| Literature DB >> 34625863 |
Jennifer Cunningham-Erves1, Elizabeth C Stewart2, Jillian Duke2, Leah Alexander3, Jamaine Davis4, Derek Wilus3, Kimberlee Wyche-Etheridge5, Stephania T Miller2.
Abstract
The purpose of this sequential, explanatory mixed methods study is to determine changes in attitudes towards research, trust in medical researchers and the process, and willingness to participate in research among African Americans immediately after receiving past study findings in a community listening session (CLS). We developed and implemented four CLSs with a total of 57 African Americans who were either past research participants or members of the community-at-large. In the quantitative (dominant) phase, 32 participants completed pre-post surveys and 10 of those participants completed the follow-up semi-structured interviews. Paired samples t-tests and McNemar's test determined bivariate differences between pre- and post-surveys. Thematic analyses determined emerging themes to further understand these differences. There was a significant increase in: (1) perceived advantages of clinical trials pretest (M = 26.63, SD = 5.43) and post-test (M = 28.53, SD = 4.24, p < .01); and (2) in trust in medical researchers from pre to post (M = 36.16, SD = 10.40 vs. M = 27.53, SD = 9.37, p < 0.001). There was no significant difference in pre- and post-tests as it relates to perceived disadvantages of clinical trials and willingness to participate. Qualitative analysis yielded the following themes: (1) sharing research results and the impact on attitudes towards research; (2) community listening sessions: a trust building strategy; and (3) satisfaction with the community listening session. Community listening sessions hold promise as a method that researchers can use to simultaneously disseminate research findings and positively impact research perceptions and potentially participation among racial and ethnic minorities.Entities:
Keywords: Community; Dissemination; Listening session; Past research participants; Trust
Mesh:
Year: 2021 PMID: 34625863 PMCID: PMC8500252 DOI: 10.1007/s10900-021-01038-4
Source DB: PubMed Journal: J Community Health ISSN: 0094-5145
Content for radio community listening session program
| Segment 1: Introduction of the research process and study | Researcher introduction Describe study purpose Highlight research process Discuss community’s role (if applicable) |
| Segment 2: Introduction of researcher | Provide researcher background and qualifications to conduct study Rationale for the work Identify the health disparity being addressed |
| Segment 3: Discussion of study results and next steps | Identify top two to three results Describe next steps as a researcher Emphasize what the community can do with results Provide advice to community members to be involved in study’s and the dissemination of study results |
Baseline characteristics for participants completing pre-post tests (N = 32)
| Characteristic | Mean | SD |
|---|---|---|
| Age (years) | 44.03 | 18.78 |
*p < .05; **p < .01; ***p < .001; Numbers per category may not equal total n due to missing values
Pre-post changes in trust in medical researchers, advantages of clinical trials, disadvantages of clinical trials, and willingness to participate in clinical trials (unadjusted), overall
| Paired samples t-test | ||||||
|---|---|---|---|---|---|---|
| Pre | Post | t-test | p-value | |||
| Mean | SD | Mean | SD | |||
| Advantages of clinical trials | 26.63 | 5.43 | 28.53 | 4.24 | −3.690 | 0.001** |
| Disadvantages of clinical trials | 19.25 | 5.70 | 19.06 | 5.52 | 0.340 | 0.736 |
| Trust in medical researchers | 36.16 | 10.40 | 27.53 | 9.37 | 8.650 | < 0.001*** |
*p < .05; **p < .01; ***p < .001; Data are means and standard deviations for advantages of clinical trials, disadvantages of clinical trials, and trust in medical researchers (1-strongly disagree to 5- strongly agree) for CLS objectives
Themes, subthemes, and sample quotes from participants
| Theme | Subtheme(s) | Participant quotes |
|---|---|---|
| Satisfaction with community listening session | Community listening session experience | “It was in interesting experience, I’d never done something like this before, I would be willing to participate again.” “I like how accessible it is. I like this I was able to be with researchers, and that felt super comfortable for me. I liked the fact that it felt like everyone was learning.” |
| Researcher | “…we don’t always get all of the information that we need, and especially getting information from Black doctors, that’s very important…the fact we have Black doctors explain these things to us that—I like that.” “I remember him being informative. He explained things to the best of his ability, and it was easy to understand what he was saying.” | |
| Sharing research results and the impact on attitudes towards research | Importance | “It allows communities to know what is being done and the impact it will have.” “I think having studies presented, having research presented back to me, allowed me to make a decision on what I wanted for healthcare treatments moving forward.” |
| Information concerns | “…it is great to have a larger reach, but sometimes I have concerns about how the messages will be interpreted.” “…how much information could you give would not understand, because not everyone understands the same words to mean the same things.” “Information can be skewed and altered really quickly.” | |
| Audience segmentation | “I keep going back to my whole thing is that who we’re targeting and how you’re going to reach them and what age group.” | |
| Community listening sessions: A trust building strategy | History | “So people feel like, ‘Here we go again,’ just using Black bodies to do research on and you know, and then we’re going to be discarded…” “We have to be able to trust the medical community with our lives. That’s not something we do based on our history.” |
| Trust-building strategy | “You can tell that he (the researcher) had a sense of community. He was wanting to make sure the information was presented in a way that I can understand what they are saying, “…but I think going forward, that (community listening session) would be a good way to create engagement and interest.” |