| Literature DB >> 34675747 |
Penelope J Slater1, Caroline J Osborne1, Anthony R Herbert2,3.
Abstract
PURPOSE: Novice and experienced professionals who care for children with life limiting conditions throughout Australia were provided with pediatric palliative care (PPC) education through the Quality of Care Collaborative Australia (QuoCCA). Impact evaluation has shown this education to be beneficial. This study examines the longer term outcomes reported by the participants more than 4 months following education.Entities:
Keywords: education outcomes; evaluation; medical education; palliative care; practice improvements
Year: 2021 PMID: 34675747 PMCID: PMC8517421 DOI: 10.2147/AMEP.S334872
Source DB: PubMed Journal: Adv Med Educ Pract ISSN: 1179-7258
The Questions Included on the QuoCCA Outcome Survey
| Question Number | Question | Response Type/Categories |
|---|---|---|
| 1 | What is your name? | Free text |
| 2 | What is your occupation group? | Medical, Nursing, Allied health (please specify discipline below), Administration, Other (please specify). |
| 3 | What type of organization did you work for when you undertook the QuoCCA pediatric palliative care education? | Public health facility/service, Private health service, General practice, Other (please specify) |
| 4 | What was the name of that organization? | Free text |
| 5 | What was the location (town/city) where you attended the QuoCCA education session? | Free text |
| 6 | Approximately what month and year did this education session take place? | Free text |
| 7 | Was the education session related to the care of a specific patient (pop up education) or planned professional development (scheduled education)? | Pop up education, Scheduled education, Other (please specify). |
| 8 | How valuable did you find the QuoCCA education in caring for children/young people and families with pediatric palliative care needs? | No value, Minimal value, Neutral, Valuable, Extremely valuable |
| 9 | What were the most valuable aspects of the QuoCCA education session? | Open text |
| 10 | How helpful overall was the QuoCCA education in making a difference to your practice in caring for pediatric palliative patients? | Not at all helpful, A little helpful, Moderately helpful, Very helpful, Extremely helpful |
| 11 | If QuoCCA education has made a difference to your practice and care of patients and families, describe this. | Open text |
| 12 | Please describe any barriers to you applying the QuoCCA education to your practice? | Open text |
| 13 | Please rate how helpful the QuoCCA education was in improving your knowledge, skills or confidence specifically in the following areas: | Not at all helpful, A little helpful, Moderately helpful, Very helpful, Extremely helpful, N/A for me, Not covered in this session |
| 13a | Benefits of the palliative approach | As above |
| 13b | Benefits of early referral and support by a pediatric palliative care service | As above |
| 13c | Advance care planning | As above |
| 13d | Palliative assessment and intervention | As above |
| 13e | Palliative care resources | As above |
| 13f | Responding to physical symptoms | As above |
| 13g | Responding to psychosocial needs | As above |
| 13h | Supporting the patient’s and family’s spiritual needs | As above |
| 13i | Communication skills | As above |
| 13j | Providing bereavement care | As above |
| 13k | Supporting health professionals and self care | As above |
| 13l | Death reviews and methods to evaluate and improve services | As above |
| 25 | Are there any other topics which you would like to see covered in sessions in the future? | Open text |
| 26 | Any other comments? | Open text |
Percentage of Responses for the Question “How Valuable Did You Find the QuoCCA Education in Caring for Children/Young People and Families with Pediatric Palliative Care Needs?” by Education Type
| Rating | Total (n=152) | Pop Ups (n=33) | Scheduled (n=113) |
|---|---|---|---|
| Extremely valuable | 65.1 | 72.7 | 63.7 |
| Valuable | 32.9 | 27.3 | 33.6 |
| Neutral | 1.3 | 1.8 | |
| Minimal value | 0.7 | 0.9 | |
| No value | |||
| Total | 100 | 100 | 100 |
Top 20 Themes from 139 Responses Related to the Most Valuable Aspects of the QuoCCA Education
| What Were the Most Valuable Aspects of the QuoCCA Education Session? | Responses (n) |
|---|---|
| PPCS services/support/relationship | 29 |
| PPC information/holistic care/education/relevance | 21 |
| Case studies/sharing experiences | 15 |
| Resources/local services | 15 |
| MD Team approach | 13 |
| Discussions re issues/ethics/boundaries | 10 |
| Symptom management/pain | 10 |
| All of the education | 9 |
| Brainstorming ideas, asking questions, learning from experts, face to face education | 9 |
| Supporting family needs | 9 |
| Treatment/options of care/end of life care/complications/child’s condition | 8 |
| Parent perspective | 8 |
| Communication with families | 6 |
| Practical wisdom, hands on stations | 5 |
| Networking | 4 |
| PPCS referral | 4 |
| Grief | 3 |
| Hummingbird House (children’s hospice) | 3 |
| Pharmacology/medication | 3 |
| Validation of care provided | 3 |
Percentage of Responses for the Question “How Helpful Overall Was the QuoCCA Education in Making a Difference to Your Practice in Caring for Pediatric Palliative Patients?” by Education Type
| Helpfulness in Making a Difference | Total (n=152) | Pop Ups (n=33) | Scheduled (n=113) |
|---|---|---|---|
| Extremely helpful | 37.8 | 32.1 | 40.7 |
| Very helpful | 40.3 | 46.4 | 38.4 |
| Moderately helpful | 16.8 | 14.3 | 18.6 |
| A little helpful | 5.0 | 7.1 | 2.3 |
| Not at all helpful | 0.0 |
Top 20 Themes from 109 Responses Related to Changes to Practice as a Result of the QuoCCA Education
| If QuoCCA Education Has Made a Difference to Your Practice and Care of Patients and Families, Describe This. | Responses (n) |
|---|---|
| Local and statewide resources and services available/additional supports/Hummingbird House (children’s hospice) | 15 |
| Better communication with families/better listening/answering difficult questions for PC patients | 14 |
| Increased confidence in caring for/advocating/validation of our care | 14 |
| Insight into meeting needs of patients and families/adolescent & young adult needs/holistic support | 12 |
| Increased knowledge, skills and understanding | 10 |
| Understanding re symptom management/improved practical management/procedures | 7 |
| Earlier referral to PPCS | 6 |
| Support offered by PPCS/1800 number/end of life planning/memory making/Subcutaneous infusion pump | 6 |
| Care management plans/ongoing changes to plan/fully integrated plan for family/future PC planning | 6 |
| Understanding role of multi-disciplinary team/collaborative approach/working with peers/my role | 5 |
| Offer better empathy and understanding/increased compassion for families/patient-centric care | 5 |
| Improved communication and team building with local services/networking with local staff | 4 |
| Impact of nursing staff/time to spend with patients | 3 |
| Awareness of PPC/life limiting conditions/disease progression | 3 |
| Informed re local regional and state processes/referral processes | 2 |
| Normalizing PC services for families/PC positive for families | 2 |
| Changed the way I think about PC/holistic PC | 2 |
| Able to discuss PPC with students | 1 |
| Clear re issues faced by PC families | 1 |
| Grief process | 1 |
Themes from 46 Responses Related to Barriers in Applying QuoCCA Education
| Please Describe Any Barriers to You Applying the QuoCCA Education to Your Practice? | Responses (n) |
|---|---|
| A very small number of pediatric cases | 21 |
| Time constraints/work part time/rostering | 6 |
| Lack of resources | 2 |
| Taboo subject, more education needed for doctors, families more aware of supports | 1 |
| Reluctance to refer | 1 |
| Delayed referral for PC - referred only just prior to death | 1 |
| Stigma of PC for families | 1 |
| Not always possible to prepare | 1 |
| Website access | 1 |
| Emotions | 1 |
| Coordination of care between community and hospital, little handover | 1 |
| Lack of allied health support, distance to PC team | 1 |
| Lack of involvement of service by general practitioner | 1 |
Percentage of Responses of Extremely Valuable or Valuable to the Question “Please Rate How Helpful the QuoCCA Education Was in Improving Your Knowledge, Skills or Confidence Specifically in the Following Areas”
| Question | Total (n=152) | Pop Up (n=33) | Scheduled (n=113) |
|---|---|---|---|
| Benefits of early referral and support by a PPC service | 91.9 | 92.3 | 92.4 |
| Responding to psychosocial needs | 91.7 | 93.8 | 91.6 |
| Benefits of the palliative approach | 91.5 | 90.3 | 92.4 |
| Palliative care resources | 91.0 | 87.5 | 91.7 |
| Communication skills | 89.7 | 87.1 | 90.8 |
| Advance care planning | 88.7 | 93.5 | 87.6 |
| Palliative assessment and intervention | 87.5 | 96.4 | 85.4 |
| Responding to physical symptoms | 86.5 | 93.5 | 83.7 |
| Providing bereavement care | 84.5 | 85.2 | 84.7 |
| Supporting the patient’s and family’s spiritual needs | 84.1 | 90.6 | 82.2 |
| Supporting health professionals and self-care | 83.7 | 92.9 | 81.3 |
| Death reviews and methods to evaluate and improve services | 67.7 | 82.4 | 65.8 |
Top 20 Themes Related to Topics That Responders Would Like to See in Future Sessions (40 Responders)
| Are There Any Other Topics Which You Would Like to See Covered in Sessions in the Future? | Responses (n) |
|---|---|
| Symptom management | 4 |
| Ethics | 3 |
| Case studies discussion | 3 |
| Pain management | 3 |
| Career pathways/work experience | 2 |
| School support | 2 |
| Pop up model helpful/support specific to patient | 2 |
| Resilience and self-care for staff | 2 |
| Resources/new resources | 2 |
| Memory making | 2 |
| Medications/medicinal cannabis | 2 |
| Allied health care | 2 |
| Family story | 1 |
| Communication | 1 |
| Needle phobia | 1 |
| Disabilities | 1 |
| Euthanasia | 1 |
| Adult transition | 1 |
| Nikki pump management | 1 |
| Adult vs child symptom management for pain | 1 |