Literature DB >> 34780213

Creating academic-community partnerships to jointly enhance advocacy and research on violence and disability: Two case examples.

Emily M Lund1, Rosemary B Hughes2, Katherine E McDonald3, Sandra Leotti4, Marsha R Katz2, Leanne M Beers2, Christina Nicolaidis5.   

Abstract

OBJECTIVE: This article describes the use of community-based participatory research (CBPR) to foster bidirectional and equitable academic-community partnerships in two studies related to interpersonal violence and disability.
METHOD: We analyzed our methods and experiences in conducting these studies to focus on the ways in which CBPR methodology was used to jointly promote and enhance research and advocacy surrounding violence and disability in the research processes themselves and the resulting assessment and intervention products.
RESULTS: Our use of CBPR methodology allowed us to identify and address critical issues related to violence in the disability community, such as disability-related forms and experiences of violence, concerns and barriers linked to mandated reporting laws, and inaccessible measures and interventions, and to address them in research products. Additionally, our bidirectional academic-community partnerships led us to address overall accessibility of the research process itself as a means by which to amplify advocate voices in science.
CONCLUSIONS: Full, meaningful, and equitable participation of people with disabilities at every stage of the research process allows for the creation of partnerships that jointly advance research and advocacy around violence and disability. (PsycInfo Database Record (c) 2022 APA, all rights reserved).

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Year:  2021        PMID: 34780213      PMCID: PMC9107519          DOI: 10.1037/tra0001135

Source DB:  PubMed          Journal:  Psychol Trauma        ISSN: 1942-969X


  21 in total

Review 1.  Prevalence and risk of violence against adults with disabilities: a systematic review and meta-analysis of observational studies.

Authors:  Karen Hughes; Mark A Bellis; Lisa Jones; Sara Wood; Geoff Bates; Lindsay Eckley; Ellie McCoy; Christopher Mikton; Tom Shakespeare; Alana Officer
Journal:  Lancet       Date:  2012-02-28       Impact factor: 79.321

2.  You say you want a revolution: An empirical study of community-based participatory research with people with developmental disabilities.

Authors:  Katherine E McDonald; Erin Stack
Journal:  Disabil Health J       Date:  2016-01-03       Impact factor: 2.554

3.  The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants.

Authors:  Christina Nicolaidis; Dora Raymaker; Steven K Kapp; Amelia Baggs; E Ashkenazy; Katherine McDonald; Michael Weiner; Joelle Maslak; Morrigan Hunter; Andrea Joyce
Journal:  Autism       Date:  2019-04-03

4.  Facilitators and barriers to disclosing abuse among women with disabilities.

Authors:  Mary Ann Curry; Paula Renker; Susan Robinson-Whelen; Rosemary B Hughes; Paul Swank; Mary Oschwald; Laurie E Powers
Journal:  Violence Vict       Date:  2011

5.  The Role of Gender in Violence Experienced by Adults With Developmental Disabilities.

Authors:  Laura Platt; Laurie Powers; Sandra Leotti; Rosemary B Hughes; Susan Robinson-Whelen; Sherri Osburn; Elesia Ashkenazy; Leanne Beers; Emily M Lund; Christina Nicolaidis
Journal:  J Interpers Violence       Date:  2015-05-14

Review 6.  Mapping the impact of patient and public involvement on health and social care research: a systematic review.

Authors:  Jo Brett; Sophie Staniszewska; Carole Mockford; Sandra Herron-Marx; John Hughes; Colin Tysall; Rashida Suleman
Journal:  Health Expect       Date:  2012-07-19       Impact factor: 3.377

7.  Negotiating Participatory Research Processes With Domestic Violence Program Staff to Obtain Ecologically Valid Data.

Authors:  Nkiru Nnawulezi; Cris M Sullivan; Suzanne Marcus; Latoya Young; Margaret Hacskaylo
Journal:  J Interpers Violence       Date:  2019-12

8.  Development of a safety awareness group intervention for women with diverse disabilities: a pilot study.

Authors:  Rosemary B Hughes; Susan Robinson-Whelen; Alison C Pepper; Joy Gabrielli; Emily M Lund; Joanna Legerski; Michelle Shell Schwartz
Journal:  Rehabil Psychol       Date:  2010-08

9.  Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations.

Authors:  Christina Nicolaidis; Dora M Raymaker; Katherine E McDonald; Emily M Lund; Sandra Leotti; Steven K Kapp; Marsha Katz; Leanne M Beers; Clarissa Kripke; Joelle Maslak; Morrigan Hunter; Kelly Y Zhen
Journal:  Autism Adulthood       Date:  2020-03-11

10.  Enabling Action: Reflections upon Inclusive Participatory Research on Health with Women with Disabilities in the Philippines.

Authors:  Cathy Vaughan; Liz Gill-Atkinson; Alexandra Devine; Jerome Zayas; Raquel Ignacio; Joy Garcia; Krissy Bisda; Joy Salgado; M Jesusa Marco
Journal:  Am J Community Psychol       Date:  2020-10-20
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