Literature DB >> 30599435

Persuasive bodies: Testimonies of deep brain stimulation and Parkinson's on YouTube.

John Gardner1, Narelle Warren2, Courtney Addison3, Gabby Samuel4.   

Abstract

Contemporary publics actively engage with diverse forms of media when seeking health-related information. The hugely popular digital media platform YouTube has become one means by which people share their experiences of healthcare. In this paper, we examine amateur YouTube videos featuring people receiving Deep Brain Stimulation (DBS) for the treatment of Parkinson's disease. DBS has become a widely implemented treatment, and it is surrounded by high expectations that can create difficulty for clinicians, patients and their families. We examine how DBS, Parkinson's disease, and DBS recipients themselves, are delineated within these YouTube videos. The videos, we demonstrate, contain common compositional and stylistic elements that collectively represent DBS as a technological fix, and which accentuate the autonomy of the DBS recipient. The relational, interpersonal dimensions of chronic illness, and the complex impact of DBS on family dynamics, are elided. We therefore shed light on the means by which high expectations regarding DBS are sustained and circulated, and more generally, we illustrate how potentially powerful representations of medical technologies can emerge from the intersection of social media platforms, afflicted bodies and patient narratives.
Copyright © 2018 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Chronic illness; Digital health; Narrative; Neurostimulation; Social media; Technology

Mesh:

Year:  2018        PMID: 30599435     DOI: 10.1016/j.socscimed.2018.12.036

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  3 in total

1.  Trading Vulnerabilities: Living with Parkinson's Disease before and after Deep Brain Stimulation.

Authors:  Sara Goering; Anna Wexler; Eran Klein
Journal:  Camb Q Healthc Ethics       Date:  2021-10       Impact factor: 1.566

2.  Perspectives on Deep Brain Stimulation and Its Earlier Use for Parkinson's Disease: A Qualitative Study of US Patients.

Authors:  Laura Y Cabrera; Karen Kelly-Blake; Christos Sidiropoulos
Journal:  Brain Sci       Date:  2020-01-08

Review 3.  A Long Way to Go: Patient Perspectives on Digital Health for Parkinson's Disease.

Authors:  Sara Riggare; Jon Stamford; Maria Hägglund
Journal:  J Parkinsons Dis       Date:  2021       Impact factor: 5.568

  3 in total

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