Literature DB >> 34741507

Promoting health equity for deaf patients through the electronic health record.

Tyler G James1,2, Meagan K Sullivan, Joshua D Butler3, Michael M McKee1.   

Abstract

Language status can be conceptualized as an equity-relevant variable, particularly for non-English-speaking populations. Deaf and hard-of-hearing (DHH) individuals who use American Sign Language (ASL) to communicate comprise one such group and are understudied in health services research. DHH individuals are at high-risk of receiving lower-quality care due to ineffective patient-provider communication. This perspective outlines barriers to health equity research serving DHH ASL-users due to systems developed by large-scale informatics networks (eg, the Patient-Centered Clinical Outcomes Research Network), and institutional policies on self-serve cohort discovery tools. We list potential to help adequate capture of language status of DHH ASL-users to promote health equity for this population.
© The Author(s) 2021. Published by Oxford University Press on behalf of the American Medical Informatics Association. All rights reserved. For permissions, please email: journals.permissions@oup.com.

Entities:  

Keywords:  American Sign Language; PCORnet; deaf; electronic health record; language

Mesh:

Year:  2021        PMID: 34741507      PMCID: PMC8714292          DOI: 10.1093/jamia/ocab239

Source DB:  PubMed          Journal:  J Am Med Inform Assoc        ISSN: 1067-5027            Impact factor:   4.497


  17 in total

1.  The making of public health data: paradigms, politics, and policy.

Authors:  N Krieger
Journal:  J Public Health Policy       Date:  1992       Impact factor: 2.222

2.  Good intentions are not enough: how informatics interventions can worsen inequality.

Authors:  Tiffany C Veinot; Hannah Mitchell; Jessica S Ancker
Journal:  J Am Med Inform Assoc       Date:  2018-08-01       Impact factor: 4.497

3.  Obtaining data on patient race, ethnicity, and primary language in health care organizations: current challenges and proposed solutions.

Authors:  Romana Hasnain-Wynia; David W Baker
Journal:  Health Serv Res       Date:  2006-08       Impact factor: 3.402

4.  Assessing Health Literacy in Deaf American Sign Language Users.

Authors:  Michael M McKee; Michael K Paasche-Orlow; Paul C Winters; Kevin Fiscella; Philip Zazove; Ananda Sen; Thomas Pearson
Journal:  J Health Commun       Date:  2015

5.  Accuracy of race, ethnicity, and language preference in an electronic health record.

Authors:  Elissa V Klinger; Sara V Carlini; Irina Gonzalez; Stella St Hubert; Jeffrey A Linder; Nancy A Rigotti; Emily Z Kontos; Elyse R Park; Lucas X Marinacci; Jennifer S Haas
Journal:  J Gen Intern Med       Date:  2014-12-20       Impact factor: 5.128

6.  Hearing loss prevalence in the United States.

Authors:  Frank R Lin; John K Niparko; Luigi Ferrucci
Journal:  Arch Intern Med       Date:  2011-11-14

7.  "They're Not Willing To Accommodate Deaf patients": Communication Experiences of Deaf American Sign Language Users in the Emergency Department.

Authors:  Tyler G James; Kyle A Coady; Jeanne-Marie R Stacciarini; Michael M McKee; David G Phillips; David Maruca; JeeWon Cheong
Journal:  Qual Health Res       Date:  2021-11-25

8.  Prevalence of hearing loss and differences by demographic characteristics among US adults: data from the National Health and Nutrition Examination Survey, 1999-2004.

Authors:  Yuri Agrawal; Elizabeth A Platz; John K Niparko
Journal:  Arch Intern Med       Date:  2008-07-28

9.  Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science.

Authors:  Laura J Damschroder; David C Aron; Rosalind E Keith; Susan R Kirsh; Jeffery A Alexander; Julie C Lowery
Journal:  Implement Sci       Date:  2009-08-07       Impact factor: 7.327

10.  Community-Engaged Needs Assessment of Deaf American Sign Language Users in Florida, 2018.

Authors:  Tyler G James; Michael M McKee; Meagan K Sullivan; Glenna Ashton; Stephen J Hardy; Yary Santiago; David G Phillips; JeeWon Cheong
Journal:  Public Health Rep       Date:  2021-06-23       Impact factor: 3.117

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  1 in total

1.  Emergency department utilization among deaf and hard-of-hearing patients: A retrospective chart review.

Authors:  Tyler G James; Michael M McKee; M David Miller; Meagan K Sullivan; Kyle A Coady; Julia R Varnes; Thomas A Pearson; Ali M Yurasek; JeeWon Cheong
Journal:  Disabil Health J       Date:  2022-04-20       Impact factor: 4.615

  1 in total

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