’ anger | 3.80 (0.97) | 71.8 |
| Discussing prognosis | 3.53 (1.13) | 54.9 |
| Communicating empathically | 4.45 (0.77) | 91.1 |
| Responding to challenging interactions with patients and families | 4.01 (0.94) | 79.1 |
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| Addressing palliative needs | 3.99 (0.89) | 75.8 |
| Discussing death, dying, and end-of-life goals of care | 4.06 (0.93) | 76.7 |
| Sharing serious news | 4.16 (0.87) | 79.0 |
| Responding to patients’ and families’ anger | 4.16 (0.77) | 80.3 |
| Discussing prognosis | 4.09 (0.89) | 78.3 |
| Communicating empathically | 4.00 (0.88) | 73.8 |
| Responding to challenging interactions with patients and families | 4.19 (0.77) | 81.5 |
Qualitative Codes: Challenges in Communication for APPs
| Theme (No.) | Illustrative quotations |
|---|---|
|
| |
| Responding to patient/family's heightened emotions/concerns (12) |
“Patients sometimes ‘shut down’ during a difficult conversation. Finding the right way to help people understand can sometimes be difficult.” “I often deal with patients who get angry over little issues because they are really upset over the changes in treatment plan (i.e., unresectable cancer).” |
| Lack of ethics/regulatory information (3) |
“I have sometimes disagreed with an attending MD's treatment planning/decision making, and it is difficult to stand by this with the patient or to let them know that they have other options when an MD is adamant that operating is the best decision.” “When the primary oncologist has provided the patient with an unrealistic view of their life expectancy and/or with the chance that the chemo may provide benefit.” |
| Demographic discordance (2) |
“Language barrier—having to communicate via Vocera or translator.” “I would like to see minority sexual health included…including how to address LGBTQ patients, how to communicate to ensure this population feels safe, provide confidence to practitioners when facing a difficult LGBT situation.” |
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| Team communication (23) |
“Reconciling differing goals of care among team members so that a coherent message is given to patients and families.” “Communication between attending [physician], APP, and patient sometimes can be very difficult.” “Managing conflict between team members—how do you speak to the oncologist when you feel they need to share serious news with patient/family or when they are offering tumor-directed therapy that likely will not be beneficial?” |
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| Death, dying, and end-of-life goals of care discussions (13) |
“Patient adamantly wishing to be allowed a natural death, and family having difficulty coping with his decision.” “I find it challenging as an APP to have end-of-life conversations with patients particularly because, in the outpatient setting, I am not their primary oncologist, and they usually want to have these types of treatment-impacting/decision-making conversations with their doctor.” “Discussing changing goals of care from curative to comfort.” |
| Managing patient expectations (8) |
“I think that our patients are hospitalized with poor prognosis, and they are not ready to hear that they have a poor prognosis because the oncologist has said something different or the initial plan from their oncologist is now changed because of the hospitalization.” “Navigating scenarios where patient and family have differing/conflicting goals—managing unrealistic expectations.” |
| Discussing prognosis (5) |
“Often get the question ‘This is what the doctor said. Do you think that is true? Are they really telling me my kid will not make it? Should I even hope things will go well?’ ” “What are the chances of…this coming back, my child dying, my child having this or that side effect?” |
| Sharing serious news (4) |
“Patient had relapsed and wanted more information on prognosis and treatment options. Without being able to specify the treatment plan, it was difficult to speak with the family and make them feel heard since I couldn't give them something only their attending could discuss.” “It is always difficult to discuss ‘serious news’ with a patient or family whether it is the initial diagnosis of cancer, discussing treatment plan/prognosis/end of life. No matter how long one has worked in cancer care, I think attending communication training is always helpful and provides ‘tools.’ ” |
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| Provider preferences (13) |
“Some patients and family members seem to feel that having the APP discuss serious issues is not good enough and would hold more merit if it were coming from the physician.” “Speaking to a metastatic breast cancer patient about her progression of disease and treatment options, but she is just insistent on speaking with a doctor and not just some nurse.” |
| Establishing rapport/trust (2) |
“Working in the PICU, there are times when I have to address end-of-life with families I am meeting for the first time.” |
| Reconfirming medical information (2) |
“Often, I am the person who is clarifying for the patient or their family the medical diagnosis and plan that was addressed by the MD.” |
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| Role clarity (7) |
“When it is unclear whether we can ‘go all the way’ with goals of care conversations, or if we should defer to an attending.” “Lots of times, things come up that I don't usually discuss with patient (e.g., pathology, not a surgical candidate, etc.). It's not that I feel incapable of discussing such things; it's just that usually I feel it is something that should come from the horse's mouth so to speak.” |
| APP lack of confidence (5) |
“Sometimes as an APP, I feel the patient or family wants to hear from an MD and not ‘just the assistant.’ It is hard to come across as a ‘serious’ member of a team of providers.” “If I see patients independently as NP visit, I think they often wonder if the answer would be different if an MD saw them. I think sharing bad news is harder because they wonder if the MD would have a better idea than I do.” |
| Insufficient information (4) |
“When asked with cancer-specific questions, I often page the primary team to address patient/family concerns. I feel patients think I know all scenarios of their treatment and ask many questions I am unable to answer in my position.” “It is difficult to communicate with the patients and families when the APPs are not involved in discussion in disease management and planning.” |
| Limitations of APP's role (3) |
“DNR discussion oftentimes comes up in the absence of the attending physician who need to be pulled into the conversation as orders cannot be initiated by the NP.” “Certain attendings prefer APPs to not discuss the pathology and the treatment management to patients. It will be helpful to provide attendings with education on the value APPs can bring with our participation.” |
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| Serving as middleman (10) |
“Often patients express their true wishes to us, but not to the attending. Often, I feel like we are left carrying the burden because of this and wrangle with how to advocate for our patients.” “Knowing results before a family, and the primary physician has not yet shared—not wanting to disclose sensitive results but not wanting to give false hope.” “Patient is unable to fully discuss with physician their personal and social concerns—but able to communicate their concerns to APN [advanced practice nurse].” |
| Understanding APP's role (7) |
“Patient/family members not familiar with APP being part of the medical care team may not readily trust or be willing to be seen or heed medical advice or recommendations from non-MD.” “Confusion of what a nurse practitioner is and how I can relay imaging results or treatment options.” |