| Literature DB >> 34948603 |
Maria Gabriella Melchiorre1, Sabrina Quattrini1, Giovanni Lamura1, Marco Socci1.
Abstract
Older people with limited physical abilities, who live alone without cohabiting family members, need support ageing in place and to perform daily living activities. In this respect, both the available informal and formal care seem crucial. The present study aimed to explore the current role of the care arrangements of older people, especially if they have functional limitations. Qualitative interviews were carried out in 2019 within the "Inclusive ageing in place" (IN-AGE) research project, involving 120 older people who lived at home, alone, or with a private personal care assistant (PCA) in three Italian regions (Lombardy, Marche, and Calabria). A mixed-methods analysis was conducted. Results showed that support networks are still mainly made up of family members, but also of domestic home help (DHH) and PCAs, friends/neighbours, and public services, albeit the latter provide support in a residual way, while the former is not as intensive as it was in the past. Frequency and geographical/living proximity of help play a role, emerging also as a territorial differentiation. The paucity or absence of support, especially from the family, risks compromising the ability of ageing in place. It seems, thus, necessary to innovate and improve, in particular, home services, also through real formal and informal care integration.Entities:
Keywords: Italy; ageing in place; care arrangements; daily living activities; family; frequency and proximity of help; limited physical abilities; living alone; mixed-methods; older people
Mesh:
Year: 2021 PMID: 34948603 PMCID: PMC8700972 DOI: 10.3390/ijerph182412996
Source DB: PubMed Journal: Int J Environ Res Public Health ISSN: 1660-4601 Impact factor: 3.390
Regions and sites.
| Regions | Urban Cities | N 1 | Inner Area/ | N 1 | Total |
|---|---|---|---|---|---|
| Lombardy | Brescia | 24 | Oltrepò Pavese: | 16 | 40 |
|
| 2 | ||||
|
| 4 | ||||
|
| 10 | ||||
| Marche | Ancona | 24 | Appennino Basso Pesarese e Anconetano: | 16 | 40 |
|
| 3 | ||||
|
| 7 | ||||
|
| 6 | ||||
| Calabria | Reggio Calabria | 24 | Area Grecanica: | 16 | 40 |
|
| 8 | ||||
|
| 8 | ||||
| Total | 72 | 48 | 120 |
1 N = number of interviews.
The process of categorization, coding, and quantification.
| Macro-Categories | Sub-Categories | Codes/Labels for the Analysis | Quantitative Items (N = Number) |
|---|---|---|---|
| Daily living activities | Physical/Functional limitations: Basic Activities of Daily Living (ADLs); Instrumental Activities of Daily Living (IADLs) | Activities performed in autonomy, with help, and not performed (respondents are not able) | N. of activities that each respondent is not able to perform |
| Care arrangements for daily living activities | Type/Composition | Family (e.g., sons/daughters); public services (e.g., home care-SAD); private services (e.g., domestic home help-DHH); private personal care assistant (PCA); friends; neighbours; volunteering; acquaintances | Main types of help for each respondent |
| Frequency of help | Daily, weekly | Main types of help and frequency for each respondent | |
| Geographical/physical proximity of family members who help | Same urban city/rural municipality where the older person lives; farther | ||
| PCA | Reasons to hire PCA: widowhood, health problems, and falls of respondents | N. of respondents reporting a reason | |
| Characteristics of PCA: gender, country of origin, type of employment, and type of contract | N. of females/males | ||
| Economic situation | Sources of income | Pension, Disability Attendance Allowance (IA), annuities | N. of respondents with two pensions |
| Amount of income | Monthly income | ||
| Financial difficulties | To pay a PCA | N. of respondents with PCA |
Sample Characteristics (absolute values/n).
| Characteristics | Regions and Sites | ||||||
|---|---|---|---|---|---|---|---|
| Lombardy | Marche | Calabria | Total | ||||
| Urban | Rural | Urban | Rural | Urban | Rural | ||
|
| |||||||
|
| |||||||
| 67–74 | 5 | 4 | 3 | 1 | 4 | - | 17 |
| 75–79 | 4 | 3 | 4 | 2 | 2 | 4 | 19 |
| 80–84 | 6 | 4 | 5 | 6 | 4 | 3 | 28 |
| 85 and over | 9 | 5 | 12 | 7 | 14 | 9 | 56 |
|
| |||||||
| Male | 5 | 4 | 5 | 3 | 8 | 5 | 30 |
| Female | 19 | 12 | 19 | 13 | 16 | 11 | 90 |
|
| |||||||
| No title | 1 | - | 2 | 7 | 1 | 3 | 14 |
| Primary school (5 years) | 10 | 6 | 10 | 5 | 12 | 12 | 55 |
| Middle school (3 years) | 5 | 3 | 7 | 2 | 2 | 1 | 20 |
| High school (3–5 years) | 8 | 7 | 5 | 2 | 6 | - | 28 |
| University/similar (3–5 years) | - | - | - | - | 3 | - | 3 |
|
| |||||||
| Single | 5 | 2 | 2 | 3 | 4 | - | 16 |
| Married but not cohabiting | - | 1 | 1 | - | - | - | 2 |
| Divorced/separated | 7 | 2 | 2 | - | 2 | 1 | 14 |
| Widowed | 12 | 11 | 19 | 13 | 18 | 15 | 88 |
|
| |||||||
| Alone | 23 | 13 | 21 | 11 | 14 | 11 | 93 |
| Cohabitant pers. care assistant (PCA) | 1 | 3 | 1 | 2 | 3 | 4 | 14 |
| Not cohabitant/hourly PCA 1 | - | - | 2 | 3 | 7 | 1 | 13 |
|
| |||||||
| Only in the home | 7 | 5 | 12 | 5 | 10 | 9 | 48 |
| Also outside the home with help 2 | 17 | 11 | 12 | 11 | 14 | 7 | 72 |
|
| |||||||
| Up to 600 | 4 | 1 | 2 | 1 | 1 | 1 | 10 |
| 601–1500 | 17 | 13 | 16 | 14 | 16 | 13 | 89 |
| 1501–2500 | 2 | 2 | 5 | 1 | 5 | 2 | 17 |
| Over 2500 | - | - | - | - | 2 | - | 2 |
| Missing | 1 | - | 1 | - | - | - | 2 |
|
| 24 | 16 | 24 | 16 | 24 | 16 | 120 |
1 Daily/nightly regular attendance for at least 28–30 h a week; 2 respondent is able to leave the house at least two times a week, only if accompanied or with aids (cane, walker).
Level of physical/functional limitations, by sites and regions.
| Level 1 | Urban | Rural | Lombardy | Marche | Calabria | Total | ||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
|
| % |
| % |
| % |
| % |
| % |
| % | |
| Mild | 16 | 22 | 14 | 29 | 13 | 33 | 12 | 30 | 5 | 13 | 30 | 25 |
| Moderate | 22 | 31 | 11 | 23 | 8 | 20 | 12 | 30 | 13 | 33 | 33 | 28 |
| High | 18 | 25 | 9 | 19 | 10 | 25 | 8 | 20 | 9 | 23 | 27 | 22 |
| Very high | 16 | 22 | 14 | 29 | 9 | 23 | 8 | 20 | 13 | 33 | 30 | 25 |
| Total respondents | 72 | 100 | 48 | 100 | 40 | 100 | 40 | 100 | 40 | 100 | 120 | 100 |
1 The level of physical/functional limitations is based on 12 Basic and Instrumental Activities of Daily Living (ADLs-IADLs), two mobility limitations (going up/down the stairs and bending to pick up an object), plus sensory limitations in hearing and seeing. Mild = no activities “not able”, Moderate = one–two, High = three–four, Very high = five or more.
Who helps, by sites and regions (at least one type of help) 1.
| Types of Help 2 | Urban | Rural | Lombardy | Marche | Calabria | Total | ||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
|
| % |
| % |
| % |
| % |
| % |
| % | |
| Family | 53 | 74 | 41 | 85 | 27 | 68 | 33 | 83 | 34 | 85 | 94 | 78 |
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
| Friends/neighbours | 27 | 38 | 23 | 48 | 15 | 38 | 22 | 55 | 13 | 33 | 50 | 42 |
| Private services | 37 | 51 | 13 | 27 | 18 | 45 | 18 | 45 | 14 | 35 | 50 | 42 |
|
|
|
|
|
|
|
|
|
|
|
|
| |
| Public services | 35 | 49 | 8 | 17 | 14 | 35 | 23 | 58 | 6 | 15 | 43 | 36 |
|
|
|
|
|
|
|
|
|
|
|
|
| |
| PCA | 14 | 19 | 13 | 27 | 4 | 10 | 8 | 20 | 15 | 38 | 27 | 23 |
| Total respondents | 72 | 100 | 48 | 100 | 40 | 100 | 40 | 100 | 40 | 100 | 120 | 100 |
1 The values in the table do not concern the number of family members, friends, etc., who help, but the number of older persons who reported at least one help of the respective type (one case with family helping = even if with more family members helping); 2 more types of help/care arrangements are possible; 3 both sons and daughters in some cases.
Care networks and income of respondents.
| Sources of Income 1 | PCA | DHH | SAD | Total 3 | ||||
|---|---|---|---|---|---|---|---|---|
|
| % |
| % |
| % |
| % | |
| (At least) Two pensions | 17 | 63 | 21 | 48 | 9 | 32 | 47 | 47 |
| Disab. Attend. Allow. (IA) | 10 | 37 | 8 | 18 | 5 | 18 | 23 | 24 |
| Annuities 2 | 5 | 19 | 4 | 9 | - | - | 9 | 9 |
| Total respondents | 27 | 100 | 44 | 100 | 28 | 100 | 99 | 100 |
|
|
|
|
|
| ||||
| Up to 600 | 1 | 4 | 5 | 11 | 2 | 7 | 8 | 8 |
| 601–1500 | 17 | 63 | 32 | 73 | 25 | 89 | 74 | 74 |
| 1501–2500 | 7 | 26 | 6 | 14 | - | 13 | 14 | |
| Over 2500 | 2 | 7 | - | - | - | 2 | 2 | |
| Missing | - | - | 1 | 2 | 1 | 4 | 2 | 2 |
| Total respondents | 27 | 100 | 44 | 100 | 28 | 100 | 99 | 100 |
1 More sources of income and more types of help/care arrangements are possible. In two cases with PCA, respondents have both IA and annuities. In a further two cases with IA, respondents have both DHH and SAD; 2 annuities = income from family businesses, apartment rentals; 3 yotal cases respectively with two pensions, IA, and annuities; 4 total cases by monthly income brackets.
Share of family help on the total, by sites and regions.
| Share of Family Help 1 | Urban | Rural | Lombardy | Marche | Calabria | Total | ||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
|
| % |
| % |
| % |
| % |
| % |
| % | |
| No family help | 19 | 26 | 7 | 14 | 13 | 33 | 7 | 18 | 6 | 15 | 26 | 22 |
| Moderate family help | 33 | 46 | 19 | 40 | 17 | 43 | 22 | 55 | 13 | 33 | 52 | 43 |
| Strong family help | 20 | 28 | 22 | 46 | 10 | 25 | 11 | 28 | 21 | 53 | 42 | 35 |
| Total respondents | 72 | 100 | 48 | 100 | 40 | 100 | 40 | 100 | 40 | 100 | 120 | 100 |
1 Share of family help = number of family members who help on the total help (from family, private services, public services, PCAs, friends/neighbours). Moderate family help = up to 50% of the total; strong family help = over 50% of the total.
Share of family help on the total and other supports 1.
| Share of Family Help 2 | PCA | Private Services | Friends/ | Public | Total | |||||
|---|---|---|---|---|---|---|---|---|---|---|
|
| % |
| % |
| % |
| % |
| % | |
| No family help | 3 | 11 | 11 | 22 | 14 | 28 | 17 | 40 | 26 | 22 |
| Moderate family help | 11 | 41 | 29 | 58 | 30 | 60 | 23 | 53 | 52 | 43 |
| Strong family help | 13 | 48 | 10 | 20 | 6 | 12 | 3 | 7 | 42 | 35 |
| Total respondents | 27 | 100 | 50 | 100 | 50 | 100 | 43 | 100 | 120 | 100 |
1 More types of other supports are possible. Row sums are thus greater than respective row totals, apart from the label “Strong family help” (row sum is smaller than total due to 10 cases with family help only); 2 share of family help = number of family members who help on the total help (from family, private services, public services, PCAs, friends/neighbours). Moderate family help = up to 50% of the total; strong family help = over 50% of the total.
Daily help, by sites and regions (at least one daily help by type) 1.
| Daily Help 2 | Urban | Rural 3 | Lombardy | Marche | Calabria | Total | ||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
|
| % |
| % |
| % |
| % |
| % |
| % | |
| Family | 23 | 32 | 20 | 42 | 6 | 15 | 14 | 35 | 23 | 58 | 43 | 36 |
|
|
|
|
|
|
|
|
|
|
|
|
|
|
| PCA | 14 | 19 | 13 | 27 | 4 | 10 | 8 | 20 | 15 | 38 | 27 | 23 |
| Friends/neighbours | 8 | 11 | 8 | 17 | 3 | 8 | 4 | 10 | 9 | 23 | 16 | 13 |
| Public services | 14 | 19 | 1 | 2 | 7 | 18 | 5 | 13 | 3 | 8 | 15 | 13 |
|
|
|
|
|
|
|
|
|
|
|
|
|
|
| Private services | 10 | 14 | 4 | 8 | 4 | 10 | 4 | 10 | 6 | 15 | 14 | 12 |
|
|
|
|
|
|
|
|
|
|
|
|
|
|
| Total respondents | 72 | 100 | 48 | 100 | 40 | 100 | 40 | 100 | 40 | 100 | 120 | 100 |
1 The values in the table do not concern the number of family members, friends, etc. who help daily, but the number of older persons who have reported at least one help of the respective type and frequency (one case with family who helps daily = even if more family members help with the same frequency). Moreover, more types of daily help/care arrangements are possible, however, compensated by overall fewer cases with daily help. Column sums are thus smaller than respective column totals, except for Calabria region (column sum is greater than total due to more cases of daily help); 2 daily help = even if four–six days a week/more or less every day (even if five nights a week/more or less every night for the PCA); 3 only one case of daily SAD in Marche region.
Weekly help, by sites and regions (at least one weekly help by type) 1.
| Weekly Help 2 | Urban | Rural 3 | Lombardy | Marche | Calabria | Total | ||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
|
| % |
| % |
| % |
| % |
| % |
| % | |
| Family | 28 | 39 | 33 | 69 | 19 | 48 | 20 | 50 | 22 | 55 | 61 | 51 |
|
|
|
|
|
|
|
|
|
|
|
|
|
|
| Friends/neighbours | 14 | 19 | 10 | 21 | 7 | 18 | 12 | 30 | 5 | 13 | 24 | 20 |
| Private services (all DHH) | 17 | 24 | 6 | 13 | 7 | 18 | 12 | 30 | 4 | 10 | 23 | 19 |
| Public services (all SAD) | 21 | 29 | 1 | 2 | 10 | 25 | 9 | 23 | 3 | 8 | 22 | 18 |
| Total respondents | 72 | 100 | 48 | 100 | 40 | 100 | 40 | 100 | 40 | 100 | 120 | 100 |
1 The values in the table do not concern the number of family members, friends, etc. who help weekly, but the number of older persons who reported at least one help of the respective type and frequency (one case with family helping weekly = even if more family members help with the same frequency). Moreover, more types of weekly help/care arrangements are possible. Column sums are thus greater than respective column totals, except for Calabria region (column sum is smaller than total due to six cases without any type of weekly help); 2 weekly help = one-three times a week; 3 only one case of weekly SAD in Marche region.
Number of family members living close by who help, by sites and regions.
| Close by Family Members 1 | Urban | Rural | Lombardy | Marche | Calabria | Total 2 | ||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
|
| % |
| % |
| % |
| % |
| % |
| % | |
| None close | 12 | 23 | 22 | 54 | 18 | 67 | 9 | 27 | 7 | 21 | 34 | 36 |
| One close | 17 | 32 | 9 | 22 | 7 | 26 | 11 | 33 | 8 | 24 | 26 | 28 |
| Two or more close | 24 | 45 | 10 | 24 | 2 | 7 | 13 | 39 | 19 | 56 | 34 | 36 |
| Total respondents | 53 | 100 | 41 | 100 | 27 | 100 | 33 | 100 | 34 | 100 | 94 | 100 |
1 Living close by relatives who help = who live in the same urban city/rural municipality where the older person lives; 2 respondents with family members who help overall (94 units).
Share of family help on total and number of family members living close by who help 1.
| Share of Family Help 2 | None Close | One Close | Two/More Close | Total 3 | ||||
|---|---|---|---|---|---|---|---|---|
|
| % |
| % |
| % |
| % | |
| Moderate family help | 23 | 68 | 19 | 73 | 10 | 29 | 52 | 55 |
| Strong family help | 11 | 32 | 7 | 27 | 24 | 71 | 42 | 45 |
| Total respondents | 34 | 100 | 26 | 100 | 34 | 100 | 94 | 100 |
1 Living close by relatives who help = who live in the same urban city/rural municipality where the older person lives; 2 share of family help = number of family members who help on the total help (from family, private services, public services, PCAs, friends/neighbours). Moderate family help = up to 50% of the total; strong family help = over 50% of the total; 3 respondents with family members who help overall (94 units).
Frequency of family help and number of family members living close by who help 1.
| Frequency of Family Help | None Close 2 | One Close | Two/More Close 3 | Total 3 | ||||
|---|---|---|---|---|---|---|---|---|
|
| % |
| % |
| % |
| % | |
| Daily help | 5 | 15 | 11 | 42 | 27 | 79 | 43 | 46 |
|
|
|
|
|
|
|
|
|
|
| Weekly help | 25 | 74 | 15 | 58 | 21 | 62 | 61 | 65 |
|
|
|
|
|
|
|
|
|
|
| Total respondents | 34 | 100 | 26 | 100 | 34 | 100 | 94 4 | 100 |
1 Living close by relatives who help = who live in the same urban city/rural municipality where the older person lives; 2 in four cases the family help is monthly or less frequent (column sum is smaller than respective column total); 3 both daily and weekly help from family are possible for some respondents (column sum is greater than respective column total); 4 respondents with family members who help overall.