Literature DB >> 34632321

Physicians' strategies for using family history data: having the data is not the same as using the data.

Peter Taber1, Parveen Ghani2, Joshua D Schiffman3,4, Wendy Kohlmann4,5, Rachel Hess5,6, Valli Chidambaram2, Kensaku Kawamoto2, Rosalie G Waller2, Damian Borbolla2, Guilherme Del Fiol2, Charlene Weir2.   

Abstract

OBJECTIVE: To identify needs in a clinical decision support tool development by exploring how primary care providers currently collect and use family health history (FHH).
DESIGN: Survey questionnaires and semi-structured interviews were administered to a mix of primary and specialty care clinicians within the University of Utah Health system (40 surveys, 12 interviews).
RESULTS: Three key themes emerged regarding providers' collection and use of FHH: (1) Strategies for collecting FHH vary by level of effort; (2) Documentation practices extend beyond the electronic health record's dedicated FHH module; and (3) Providers desire feedback from genetic services consultation and are uncertain how to refer patients to genetic services.
CONCLUSION: Study findings highlight the varying degrees of engagement that providers have with collecting FHH. Improving the integration of FHH into workflow, and providing decision support, as well as links and tools to help providers better utilize genetic counseling may improve patient care. Published by Oxford University Press on behalf of the American Medical Informatics Association 2020. This work is written by US Government employees and is in the public domain in the US.

Entities:  

Keywords:  clinical decision support; electronic health record; family health history; qualitative; survey; workflow

Year:  2020        PMID: 34632321      PMCID: PMC7660959          DOI: 10.1093/jamiaopen/ooaa035

Source DB:  PubMed          Journal:  JAMIA Open        ISSN: 2574-2531


  42 in total

Review 1.  Role of family history and family testing in cardiovascular risk assessment.

Authors:  R M Lauer
Journal:  Am J Med       Date:  1999-08-23       Impact factor: 4.965

2.  Family history of colorectal cancer: how often and how accurately is it recorded?

Authors:  J Church; E McGannon
Journal:  Dis Colon Rectum       Date:  2000-11       Impact factor: 4.585

3.  Collection of family health history for assessment of chronic disease risk in primary care.

Authors:  Karen P Powell; Carol A Christianson; Susan E Hahn; Gaurav Dave; Leslie R Evans; Susan H Blanton; Elizabeth Hauser; Astrid Agbaje; Lori A Orlando; Geoffrey S Ginsburg; Vincent C Henrich
Journal:  N C Med J       Date:  2013 Jul-Aug

4.  Family health history: the case for better tools.

Authors:  Brandon M Welch; Willard Dere; Joshua D Schiffman
Journal:  JAMA       Date:  2015-05-05       Impact factor: 56.272

5.  Primary care professionals' perceptions of using a short family history questionnaire.

Authors:  Shenaz Ahmed; Judith Hayward; Mushtaq Ahmed
Journal:  Fam Pract       Date:  2016-08-17       Impact factor: 2.267

6.  Determining Onset for Familial Breast and Colorectal Cancer from Family History Comments in the Electronic Health Record.

Authors:  Danielle L Mowery; Kensaku Kawamoto; Rick Bradshaw; Wendy Kohlmann; Joshua D Schiffman; Charlene Weir; Damian Borbolla; Wendy W Chapman; Guilherme Del Fiol
Journal:  AMIA Jt Summits Transl Sci Proc       Date:  2019-05-06

7.  Prompting Primary Care Providers about Increased Patient Risk As a Result of Family History: Does It Work?

Authors:  Philip Zazove; Melissa A Plegue; Wendy R Uhlmann; Mack T Ruffin
Journal:  J Am Board Fam Med       Date:  2015 May-Jun       Impact factor: 2.657

8.  Breast cancer risk assessment and management in primary care: provider attitudes, practices, and barriers.

Authors:  Susan A Sabatino; Ellen P McCarthy; Russell S Phillips; Risa B Burns
Journal:  Cancer Detect Prev       Date:  2007-11-26

Review 9.  Understanding the contribution of family history to colorectal cancer risk and its clinical implications: A state-of-the-science review.

Authors:  Jan T Lowery; Dennis J Ahnen; Paul C Schroy; Heather Hampel; Nancy Baxter; C Richard Boland; Randall W Burt; Lynn Butterly; Megan Doerr; Mary Doroshenk; W Gregory Feero; Nora Henrikson; Uri Ladabaum; David Lieberman; Elizabeth G McFarland; Susan K Peterson; Martha Raymond; N Jewel Samadder; Sapna Syngal; Thomas K Weber; Ann G Zauber; Robert Smith
Journal:  Cancer       Date:  2016-06-03       Impact factor: 6.860

10.  Formative evaluation of clinician experience with integrating family history-based clinical decision support into clinical practice.

Authors:  Megan Doerr; Emily Edelman; Emily Gabitzsch; Charis Eng; Kathryn Teng
Journal:  J Pers Med       Date:  2014-03-26
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  4 in total

1.  Association of Disparities in Family History and Family Cancer History in the Electronic Health Record With Sex, Race, Hispanic or Latino Ethnicity, and Language Preference in 2 Large US Health Care Systems.

Authors:  Daniel Chavez-Yenter; Melody S Goodman; Yuyu Chen; Xiangying Chu; Richard L Bradshaw; Rachelle Lorenz Chambers; Priscilla A Chan; Brianne M Daly; Michael Flynn; Amanda Gammon; Rachel Hess; Cecelia Kessler; Wendy K Kohlmann; Devin M Mann; Rachel Monahan; Sara Peel; Kensaku Kawamoto; Guilherme Del Fiol; Meenakshi Sigireddi; Saundra S Buys; Ophira Ginsburg; Kimberly A Kaphingst
Journal:  JAMA Netw Open       Date:  2022-10-03

Review 2.  Current state and future directions of genomic medicine in aortic dissection: A path to prevention and personalized care.

Authors:  Alana C Cecchi; Madeline Drake; Chrisanne Campos; Jake Howitt; Jonathan Medina; Scott M Damrauer; Sherene Shalhub; Dianna M Milewicz
Journal:  Semin Vasc Surg       Date:  2022-02-25       Impact factor: 1.222

3.  Identifying Patients Who Meet Criteria for Genetic Testing of Hereditary Cancers Based on Structured and Unstructured Family Health History Data in the Electronic Health Record: Natural Language Processing Approach.

Authors:  Jianlin Shi; Keaton L Morgan; Richard L Bradshaw; Se-Hee Jung; Wendy Kohlmann; Kimberly A Kaphingst; Kensaku Kawamoto; Guilherme Del Fiol
Journal:  JMIR Med Inform       Date:  2022-08-11

4.  Comparison of a Focused Family Cancer History Questionnaire to Family History Documentation in the Electronic Medical Record.

Authors:  Kristin Clift; Sarah Macklin-Mantia; Margaret Barnhorst; Lindsey Millares; Zacharay King; Anjali Agarwal; Richard John Presutti
Journal:  J Prim Care Community Health       Date:  2022 Jan-Dec
  4 in total

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