| Literature DB >> 34831653 |
Abstract
Background: Mental health services are currently experiencing much systemic and organisational change. Many countries have adopted a recovery approach to service provision through the development of national policies and frameworks. Within an Irish context, co-production has been identified as one of the four pillars required for services to become recovery orientated. However, there is a paucity of literature relating to the concept within child and adolescent mental health services. This paper aims to synthesise the peer-reviewed evidence on co-production within such services.Entities:
Keywords: co-production; mental health; organisational change; recovery; young people
Mesh:
Year: 2021 PMID: 34831653 PMCID: PMC8623106 DOI: 10.3390/ijerph182211897
Source DB: PubMed Journal: Int J Environ Res Public Health ISSN: 1660-4601 Impact factor: 3.390
Figure 1Arnstein’s Ladder of Participation.
Figure 2New Economics Foundation Ladder of Participation.
Inclusion/exclusion criteria.
| Inclusion | Exclusion |
|---|---|
| Qualitative, Mixed-Method | Editorials, Quantitative Studies, Discussion Papers, Literature Reviews/Systematic Reviews/Meta-Syntheses, Meta-Analyses |
| English Language | |
| Peer Reviewed | |
| Child and Adolescent Mental | Addiction, Intellectual Disabilities, Physical Health, Older Person Services—Dementia, Delirium, etc., Dual Diagnosis |
| Dissertations | |
| Articles focused on co-production in young people | Articles focused on co-production in older users of service |
Reference search.
| Article | Included/Excluded | Rationale |
|---|---|---|
| Fisher [ | Excluded | Editorial Paper. |
| Osborne et al. [ | Excluded | Focusses on co-production, but in public services. Not specific to health care and not specific to CAMHS. |
| Pestoff [ | Excluded | Focusses on co-production between parents and childcare facilities in Europe. Not focused on CAMHS or child and adolescent mental health in general. |
Figure 3PRISMA (2020 Edition) Flow Chart. Please note that full reasons for exclusion of studies can be found in Appendix A.7.
Comparative table of included studies.
| Authors/Geographical Location | Study Aim | Sample and Sample Size | Age Range | Setting | Methodological Approach | Theoretical Orientation |
|---|---|---|---|---|---|---|
| Fisher et al. [ | To examine the potential of co-production to combat power differentials and othering for survivors of childhood sexual abuse (CSA). | Authors of Paper [ | N/S | N/S | Autoethnographic Methodology | N/S |
| Hopkins et al. [ | To explore the reasons young people and adults enrol in Discovery College courses, what their experiences were, and whether attitudes towards education changed as a result of course participation. | Young People [ | N/S | Mental Health | Grounded Theory | N/S |
Qualitative synopsis of included studies.
| Authors/Geographical | Synopsis of Included Studies |
|---|---|
| Fisher et al. [ | Childhood sexual abuse has been known to cause power disparities not just in childhood but also in adulthood if not appropriately addressed. This study utilises an autoethnographic methodology to explore such power differential experiences while also examining the potential use of co-production to counteract such disparities of power and the associated othering that are experienced by survivors of such abuse. |
| Hopkins et al. [ | The Discovery College is a new initiative in Australia that aims to provide co-produced recovery education delivered through an andragogical approach, whereby facilitators and participants learn together through an equal relationship. Despite the growth in popularity of such initiatives in mental health services, little evidence thus far is available to demonstrate the effectiveness nor participant experiences of such colleges. This mixed-method study was therefore carried out to explore the reasons why young adults and adults enrol in such colleges and their experiences of participating and also to measure attitudinal changes resulting from course participation. |
Risk of bias assessment (n = 2).
| Study | Random | Allocation | Blinding of | Blinding of Outcome | Incomplete Outcome Data | Selective | Overall |
|---|---|---|---|---|---|---|---|
| Fisher et al. [ | High | High | High | Unclear | Unclear | High | High |
| Hopkins et al. [ | Unclear | High | High | High | Low | Unclear | High |
Grading system: Low = low risk of bias, High = high risk of bias, Unclear = unknown whether study exhibits bias for this domain.
Figure 4Risk of bias assessment—traffic light system.
Critical appraisal tool—result of the quality assessment for qualitative studies (n = 2).
| Study | Abstract/Title | Introduction/Aims | Method and Data | Sampling | Analysis | Ethics/Bias | Results | Generalisability | Implications | Total | Grade |
|---|---|---|---|---|---|---|---|---|---|---|---|
| Fisher et al. [ | 3 | 3 | 3 | 3 | 1 | 1 | 2 | 2 | 3 | 21 | C |
| Hopkins et al. [ | 4 | 4 | 4 | 2 | 2 | 1 | 3 | 3 | 4 | 27 | B |
Grading key: high quality (A), 30–36 points; medium quality (B), 24–29 points; low quality (C), 9–24 points.
Themes and sub-themes.
| Themes | Sub-Themes |
|---|---|
| Road Less Travelled | Identity in Society/Services |
| Acceptance | |
| Co-Producing Equality | Redistribution of Power |
| Environment | |
| Principles |
Inclusion/exclusion criteria.
| Inclusion | Exclusion |
|---|---|
| Qualitative, Mixed-Method | Editorials, Quantitative Studies, Discussion Papers, Literature Reviews/Systematic Reviews/Meta-Syntheses, Meta-Analyses |
| English Language | |
| Peer Reviewed | |
| Child and Adolescent Mental Health Services | Addiction, Intellectual Disabilities, Physical Health, Older Person Services—Dementia, Delirium, etc., Dual Diagnosis |
| Dissertations | |
| Articles focused on co-production in | Article focused on co-production in older users of service |
Duplicates removed—15.
| Article | Included/Excluded | Rationale |
|---|---|---|
| Bovaird [ | Excluded | Does not discuss co-production in CAMHS or with young people. Is not a qualitative study. |
| Broadhurst and Mason [ | Excluded | Discusses co-presence—being in close proximity to a person to matter in what is being done. Not related to co-production. |
| Brophy et al. [ | Excluded | Priorities for treatment, care, and support are discussed—not discussing co-production. |
| Cleofas [ | Excluded | Is a research study on student participation. Participation is a lower level of involvement than co-production, and it was therefore excluded. |
| Collura et al. [ | Excluded | Speaks of collaboration and not co-production. Collaboration is a lower level of involvement than co-production, as explained in the main body of text, and it was therefore excluded. |
| Conrad [ | Excluded | Talks about social innovation in education, not co-production. |
| Cron [ | Excluded | Discussion paper with no abstract. |
| Darra et al. [ | Excluded | The research study is co-produced. It doesn’t discuss |
| Desha and Ziviani [ | Excluded | Is a literature review. |
| Finkelstein et al. [ | Excluded | Aim is to develop a children’s study intervention in co-occurring disorders. Does not speak of co-production. |
| Fisher et al. [ | Included | Discusses how co-production is useful for survivors of childhood sexual abuse. |
| Fylan and Fylan [ | Excluded | Study examines who should have access to health and social care records. No discussion of co-production or any level of involvement and was therefore excluded. |
| Garcia et al. [ | Excluded | Talks about participatory research but not at the |
| Gerwin et al. [ | Excluded | Talks of factors resulting in speech disorders in childhood, not co-production. |
| Gordon and O’Brien [ | Excluded | An editorial—not a research study. |
| Granerud and Severinsson [ | Excluded | Discusses how knowledge of social networks influences or impacts service providers’ practice. |
| Greenham et al. [ | Excluded | A systematic review. |
| Haumann et al. [ | Excluded | Talks of co-production in the corporate world. Not mental health related. |
| Hopkins et al. [ | Included | Discusses participation and effects of attending co-produced recovery workshops for children and adolescents |
| Horgan et al. [ | Excluded | Sample consists of adults over the age of 18 years. |
| Hoyland et al. [ | Excluded | Conference abstract. |
| Kendall et al. [ | Excluded | Developing a participatory model for youth involvement in research. No mention of the higher-end involvement, including co-production. |
| Khoury [ | Excluded | Discussion paper. |
| Lambert and Carr [ | Excluded | Discussion paper. |
| Marston et al. [ | Excluded | Talks about family involvement in creating a DVD resource for families. However, does not discuss higher-level involvement, including co-production. |
| McAnuff et al. [ | Excluded | Discusses user participation in a research study. Does not discuss co-production. |
| McCauley et al. [ | Excluded | Discusses the co-creation of an interview schedule to understand young adult mental health recovery. Only focuses on co-creation and not the entire co-production process. |
| McLeigh [ | Excluded | Editorial paper. |
| McPherson et al. [ | Excluded | A systematic scoping review. |
| Mundal et al. [ | Excluded | RCT protocol. |
| Olasoji et al. [ | Excluded | Discusses involvement in a nursing handover. No mention of co-production, which is a higher level of involvement. |
| Ott et al. [ | Excluded | A policy-based analysis of narratives within |
| Pavarini et al. [ | Excluded | Discussion paper of co-production in research. |
| Pocobello et al. [ | Excluded | Discusses co-production within adult services. |
| Riebschleger et al. [ | Excluded | Talk of consumer parents’ recommendations for child psychoeducation. No co-production. |
| Robinson and Notara [ | Excluded | Study involves young people’s relationships and connections with family. Not answering review question. |
| Robinson and Webber [ | Excluded | A literature review. |
| Samuels et al. [ | Excluded | Study examining factors that are associated with use and rejection of formal and informal resources. |
| Sattoe et al. [ | Excluded | Study exploring patterns of autonomy and participation in young people’s services. No mention of possibility of higher-level involvement, such as that of co-production. |
| Schauer et al. [ | Excluded | Study examining the value and use of shared decision making in mental health care. Once again, it is not clear if this shared decision-making is in line with co-production, and it was therefore excluded. |
| Simmons et al. [ | Excluded | Study examining how peer workers can influence involvement of service users in shared decision making. Does not discuss co-production. |
| Souza et al. [ | Excluded | Not related to co-production. |
| Stephenson et al. [ | Excluded | Talks of co-production in adults and advanced |
| Stoyanov et al. [ | Excluded | Explores how young people conceptualise and |
| Strokosch and Osborne [ | Excluded | Looks at co-production with asylum seekers and |
| Susanti et al. [ | Excluded | Looking at service user and carer perspectives of Patient and Public Involvement (PPI). |
| Tal-Seban et al. [ | Excluded | Looks at what influences quality of life and participation in people with developmental coordination disorder. |
| Thom and Burnside [ | Excluded | Discussion paper. |
| Trollvik et al. [ | Excluded | Co-production in young people with physical co-morbidities. |
| Vis et al. [ | Excluded | A scoping review. |
| Von Peter and Schulz [ | Excluded | Psychiatrist perspective of what hinders co-production. |
| Walker et al. [ | Excluded | Involvement of young people in research. Does not discuss higher-level involvement, including co-production. |
| Weaver [ | Excluded | Discussion paper. |
| Wogden et al. [ | Excluded | Shared decision making for physical co-morbidities. |
| Wright et al. [ | Excluded | Talks of the co-occurrence of eating disorders and self-harm, not co-production. |
| Yeh et al. [ | Excluded | Looks at the relationship between pain and mental health. |
Round three.
| Article | Included/Excluded | Rationale (If Excluded) |
|---|---|---|
| Fisher et al. [ | Included | N/A |
| Hopkins et al. [ | Included | N/A |
Final studies included—2.