Literature DB >> 29401238

Maneuvering Together, Apart, and at Odds: Residents' Care Convoys in Assisted Living.

Candace L Kemp1,2, Mary M Ball3, Jennifer Craft Morgan1,2,4, Patrick J Doyle5, Elisabeth O Burgess1,2, Molly M Perkins3,6.   

Abstract

Objectives: Frail and disabled individuals such as assisted living residents are embedded in "care convoys" comprised of paid and unpaid caregivers. We sought to learn how care convoys are configured and function in assisted living and understand how and why they vary and with what resident and caregiver outcomes. Method: We analyzed data from a qualitative study involving formal in-depth interviews, participant observation and informal interviewing, and record review. We prospectively studied 28 residents and 114 care convoy members drawn from four diverse assisted living communities over 2 years.
Results: Care convoys involved family and friends who operated individually or shared responsibility, assisted living staff, and multiple external care workers. Residents and convoy members engaged in processes of "maneuvering together, apart, and at odds" as they negotiated the care landscape routinely and during health crises. Based on consensus levels, and the quality of collaboration and communication, we identified three main convoy types: cohesive, fragmented, and discordant. Discussion: Care convoys clearly shape care experiences and outcomes. Identifying strategies for establishing effective communication and collaboration practices and promoting convoy member consensus, particularly over time, is essential to the creation and maintenance of successful and supportive care partnerships.

Entities:  

Mesh:

Year:  2018        PMID: 29401238      PMCID: PMC6018839          DOI: 10.1093/geronb/gbx184

Source DB:  PubMed          Journal:  J Gerontol B Psychol Sci Soc Sci        ISSN: 1079-5014            Impact factor:   4.077


  18 in total

1.  Experiences of frequent visits to the emergency department by residents with dementia in assisted living.

Authors:  Tara J Sharpp; Heather M Young
Journal:  Geriatr Nurs       Date:  2015-10-27       Impact factor: 2.361

2.  Families filling the gap: comparing family involvement for assisted living and nursing home residents with dementia.

Authors:  Cynthia L Port; Sheryl Zimmerman; Christianna S Williams; Debra Dobbs; John S Preisser; Sharon Wallace Williams
Journal:  Gerontologist       Date:  2005-10

3.  Family and community: changing roles in an aging society.

Authors:  M H Cantor
Journal:  Gerontologist       Date:  1991-06

4.  Convoys of care: theorizing intersections of formal and informal care.

Authors:  Candace L Kemp; Mary M Ball; Molly M Perkins
Journal:  J Aging Stud       Date:  2012-11-15

5.  Typologies of caregiving families: family congruence and individual well-being.

Authors:  R A Pruchno; C J Burant; N D Peters
Journal:  Gerontologist       Date:  1997-04

Review 6.  Improving health care for assisted living residents.

Authors:  Robert L Kane; John R Mach
Journal:  Gerontologist       Date:  2007

7.  Seeking assent and respecting dissent in dementia research.

Authors:  Betty S Black; Peter V Rabins; Jeremy Sugarman; Jason H Karlawish
Journal:  Am J Geriatr Psychiatry       Date:  2010-01       Impact factor: 4.105

8.  Comparing families and staff in nursing homes and assisted living: implications for social work practice.

Authors:  Sheryl Zimmerman; Lauren W Cohen; David Reed; Lisa P Gwyther; Tiffany Washington; John G Cagle; Anna S Beeber; Philip D Sloane
Journal:  J Gerontol Soc Work       Date:  2013-07-22

9.  Pathways to Assisted Living: The Influence of Race and Class.

Authors:  Mary M Ball; Molly M Perkins; Carole Hollingsworth; Frank J Whittington; Sharon V King
Journal:  J Appl Gerontol       Date:  2009-02-01

10.  Long-Term Care Providers and services users in the United States: data from the National Study of Long-Term Care Providers, 2013-2014.

Authors:  Lauren Harris-Kojetin; Manisha Sengupta; Eunice Park-Lee; Roberto Valverde; Christine Caffrey; Vincent Rome; Jessica Lendon
Journal:  Vital Health Stat 3       Date:  2016-02
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  13 in total

1.  Individualization and the Health Care Mosaic in Assisted Living.

Authors:  Candace L Kemp; Mary M Ball; Molly M Perkins
Journal:  Gerontologist       Date:  2019-07-16

2.  Educational Attainment Differences in Attitudes toward Provisions of IADL Care for Older Adults in the U.S.

Authors:  Sarah E Patterson
Journal:  J Aging Soc Policy       Date:  2020-02-01

3.  Communicative Competence: Responding to Residents' Health Changes in Assisted Living.

Authors:  Candace L Kemp; Mary M Ball; Kendra Jason; Joy Anna Dillard Appel; Andrea F Fitzroy
Journal:  Gerontologist       Date:  2020-05-15

4.  "I'm not terribly lonely": Advancing the understanding of intimacy among older adults.

Authors:  Andrea F Fitzroy; Candace L Kemp; Elisabeth O Burgess
Journal:  J Aging Stud       Date:  2022-02-10

5.  Caring Together: Trajectories of Paid and Family Caregiving Support to Those Living in the Community With Dementia.

Authors:  Jennifer M Reckrey; Lihua Li; Serena Zhan; Jennifer Wolff; Cynthia Yee; Katherine A Ornstein
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2022-05-20       Impact factor: 4.942

6.  Intergenerational Relationships, Family Caregiving Policy, and COVID-19 in the United States.

Authors:  Jeffrey E Stokes; Sarah E Patterson
Journal:  J Aging Soc Policy       Date:  2020-06-03

7.  Paid Caregivers in the Community-based Dementia Care Team: Do Family Caregivers Benefit?

Authors:  Jennifer M Reckrey; Kathrin Boerner; Emily Franzosa; Evan Bollens-Lund; Katherine A Ornstein
Journal:  Clin Ther       Date:  2021-05-08       Impact factor: 3.637

8.  Limiting and Promoting Resident Self-Care in Assisted Living.

Authors:  Jennifer C Morgan; Candace L Kemp; Christina Barmon; Andrea Fitzroy; Mary M Ball
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2021-09-13       Impact factor: 4.077

9.  Coronavirus Disease 2019 Regulatory Response in United States-Assisted Living Communities: Lessons Learned.

Authors:  Sarah Dys; Jaclyn Winfree; Paula Carder; Sheryl Zimmerman; Kali S Thomas
Journal:  Front Public Health       Date:  2021-05-19

10.  Assisted Living Residents With Dementia: Being Out in the World and Negotiating Connections.

Authors:  Joy M Ciofi; Candace L Kemp; Alexis A Bender
Journal:  Gerontologist       Date:  2022-02-09
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