Literature DB >> 33078846

Enabling Action: Reflections upon Inclusive Participatory Research on Health with Women with Disabilities in the Philippines.

Cathy Vaughan1, Liz Gill-Atkinson1, Alexandra Devine2, Jerome Zayas3, Raquel Ignacio4, Joy Garcia5, Krissy Bisda6, Joy Salgado7, M Jesusa Marco3.   

Abstract

People with disabilities experience health disparities arising from social, environmental, and system-level factors. Evidence from a range of settings suggests women with disabilities have reduced access to health information and experience barriers to screening, prevention, and care services. This results in greater unmet health needs, particularly in relation to sexual and reproductive health. Women with disabilities are also more likely to experience physical and sexual violence than women without disabilities, further undermining their health. Community-based participatory research (CBPR) can generate knowledge and underpin action to address such health disparities and promote health equity. However, the potential and challenges of disability inclusion in CBPR, particularly in contexts of poverty and structural inequality such as those found in low- and middle-income countries, are not well documented. In this paper, we reflect on our experience of implementing and evaluating W-DARE, a three-year program of disability-inclusive CBPR aiming to increase access to sexual and reproductive health and violence-response services for women with disabilities in the Philippines. We discuss strategies for increasing disability inclusion in research and use a framework of reflexive solidarity to consider the uneven distribution of the benefits, costs, and responsibilities for action arising from the W-DARE program.
© 2020 The Authors. American Journal of Community Psychology published by Wiley Periodicals LLC on behalf of Society for Community Research and Action.

Entities:  

Keywords:  Community-based participatory research; Disability; Inclusion; Philippines; Sexual and reproductive health; Solidarity; Violence

Year:  2020        PMID: 33078846      PMCID: PMC7821201          DOI: 10.1002/ajcp.12468

Source DB:  PubMed          Journal:  Am J Community Psychol        ISSN: 0091-0562


  8 in total

Review 1.  Finding the findings in qualitative studies.

Authors:  Margarete Sandelowski; Julie Barroso
Journal:  J Nurs Scholarsh       Date:  2002       Impact factor: 3.176

2.  Community-based research partnerships: challenges and opportunities.

Authors:  Meredith Minkler
Journal:  J Urban Health       Date:  2005-05-11       Impact factor: 3.671

3.  Narrative methods in quality improvement research.

Authors:  T Greenhalgh; J Russell; D Swinglehurst
Journal:  Qual Saf Health Care       Date:  2005-12

4.  Solidarity in contemporary bioethics--towards a new approach.

Authors:  Barbara Prainsack; Alena Buyx
Journal:  Bioethics       Date:  2012-09       Impact factor: 1.898

5.  "Freedom to go where I want": improving access to sexual and reproductive health for women with disabilities in the Philippines.

Authors:  Alexandra Devine; Raquel Ignacio; Krystle Prenter; Lauren Temminghoff; Liz Gill-Atkinson; Jerome Zayas; Ma Jesusa Marco; Cathy Vaughan
Journal:  Reprod Health Matters       Date:  2017-05-11

6.  Rapid assessment of disability in the Philippines: understanding prevalence, well-being, and access to the community for people with disabilities to inform the W-DARE project.

Authors:  Manjula Marella; Alexandra Devine; Graeme Ferdinand Armecin; Jerome Zayas; Ma Jesusa Marco; Cathy Vaughan
Journal:  Popul Health Metr       Date:  2016-08-02

7.  Sexual and reproductive health services for women with disability: a qualitative study with service providers in the Philippines.

Authors:  Kira Lee; Alexandra Devine; Ma Jesusa Marco; Jerome Zayas; Liz Gill-Atkinson; Cathy Vaughan
Journal:  BMC Womens Health       Date:  2015-10-15       Impact factor: 2.809

8.  W-DARE: a three-year program of participatory action research to improve the sexual and reproductive health of women with disabilities in the Philippines.

Authors:  Cathy Vaughan; Jerome Zayas; Alexandra Devine; Liz Gill-Atkinson; Manjula Marella; Joy Garcia; Krissy Bisda; Joy Salgado; Carolyn Sobritchea; Tanya Edmonds; Sally Baker; Ma Jesusa Marco
Journal:  BMC Public Health       Date:  2015-09-29       Impact factor: 3.295

  8 in total
  1 in total

1.  Creating academic-community partnerships to jointly enhance advocacy and research on violence and disability: Two case examples.

Authors:  Emily M Lund; Rosemary B Hughes; Katherine E McDonald; Sandra Leotti; Marsha R Katz; Leanne M Beers; Christina Nicolaidis
Journal:  Psychol Trauma       Date:  2021-11-15
  1 in total

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