Literature DB >> 34647824

The Ethics in Long-Term Care Model: Everyday Ethics and the Unseen Moral Landscape of Assisted Living.

Candace L Kemp1, Jason Lesandrini2, Jennifer Craft Morgan1, Elisabeth O Burgess1.   

Abstract

Assisted living (AL) communities are long-term care settings where people live, work, and visit, and where social relationships and care, including end-of-life care, are negotiated. Assisted living is fraught with uncertainty and conflict about values, especially given residents' cognitive and physical frailty. These value-laden issues have implications for both resident and care partners' experiences. Yet, almost no research has examined ethics in this complex care environment. In this article, we draw on and synthesize existing theory, research, and practice knowledge to offer a conceptual model and discuss case examples that highlight everyday ethical issues in AL. We conceptualize the moral decision-making process and hence the moral landscape of AL, as influenced by a myriad of multi-level factors that shape interpersonal encounters and decision-making involving residents and their care partners, which ultimately shape individuals' actions and experiences in the setting. We conclude by discussing implications for research, policy, and practice.

Entities:  

Keywords:  care partnerships; caregiving; dementia; end of life; ethical decision-making; family relationships; long-term care; qualitative methods

Mesh:

Year:  2021        PMID: 34647824      PMCID: PMC8967785          DOI: 10.1177/07334648211049806

Source DB:  PubMed          Journal:  J Appl Gerontol        ISSN: 0733-4648


  23 in total

1.  Managing the care needs of low-income board-and-care home residents: a process of negotiating risks.

Authors:  Molly M Perkins; Mary M Ball; Frank J Whittington; Bess L Combs
Journal:  Qual Health Res       Date:  2004-04

2.  Increasing Prevalence of Assisted Living as a Substitute for Private-Pay Long-Term Nursing Care.

Authors:  Benjamin C Silver; David C Grabowski; Pedro L Gozalo; David Dosa; Kali S Thomas
Journal:  Health Serv Res       Date:  2018-07-31       Impact factor: 3.402

3.  Convoys of care: theorizing intersections of formal and informal care.

Authors:  Candace L Kemp; Mary M Ball; Molly M Perkins
Journal:  J Aging Stud       Date:  2012-11-15

4.  "That Is So Common Everyday . . . Everywhere You Go": Sexual Harassment of Workers in Assisted Living.

Authors:  Elisabeth O Burgess; Christina Barmon; James R Moorhead; Molly M Perkins; Alexis A Bender
Journal:  J Appl Gerontol       Date:  2016-02-09

Review 5.  Role of a Clinical Ethics Committee in Residential Aged Long-Term Care Settings: A Systematic Review.

Authors:  Alice L Holmes; Lyndal Bugeja; Joseph E Ibrahim
Journal:  J Am Med Dir Assoc       Date:  2020-07-28       Impact factor: 4.669

6.  Maneuvering Together, Apart, and at Odds: Residents' Care Convoys in Assisted Living.

Authors:  Candace L Kemp; Mary M Ball; Jennifer Craft Morgan; Patrick J Doyle; Elisabeth O Burgess; Molly M Perkins
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2018-04-16       Impact factor: 4.077

7.  Sexual frequency decline from midlife to later life.

Authors:  Amelia Karraker; John Delamater; Christine R Schwartz
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2011-06-10       Impact factor: 4.077

8.  Negotiating the Lack of Intimacy in Assisted Living: Resident Desires, Barriers, and Strategies.

Authors:  Alexis A Bender; Elisabeth O Burgess; Christina Barmon
Journal:  J Appl Gerontol       Date:  2017-12-18

9.  Limiting and Promoting Resident Self-Care in Assisted Living.

Authors:  Jennifer C Morgan; Candace L Kemp; Christina Barmon; Andrea Fitzroy; Mary M Ball
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2021-09-13       Impact factor: 4.077

10.  Assisted Living Residents With Dementia: Being Out in the World and Negotiating Connections.

Authors:  Joy M Ciofi; Candace L Kemp; Alexis A Bender
Journal:  Gerontologist       Date:  2022-02-09
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