Literature DB >> 35075044

Devising a Missing Data Rule for a Quality of Life Questionnaire-A Simulation Study.

Peter Jacoby1, Andrew Whitehouse1, Helen Leonard1, Jacinta Saldaris1, Scott Demarest2, Tim Benke2, Jenny Downs1,3.   

Abstract

OBJECTIVE: The aim of this study was to devise an evidence-based missing data rule for the Quality of Life Inventory-Disability (QI-Disability) questionnaire specifying how many missing items are permissible for domain and total scores to be calculated using simple imputation. We sought a straightforward rule that can be used in both research and clinical monitoring settings.
METHOD: A simulation study was conducted involving random selection of missing items from a complete data set of questionnaire responses. This comprised 520 children with intellectual disability from 5 diagnostic groups. We applied a simple imputation scheme, and the simulated distribution of errors induced by imputation was compared with the previously estimated standard error of measurement (SEM) for each domain.
RESULTS: Using a stringent criterion, which requires that the 95th percentile of absolute error be less than the SEM, 1 missing item should be permitted for 2 of the 6 QI-Disability subdomain scores to be calculated and 1 missing item per domain for the total score to be calculated. Other, less stringent criteria would allow up to 2 missing items per domain.
CONCLUSION: Empirical evidence about the impact of imputing missing questionnaire responses can be gathered using simulation methods applied to a complete data set. We recommend that such evidence be used in devising a rule that specifies how many items can be imputed for a valid score to be calculated.
Copyright © 2022 Wolters Kluwer Health, Inc. All rights reserved.

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Year:  2022        PMID: 35075044      PMCID: PMC9308825          DOI: 10.1097/DBP.0000000000001061

Source DB:  PubMed          Journal:  J Dev Behav Pediatr        ISSN: 0196-206X            Impact factor:   2.988


  18 in total

1.  Quality criteria were proposed for measurement properties of health status questionnaires.

Authors:  Caroline B Terwee; Sandra D M Bot; Michael R de Boer; Daniëlle A W M van der Windt; Dirk L Knol; Joost Dekker; Lex M Bouter; Henrica C W de Vet
Journal:  J Clin Epidemiol       Date:  2006-08-24       Impact factor: 6.437

2.  Missing data in a multi-item instrument were best handled by multiple imputation at the item score level.

Authors:  Iris Eekhout; Henrica C W de Vet; Jos W R Twisk; Jaap P L Brand; Michiel R de Boer; Martijn W Heymans
Journal:  J Clin Epidemiol       Date:  2013-12-02       Impact factor: 6.437

Review 3.  Quality of life instruments for children and adolescents with neurodisabilities: how to choose the appropriate instrument.

Authors:  Elizabeth Waters; Elise Davis; Gabriel M Ronen; Peter Rosenbaum; Michael Livingston; Saroj Saigal
Journal:  Dev Med Child Neurol       Date:  2009-08       Impact factor: 5.449

4.  Exploring quality of life of children with cerebral palsy and intellectual disability: What are the important domains of life?

Authors:  E Davis; D Reddihough; N Murphy; A Epstein; S M Reid; A Whitehouse; K Williams; H Leonard; J Downs
Journal:  Child Care Health Dev       Date:  2017-07-26       Impact factor: 2.508

5.  Conceptualizing a quality of life framework for girls with Rett syndrome using qualitative methods.

Authors:  Amy Epstein; Helen Leonard; Elise Davis; Katrina Williams; Dinah Reddihough; Nada Murphy; Andrew Whitehouse; Jenny Downs
Journal:  Am J Med Genet A       Date:  2015-12-21       Impact factor: 2.802

6.  The PedsQL: measurement model for the pediatric quality of life inventory.

Authors:  J W Varni; M Seid; C A Rode
Journal:  Med Care       Date:  1999-02       Impact factor: 2.983

7.  Functioning, participation, and quality of life in children with intellectual disability: an observational study.

Authors:  Katrina Williams; Peter Jacoby; Andrew Whitehouse; Rachel Kim; Amy Epstein; Nada Murphy; Sue Reid; Helen Leonard; Dinah Reddihough; Jenny Downs
Journal:  Dev Med Child Neurol       Date:  2020-08-30       Impact factor: 5.449

8.  Reliability of the Quality of Life Inventory-Disability Measure in Children with Intellectual Disability.

Authors:  Peter Jacoby; Amy Epstein; Rachel Kim; Nada Murphy; Helen Leonard; Katrina Williams; Dinah Reddihough; Andrew Whitehouse; Jenny Downs
Journal:  J Dev Behav Pediatr       Date:  2020-09       Impact factor: 2.225

9.  There is variability in the attainment of developmental milestones in the CDKL5 disorder.

Authors:  Stephanie Fehr; Helen Leonard; Gladys Ho; Simon Williams; Nick de Klerk; David Forbes; John Christodoulou; Jenny Downs
Journal:  J Neurodev Disord       Date:  2015-01-05       Impact factor: 4.025

10.  Handling missing items in the Hospital Anxiety and Depression Scale (HADS): a simulation study.

Authors:  Melanie L Bell; Diane L Fairclough; Mallorie H Fiero; Phyllis N Butow
Journal:  BMC Res Notes       Date:  2016-10-22
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