Literature DB >> 34702406

Trading Vulnerabilities: Living with Parkinson's Disease before and after Deep Brain Stimulation.

Sara Goering1, Anna Wexler2, Eran Klein1,3.   

Abstract

Implanted medical devices-for example, cardiac defibrillators, deep brain stimulators, and insulin pumps-offer users the possibility of regaining some control over an increasingly unruly body, the opportunity to become part "cyborg" in service of addressing pressing health needs. We recognize the value and effectiveness of such devices, but call attention to what may be less clear to potential users-that their vulnerabilities may not entirely disappear but instead shift. We explore the kinds of shifting vulnerabilities experienced by people with Parkinson's disease (PD) who receive therapeutic deep brain stimulators to help control their tremors and other symptoms of PD.

Entities:  

Keywords:  Parkinson’s disease; cyborg; deep brain stimulation; implanted medical devices; vulnerability

Mesh:

Year:  2021        PMID: 34702406      PMCID: PMC9215176          DOI: 10.1017/S0963180121000098

Source DB:  PubMed          Journal:  Camb Q Healthc Ethics        ISSN: 0963-1801            Impact factor:   1.566


  16 in total

1.  Hope and patients' expectations in deep brain stimulation: healthcare providers' perspectives and approaches.

Authors:  Emily Bell; Bruce Maxwell; Mary Pat McAndrews; Abbas Sadikot; Eric Racine
Journal:  J Clin Ethics       Date:  2010

2.  Commentary: Dealing with the Aftermath.

Authors:  Yves Agid
Journal:  Camb Q Healthc Ethics       Date:  2016-10       Impact factor: 1.284

3.  Informed consent for early-phase clinical trials: therapeutic misestimation, unrealistic optimism and appreciation.

Authors:  Jodi Halpern; David Paolo; Andrew Huang
Journal:  J Med Ethics       Date:  2019-06-12       Impact factor: 2.903

4.  Beyond consent in research. Revisiting vulnerability in deep brain stimulation for psychiatric disorders.

Authors:  Emily Bell; Eric Racine; Paula Chiasson; Maya Dufourcq-Brana; Laura B Dunn; Joseph J Fins; Paul J Ford; Walter Glannon; Nir Lipsman; Mary Ellen Macdonald; Debra J H Mathews; Mary Pat McAndrews
Journal:  Camb Q Healthc Ethics       Date:  2014-05-27       Impact factor: 1.284

5.  Patients' perceptions of life shift after deep brain stimulation for primary dystonia--A qualitative study.

Authors:  Gun-Marie Hariz; Patricia Limousin; Stephen Tisch; Marjan Jahanshahi; Anncristine Fjellman-Wiklund
Journal:  Mov Disord       Date:  2011-05-28       Impact factor: 10.338

6.  Insights gleaned by measuring patients' stated goals for DBS: More than tremor.

Authors:  Cynthia S Kubu; Scott E Cooper; Andre Machado; Thomas Frazier; Jerrold Vitek; Paul J Ford
Journal:  Neurology       Date:  2016-12-02       Impact factor: 9.910

7.  "He's Back so I'm Not Alone": The Impact of Deep Brain Stimulation on Personality, Self, and Relationships in Parkinson's Disease.

Authors:  Cassandra J Thomson; Rebecca A Segrave; Eric Racine; Narelle Warren; Dominic Thyagarajan; Adrian Carter
Journal:  Qual Health Res       Date:  2020-08-28

8.  Persuasive bodies: Testimonies of deep brain stimulation and Parkinson's on YouTube.

Authors:  John Gardner; Narelle Warren; Courtney Addison; Gabby Samuel
Journal:  Soc Sci Med       Date:  2018-12-24       Impact factor: 4.634

Review 9.  Clinical Ethics in the Context of Deep Brain Stimulation for Movement Disorders.

Authors:  Cynthia S Kubu; Paul J Ford
Journal:  Arch Clin Neuropsychol       Date:  2017-11-01       Impact factor: 2.813

10.  Ethical Issues in Intraoperative Neuroscience Research: Assessing Subjects' Recall of Informed Consent and Motivations for Participation.

Authors:  Anna Wexler; Rebekah J Choi; Ashwin G Ramayya; Nikhil Sharma; Brendan J McShane; Love Y Buch; Melanie P Donley-Fletcher; Joshua I Gold; Gordon H Baltuch; Sara Goering; Eran Klein
Journal:  AJOB Empir Bioeth       Date:  2021-07-06
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