Literature DB >> 35081598

Are burns a chronic condition? Examining patient reported outcomes up to 20 years after burn injury-A Burn Model System National Database investigation.

Cailin A Abouzeid1, Audrey E Wolfe, Pengsheng Ni, Gretchen J Carrougher, Nicole S Gibran, Flora M Hammond, Radha Holavanahalli, Kara A McMullen, Kimberly Roaten, Oscar Suman, Barclay T Stewart, Steven Wolf, Ross Zafonte, Lewis E Kazis, Colleen M Ryan, Jeffrey C Schneider.   

Abstract

BACKGROUND: People living with burn injury often face long-term physical and psychological sequelae associated with their injuries. Few studies have examined the impacts of burn injuries on long-term health and function, life satisfaction, and community integration beyond 5 years postinjury. The purpose of this study was to examine these outcomes up to 20 years after burn injury.
METHODS: Data from the Burn Model System National Longitudinal Database (1993-2020) were analyzed. Patient-reported outcome measures were collected at discharge (preinjury status recall) and 5 years, 10 years, 15 years, and 20 years after injury. Outcomes examined were the SF-12/VR-12 Physical Component Summary and Mental Component Summary, Satisfaction with Life Scale, and Community Integration Questionnaire. Trajectories were developed using linear mixed models with repeated measures of outcome scores over time, controlling for demographic and clinical variables.
RESULTS: The study population included 421 adult burn survivors with a mean age of 42.4 years. Lower Physical Component Summary scores (worse health) were associated with longer length of hospital stay, older age at injury and greater time since injury. Similarly, lower Mental Component Summary scores were associated with longer length of hospital stay, female sex, and greater time since injury. Satisfaction with Life Scale scores decrease negatively over time. Lower Community Integration Questionnaire scores were associated with burn size and Hispanic/Latino ethnicity.
CONCLUSION: Burn survivors' physical and mental health and satisfaction with life worsened over time up to 20 years after injury. Results strongly suggest that future studies should focus on long-term follow-up where clinical interventions may be necessary. LEVEL OF EVIDENCE: Prognostic and Epidemiologic; Level III.
Copyright © 2022 Wolters Kluwer Health, Inc. All rights reserved.

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Year:  2022        PMID: 35081598      PMCID: PMC9133040          DOI: 10.1097/TA.0000000000003547

Source DB:  PubMed          Journal:  J Trauma Acute Care Surg        ISSN: 2163-0755            Impact factor:   3.697


  47 in total

1.  Pain and Pruritus Postburn Injury.

Authors:  Bernadette Nedelec; Gretchen J Carrougher
Journal:  J Burn Care Res       Date:  2017 May/Jun       Impact factor: 1.845

2.  Reasons for Distress Among Burn Survivors at 6, 12, and 24 Months Postdischarge: A Burn Injury Model System Investigation.

Authors:  Shelley A Wiechman; Kara McMullen; Gretchen J Carrougher; Jame A Fauerbach; Colleen M Ryan; David N Herndon; Radha Holavanahalli; Nicole S Gibran; Kimberly Roaten
Journal:  Arch Phys Med Rehabil       Date:  2017-12-16       Impact factor: 3.966

3.  Promoting and supporting self-management for adults living in the community with physical chronic illness: A systematic review of the effectiveness and meaningfulness of the patient-practitioner encounter.

Authors:  Sally Rees; Anne Williams
Journal:  JBI Libr Syst Rev       Date:  2009

4.  Is Real-Time Feedback of Burn-Specific Patient-Reported Outcome Measures in Clinical Settings Practical and Useful? A Pilot Study Implementing the Young Adult Burn Outcome Questionnaire.

Authors:  Colleen M Ryan; Austin F Lee; Lewis E Kazis; Gabriel D Shapiro; Jeffrey C Schneider; Jeremy Goverman; Shawn P Fagan; Chao Wang; Julia Kim; Robert L Sheridan; Ronald G Tompkins
Journal:  J Burn Care Res       Date:  2016 Jan-Feb       Impact factor: 1.845

5.  Pruritus in adult burn survivors: postburn prevalence and risk factors associated with increased intensity.

Authors:  Gretchen J Carrougher; Erin M Martinez; Kara S McMullen; James A Fauerbach; Radha K Holavanahalli; David N Herndon; Shelley A Wiechman; Loren H Engrav; Nicole S Gibran
Journal:  J Burn Care Res       Date:  2013 Jan-Feb       Impact factor: 1.845

6.  Pruritus in pediatric burn survivors: defining the clinical course.

Authors:  Jeffrey C Schneider; Deborah L Nadler; David N Herndon; Karen Kowalske; Katie Matthews; Shelley A Wiechman; Gretchen J Carrougher; Nicole S Gibran; Walter J Meyer; Robert L Sheridan; Colleen M Ryan
Journal:  J Burn Care Res       Date:  2015 Jan-Feb       Impact factor: 1.845

Review 7.  Core outcomes for adult burn survivors: a clinical overview.

Authors:  Sian Falder; Allyson Browne; Dale Edgar; Emma Staples; Joy Fong; Suzanne Rea; Fiona Wood
Journal:  Burns       Date:  2008-12-25       Impact factor: 2.744

8.  Racial/Ethnic Disparities in Longitudinal Trajectories of Community Integration After Burn Injury.

Authors:  Bradford S Pierce; Paul B Perrin; Mickeal Pugh; Annahir N Cariello; Richard S Henry; Megan E Sutter; Shelley A Wiechman; Jeffrey C Schneider
Journal:  Am J Phys Med Rehabil       Date:  2020-07       Impact factor: 3.412

Review 9.  Understanding acute burn injury as a chronic disease.

Authors:  Lucy W Barrett; Vanessa S Fear; Jason C Waithman; Fiona M Wood; Mark W Fear
Journal:  Burns Trauma       Date:  2019-09-16

10.  Conventional and retrospective change in health-related quality of life of trauma patients: an explorative observational follow-up study.

Authors:  Juanita A Haagsma; Inge Spronk; Mariska A C de Jongh; Gouke J Bonsel; Suzanne Polinder
Journal:  Health Qual Life Outcomes       Date:  2020-05-27       Impact factor: 3.186

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